Anyone else not sleeping?

Goodnight, good morning or whatever people say at 04:10 AM. 😀

Yeah, another night of no sleep. With the difference that this time I won’t be able to catch up on sleep in the morning if I’d become sleepy as I have things to do in the morning. So unless a miracle will happen and I’ll get an hour or two of sleep until 6, I think I have a zombie day ahead, as I always call days after a completely sleepless night. Ugh, I hate it so much. But maybe if I’ll go zombie for a day, my sleep routine will settle back and my brain will get in which timezone I am. The good thing however is that Misha’s with me fast asleep in his basket, giving me some more sense of safety, and, which I am very gateful about, my anxiety is definitely not as overwhelming as it was last night. I mean it still is there, but it isn’t so exhausting and I am more functional so after like two hours of tossing and turning I got up and started doing some nice things like I wrote a bit of a next chapter of my book. It’s called “Jack Hamilton” and I’ve been writing it for years, finding comfort in it. Jack Hamilton is just a simple guy, but with very complex life and he’s quite funny, he is actually writing his story on its own. I often plan to direct his life and make him do what I want, but I end up writing something completely different like he’d want to write a life scenario for himself. I planned to publish Jack, but firstly now it’s definitely too long, and secondly, he became my close friend over the years, someone extremely close to me, almost ten years now. My God I can’t believe I can manage with him for so long. He isn’t easy to live with. And although many people know I’m writing a book about a guy called Jack Hamilton who is half Irish half Swedish, even know some of his life story, I’ve never shown anyone more than my notes before writing an actual chapter. I feel like my relationship with Jack, although he’s only my creation, is very intimate is some way.

Besides Jack, I’ve been reading my book, snuggling Misha, still have music on and I think soon I’ll go to bed again just in case I might fall asleep, although I highly doubt it could happen.

Who else isn’t sleeping for whatever reason?

Happy birthday, Olek and Mum!

So as I wrote a while ago today my brother Olek and my Mum have their birthday together. Olek is now 19 and I can’t believe it’s my Mum’s 45th birthday. She definitely doesn’t seem her age for me.

Besides having completely sleepless and very anxious night, I’m doing well. I could catch up on sleep in the morning which I did. It’s crazy to fall asleep at 7 AM, innit? 😀 But I’m glad I fell asleep finally, I prefer to sleep during the day than go around looking like Zombie and feeling totally rubbish, especially that with all the celebrations we had quite an eventful day. Although I doubt I will sleep tonight too, but well, we’ll see.

So right now we had a full house with lots of family, they came around 6 PM and I stayed with them for a few hours, but then me and Misha took a French leave before nine and are both in my room together. We have loads of delicious food, my Mum’s spectacular dessert which everyone likes and which never is boring – meringue with fruits (today peaches and billberries), a cheese cake, chicken wings, gyros salad and chops with chilli and mushrooms and other stuff, and some nachos and breaded nuts. Misha loved the chops.

Earlier today when I woke up we went with Zofijka to the shop and bought Mum a blanket she wanted to have. It looks really cosy and snug. I got some money for Olek as right now it seems to be the thing he needs and dreams about the most, plus I just hadn’t got any other idea honestly.

Also I will get some music for Mum as she mentioned to me she doesn’t have anything new to listen in the car.

As for other things, on Thursday I had an appointment with that OM doctor who is also a dermatologist and about whom I wrote some time ago, this time I saw him as a dermatologist because of my dry skin and the infection I have on my leg, but he didn’t really tell me anything which would be very new to me. He said I shouldn’t take showers but rather baths and don’t use a usual soap. I stopped taking showers last week already and we all always use black soap which is natural, also I try to make my baths possibly short most days. He also told me I should moisturise my skin and he prescribed me something moisturising. I moisturised it before as I thought it’s logical when you have dry skin, but I did it with oils, so maybe that cream he prescribed me will be more helpful, I didn’t collect the prescription yet though. And he told me the issue should ease a bit as the winter will finish which he told me last time too and which I’m really hoping for. I showed him my leg and he said he also thinks it may be because of my dry skin, then I mentioned to him that I showed it my GP two years ago and she said it might be staphylococcus and he said that yes it might be this too, but didn’t even suggest to make any tests or didn’t prescribe anything specifically for it, so looked pretty much like he didn’t know what it is. I told him I try to treat it with tea tree oil which seems to help and he said I should continue with it as it helps with healing. So, both me and my Mum, who also has dry skin and he says it’s genetic, we felt a bit like we wasted our time going there.

