My little gratitude list.

I’ve just thought I’ll do one so here goes:

A very warm weather in the morning. I woke up quite early, ate breakfast and then sat in the living room with Mum enjoying our drinks, with the balcony door open, and the sun was shining and it felt almost hot there, but not too hot. It felt very nice. In the afternoon it started to rain heavily and was stormy though.

Having a nice, low key day. Which I really appreciate today, as I’ve been having a headache all day long, so don’t feel particularly energised and am happy I don’t have to go out anywhere or do anything very important or stressful or whatever. It is not the kind of headache that would put me to bed and that I’d be completely non functional, but still it’s quite disturbing and painkiller doesn’t seem to work, but it doesn’t feel strong enough for me to take the stronger one for more migraine-ish stuff. I’ve had this kind of headaches prety often in the last couples of week. Oh but I’m digressing.

All my friends – penfriends, in the blogosphere, etc. all of them. I’m really grateful for having so many great people around me online!

A long, hot shower I had a while ago. Sometimes a long, warm bath or shower helps me with a headache or a migraine, which today didn’t happen, but it was cool anyway. It’s getting warmer, so my skin is not as dry, so I feel more daring with soaking in the water, no having to regret it later because of feeling dry and itchy.

Yummy food I’ve had today, and a lot of veggies. For breakfast I had sandwiches with my Mum’s baked pork chop, I guess that’s how you’d call it, and lettuce, parsley, spinach, cress, tomatoes, radishes and chive. We have loads of vegetables right now, thanks to my Dad’s gardening hobby, which my Mum looks down upon and laughs at, but I think it’s really good for him that he has some constructive hobby, and also that it’s so useful, as it’s nice to have your own vegetables. For lunch we had chicken soup with noodles, and also a lot of parsley – we can’t imagine a chicken soup without parsley, not a good one at least. And for supper my Dad made his artsy sandwiches especially for me. 😀 My Dad’s sandwiches are very special ones, because he always puts so much effort into them, making sandwiches for himself or anyone else is a bit like a ritual for him I guess, or looks so. A characteristic of them is that they are full of everything, especially when it comes to spices, his view is that the more you put on your sandwich, or to any dish actually, the better it is. I don’t always agree with this view but I really liked his sandwiches today, and it was cool that he made them especially for me cus he needed company while eating supper and everyone else were either sleeping or immersed in the TV/smartphone/observing the fish tank. 😀

Misha. I’m grateful for Misha every day. Recently I tried to think back what it was like back when I didn’t have Misha, or didn’t even know him, which wasn’t so long ago after all, but it was kind of difficult to even imagine, Misha feels like an essential part of my life, and I call him my personal bundle of happiness. He wasn’t particularly convinced when I asked him to go sleep with me last night, but instead he spent a good part of the day sleeping in my room during the day, first in the morning, and then in the afternoon, when I was doing my Welsh, and then watching the rain falling outside at my window. Nowadays, when I learn Welsh, it’s mostly listening, and today I had my 2,5 hours weekly marathon, so then I don’t do anything else but listen and read. So, as I felt exhausted because of the headache, I just laid beside him and we held each other’s upper limbs for moral support – I suppose the moral support was mostly for me as I was really frustrated with myself ’cause I still can’t make sense of what I’m hearing, and kept distracting. Perhaps doing