Yesterday I had “brain drainage” in the evening – that’s how I call Maths because I always really feel brain-drained afterwards 😀 and I hate it – and because I was feeling so drained I decided to have some self care time. I had a long, oiling, moisturising and relaxing bath with olive, coconut and sunflower oil and Epsom salt. I felt a bit like I was sitting in some mediterranean dish lol, Greek salad or something, wondered whether I maybe should put some feta cheese or olives into it too 😀 it was really oily, but I felt a bit desperate to do something with my skin as it pisses me off more and more. It’s strange that it never was so hardcore until this year, I’ve never realised I had dry skin before. So I spent there about 15 minutes listening to Plu and relaxing and even took a drink with me to the bathroom and drank it, it was Jack Daniels with Pepsi. I love Jack Daniels (not only because it’s Jack 😀 ), this is actually the only alcohol I drink, and I didn’t have it for ages, since September, but somehow I felt I’d like to drink it that evening. It was so good to hear Gwilym singing and drink Jack. I felt very moisturised afterwards and also very relaxed and warm, so I think it was a good idea, although I think I should probably repeat it once or twice as I felt itchy again later at night, but not as horribly as it used to be recently. The doc said I may feel more itchy when I’m stressed and I was definitely very anxious at night so I think that could be a reason for it.

So yeah, the evening after Maths was definitely fabulous for me.

The night was pretty rough as I mentioned, my Mum suggested it was maybe because of Jack still circulating in my blood and I also think that’s possible. I felt somehow very agitated and anxious, sometimes even panicky and it was very exhausting. Misha wasn’t with me, I looked for him for a while but felt too overwhelmed and scared in general to walk around the whole house and look for him everywhere, I hoped he’d come to me later on but it didn’t happen and everyone was asleep so I didn’t call him with food as it makes a bit of a noise.

I still felt that anxiety staying with me for most part of the day, also probably because of so many people around, but now I’m not anxious almost at all.

How is your weekend going? 🙂

A quick update.

I didn’t write anything about my life for quite a while, recently I feel like I’m behind everything, so decided to do it quickly today as I have a bit of free time on my hands.

So I’m back in the routine since last week, my winter break has finished and all goes relatively well. Besides being busy with school, my languages, family life and other stuff, last week I also went to the OM doctor. I think I didn’t mention yet that I am working since about two years in my Dad’s company as an office worker. My Dad is a tank driver and delivers fuel. I don’t do much and it’s surely nothing like the job of my dreams, but I can earn some money which I can save for the future or spend for some things just for myself which I really appreciate and I think I’m lucky I’m in such situation. I suppose lots of disabled people would love to have such a start in life, no matter what they’d do next. So obviously I need to go to the OM doc every year, I had my bloods taken and other things like that and then I talked to him. At some point he wanted to measure my blood pressure, he took my arm and was very astonished why my skin is so dry. Actually, I was astonished too, because I never really thought it was dry. I do have hypothyroidism, but I always thought that, especially as for a person with hypothyroidism, my skin is definitely OK. So I told him I have thyroid issues and maybe it’s about that, but he said he doesn’t think so. My Mum, who was in there with me, was astonished too. He asked her if it feels like her skin is dry. She said that no, absolutely not. We both were actually convinced our skin is very smooth. But he asked her to show him her arm and he said that it is dry. So that amazed us even more, like I didn’t know whether to actually believe him. And he said he’s a dermatologist, besides being an OM doc and we could make an appt with him as a dermatologist if we wanted to. So then I told him that although I’ve never thought about myself as having any bigger skin issues, recently I have often pretty disturbed sleep because of being very itchy at night and Mum said the same is with her, which I already knew about. So he told us there is apparently a genetic condition and when you have it, your skin tends to be dry and the problem increases in winter when you have the heating on or if you stay in air conditioned rooms for long periods of time. I surely am not in air conditioned rooms often, but obviously we do have heating on now when it’s winter and that itchiness occured in me very recently. He also said you can have skin infections frequently, can feel more itchy while having shower or when you’re stressed and that’s exactly what me and Mum experience from some time. So we decided we’ll book an appointment with him. I’ll have it tomorrow. I’m interested what he’ll tell me and what’s this condition, I’ve never heard of it. Sometime ago I wrote about the infection I’m having on my leg and maybe that’s why it’s occurring. So I will show it to him and maybe he’ll have any idea what to do with it, as I definitely don’t want to have it again and want to heal it as quickly as possible, I want to be able to horse ride again, but it’s too painful right now so I wouldn’t have any pleasure of it. So that’s it about my appointment.

As for other things, I finally got accepted to write my final exams in the school for the blind and not the school I’m attending to. My school is a mainstream school and it would be hard for them to technically adapt the exams for me and I would feel challenged and both me and my Mum think like I’d have quite a lot of additional stress while I’ll be already stressed out just with exams, so I’m glad I don’t have to worry about technical stuff now.

The only thing I am worrying about in this case (besides passing the exams of course) is that there is a boarding school as well. While having exams, me and my Mum will most likely have to stay there. It’s not the boarding school I was in, it’s a completely different school and I will stay there with Mum and Zofijka, but I feel kind of stressed about that. I feel like it can be a bit triggering. And I feel weird admitting that actually. I know it’s another school, other circumstances, but seems like my brain doesn’t know that. And that makes me wonder whether if simply staying in the surroundings resembling my school, where I didn’t feel well emotionally, makes me so anxious, even if the circumstances will be completely different, whether it means I have some more trauma around that or what… It makes me feel really weird, it was a really hard time for me, being there, lots of hard stuff, but I wasn’t abused there, well there was a time when I experienced emotional abuse from the staff, but my Mum realised what’s going on and it stopped reoccuring. But other than that, nothing really dramatic happened, no one did any harm to me at least not consciously. So I would really like to know what it’s all about. And, actually, that isn’t the first time and situation in which I’m wondering about it. Am I more traumatised than I think, or just so horrribly emotionally weak? I don’t know if it makes sense for you, I’m not even sure if it makes sense for me so… well it’s just so strange. 😀 But there’s still some time until May, so hopefully I’ll be able to pick myself together a bit until then. I didn’t talk abaout it with my Mum, but I talked briefly with my Dad. Not about my emotions around that, but just asked him if he would be able and if he would like to go there with us. Because if he could, it would be easier to move around and I know that my Mum would prefer it too, then we could stay somewhere else outside the school. But his work hours are very unpredictable so he didn’t tell me anything in particular and I know he would be bored to death there even if he wouldn’t have to work, so my question was actually rather theoretic.

And the last thing I would like to mention about is that last week I got a wonderful gift from my Maths tutor. She is a typhlopedagogist and surdopedagogist and because I am learning on my own outside of school, just at home, but having trouble with Maths, I have lessons with her two days a week and she explains stuff for me. She is also helping Zofijka with her Maths, although Zofijka goes to school regularly and doesn’t have any special needs, but has issues with Maths and it’s just easier to pay for one tutor than for two. And Zofijka is absolutely fascinated by her. Anyway, what I wanted to tell you is, last week on Tuesday, when she came to us she had three large boxes of gem stones for me! I was so excited and I really appreciated the fact she remembered that I collect gem stones. After all she’s only my tutor, but she’s really involved and helpful. Some time ago we chatted after the lesson and she saw my huge collection and I told her a bit about it and showed her many of my stones and she mentioned her brother was collecting gem stones and other minerals when he was younger and now no one cares about them so she brought them to me. And there are a few pretty rare minerals, some which I looked for and couldn’t find anywhere, so, yeah, I was extatic. 😀

Today I’m having a really peaceful day finally which I really appreciate. I spent a lot of time with my Mum. Zofijka has sinus infection so she’s still at home and we played a lot. And although I had lots of weird and sometimes scary dreams recently, I feel really well today.

How is it going for you guys? 🙂

Share Your World February 12th 2018.

Are you a practical jokester?
Not really, but was a bit more when I was a teen.

Who cuts your hair? You, a friend, or professional.
Usuallly I go to the hairdresser, but if it’s just a fringe or something like this, my Mum does it for me.

Did you have a stuffed animal when you were a kid, if so what kind?
Oh yes I had. I had my poor, long suffering teddy bear which I loved and still owe a big debt of gratitude to him for what a big support he was for me when I was a kid. His name was Pimpuś and I always slept with him when was at home. I never took him to the boarding school with me, I remember I didn’t want him to smell like it, so he was always waiting on my bed at home for me. When I was at nursery I missed him terribly, then a bit less and I wasn’t so attached to him, but I slept with him for a really long time like even when I was a teen. Now he’s retired and after several tail surgeries and other kinds of “medical” interventions, but I still have a soft spot in my heart for him even though now Misha replaced him. I also had many more teddies, and a few dolls, but I wasn’t even half so much attached to them as to Pimpuś.

What did you appreciate or what made you smile this past week? Feel free to use a quote, a photo, a story, or even a combination.

Misha, obviously, I think it’s needless to mention. Besides it was the second and last week of my winter break, it was absolutely cool, I needed some chill out and just not doing nothing for a while. Also I finally got the confirmation that I can take my final exam, which is needed to finish my current educational stage, in other school than I am learning in. That school is for the blind so they will be able to adjust everything to me much more easily than my school would be. If I’d have to pass it over here, it could be problematic for everyone, I think. It was a Welsh Language Music Day on Friday and dI celebrated it discovering a lot of new and old, but new for me, Welsh language music. And discovering new music I like, or in languages I like, is always a great pleasure for me. On Saturday my Mum made a great toffi cake, because my Dad had his name day. It was so yummmmmmy, so it’s definitely worth noting.

https://ceenphotography.com/2018/02/12/share-your-world-february-12-2018/

Ugh, again? Some general update and a little health ramble.

Today it would be a really nice day for me, if not the fact I’m feeling really crappy physically.
Remember when last week I was writing about my emotional crisis I had on my birthday? I wrote it can be partially due to PMS and now I am sure it was true. Only why I have to feel PMS symptoms for more than a week before the actual time of surfing the crimson wave? Luckily emotionally I am much more stable than then and I hope it’ll continue, ’cause that was scary.
But OK, I can fully understand that aunt Ruby or Flo or whatever is her name, has her own rights, but why my leg is not cooperative either? Seriously, I am starting to worry, or at least wonder.
I got a weird and pretty painful wound on my calf and what is the more weird about it that a year ago I had an almost exactly looking wound on my other calf. Same was two years ago on the same leg as now, but not exactly in the same place as now. And moreover as far as I remember it was also in February, ’cause it was close to my Dad’s name day and it was annoyingly hard to heal. I had no idea where I could get it, it was like totally out of no where, so that my Mum even thought it may be some ulcer, which scared me, but when I went to my GP with it, she said it’s just a form of infection. I remember that last year it finally healed in April. So now I think it must be something chronic and I think I’ll need to visit someone who could tell me more than my GP. I was even wondering ’cause people with diabetes have issues with skin regeneration and I am apparently at a higher risk ’cause I was taking growth hormone in childhood and people on the both sides of my family have diabetes, but because I was taking that hormone I have tests about once a year and they were as good as always recently. I really want to know, even just of curiosity, what it is. Plus it pisses me off. My leg is hurting so much since a few days that even walking for a longer distance is a bit challenging. I discovered that it’s back with me when I went shopping with my Mum on Tuesday and then we went for a longer walk almost around our whole town and when we came back my calf started to burn horribly.
And it is also shitty because yesterday I was meant to go horse riding. I didn’t ride for a really really long time now, since Christmas, I believe, so I fell out of the routine completely. But my instructor is a very busy person, she is not only a horse riding instructor and hypotherapist, but also a doctor – anasthesiologist and neurologist and recently also works on ER a lot. Plus she has her own, big family and it always surprises me how she can manage it all and before now I could ride pretty regularly once a week unless she had to go to ER. I like the fact that she is a neurologist ’cause we can talk a lot about the brain and related stuff which i always appreciate, I’ve learnt a lot from her and it is thanks to her that I realised that if I could see, I would most probably end up as a brain surgeon. Anyway, back to my horse riding, she texted me on Wednesday evening she finally was able to schedule an hour on Thursday for me and asked me whether I’d like to go. It hurt me but I felt so excited that I impulsively wrote that yes sure I will come, but yesterday morning the pain was big enough that I realised it won’t be anything neither pleaasant nor beneficial if I went riding, I could easily make it hurt even more and I wouldn’t do a good job ’cause even my muscles around the wound were hurting.
I find life much more boring without riding. As for now I use Rivanol and tea tree oil to treat it but surely will end up on antibiotic as last year, I just didn’t go to any doctor yet.
Tomorrow is my Dad name day. You know what name day is? I know there are only a few countries now which celebrate it so if you don’t know, it’s basically the day when your patron saint has his/her feast. It’s a purely Christian tradition but now it’s celebrated just like your second birthday or something. Just another opportunity to eat as much as possible and have your family gathered together. There are all name days listed in Polish calendars, although they differ slightly and you probably won’t find exactly the same names under the same dates in two different calendars, but there are some conventional dates. Tomorrow is the name day of Elwira, Jacek, Jacenty and Scholastyka and therefore my Dad who is Jacek (or Hyacinth in English) is having his name day. It’s a bit weird to me though because saint Hyacinth who has his feast day tomorrow is almost unknown while we have another saint Hyacinth who was Polish and whose feast day is celebrated in August and he is much more known, so if I was my Dad, I would pick my name day to be in August on that other saint Hyacinth’s day, but I think it doesn’t matter that much for most people.
So tomorrow we will have even bigger family gathering than it was on my birthday and there will also be my Dad’s friends and I hope I won’t have to endure another emotional crisis. My poor Mum is in the kitchen almost all day long. She isn’t preparing that much food, but my Dad will have a big toffi cake. Ridiculous, because he can’t stand anything sweet. 😀 But we love toffi cake. Me, Zofijka, Olek and my Mum kind of likes it as well. And I am sure all the guests will be happy with it too. Toffi is such a delicious thing to eat. Will share with you tomorrow lol.
Now I am listening to Welsh music all the time, as it is Welsh Language Music Day today, so I definitely need to celebrate it. I’ve also learnt some Welsh today. But now I think I will go and nap for a while, ’cause my leg is hurting, my abdomen is hurting, my head is hurting and I feel quite miserable physically.
How are you guys doing? Any nice plans for the weekend? Maybe you’re celebrating something as well? Anyway, whatever you’re doing, I wish you a great weekend.

Second week of winter holidays.

Yes, today we just started the second week of winter holidays. I am happy I have one more week of chilling out before I’ll go again into my usual routine.

Unfortunately my family seems to have a bad luck recently. My dad got sick a few days ago, it looks like sicknesses really like us recently, because Mum was ill not so long ago, as well as Zofijka and me and my Dad were ill around new year, and now Dad’s sick again. And it looks like it’s angina again. He can barely speak. Only my brother Olek seems to be relatively fit.

And yesterday Mum and Zofijka and our cousin went to the icering and were skating for like a few hours, my Mum loves skating and is fairly good at it, but then suddenly she slipped and fell on her arm and now it hurts her terribly. We are worried it may be broken or something, ’cause it still seems to really hurt.

But Mum says that once she recovers, she’ll go skating again, she haven’t done it in years, but she really loves it.

I think that if my labyrinthium didn’t suck so much and if I had better balance, I would like it too, I have always had a weird liking for everything ice related, but I’d feel pretty unsecure on the icering with my freaking balance, I think. So as for now I am trying to help Mum when and if it’s possible, since it really sucks to be able to use only one hand and to be, as she calls herself, a “house manager”. 🙂

My cousin is still with us which I am very grateful for because Zofijka is such an absorbing and really easily-bored kid, that she often gets on my nerves when she keeps repeating how bored she is and what she’d like to do and that no one wants to play with her and she is so alone. No matter how I love her, it can be annoying when she still only wants people to play with her and make up ideas for her to have fun, since we all have better and more important things to do. I often play with her and I like to do it, but, I hope you get it, I can’t do it all the time. No one can and wants. So I think we all appreciate it when Zofijka has someone her age to play with, if she really still needs company.

Misha is delighted, he got his new cat sausages today and he loves them. He was licking himself about 10 minutes I think after he ate lol. And he seems very happy and relaxed now. He is sitting by the window and looking at the world and licking his paws. This is the life. 😀

Hope you all are also having a nice day, no matter if you have a winter break or not. 🙂

Nice day.

Today is going really nice for me.

Zofijka woke me up very early, because she woke up and couldn’t fall asleep again and wanted to sleep with me. It was like 6 AM when she came to me, but then we didn’t sleep anymore, just chatted and each of us did her own thing. Zofijka played on her phone and I read George Bidwell’s book “Pat’s Sons”. I’ve already finished it. It’s the second book of the series about Michael and Pat, it’s a series about history of Ireland.

When we finally got up, it was almost the time for Zofijka to go out, because she was going to our cousin for the day and she’ll be staying at him for the night. They really like to play together so I hope she’s glad there. Zofijka puts so much energy in to our home so now it’s a bit quiet without her, but I think it’s necessary from time to time to have some silence, luckily she’s only gone for a day.

If you’ve read Misha’s post, you already know from him that then we both had some time together. Then my Mum came back home after dropping Zofijka to cousin’s and we went out together since I needed a haircut. We had to do also some small-wares shopping and had to visit a few bakeries. Misha had his birthday yesterday and tomorrow is mine, so, you know, you need to have some cake for guests, but we couldn’t find the one my Mum wanted. I left decision for her, because I don’t feel an expert about birthday cakes and actually I am pretty sure that tomorrow I’ll be too stressed to eat a lot, because of my social anxiety it’s always a bit stressing for me when my extended family comes to us, the more that I’ll have to be the centre of attention. I mean, I like my family, but it’s just a bit challenging for me to be in such a large group of people for a longer time. Plus I like my Mum’s blueberry dessert much more, so she told me she’ll make it for me, but people always tend to like those greasy, extremely sweet and richly decorated birthday cakes, so let them have one. I have always quite mixed feelings about having birthday.

So when we got home, I chatted a lot with Mum about lots of things, we had raspberry muffins and I was writing with my Swedish pen pal. But wasn’t up to much besides that.

Hope you all are having a nice day.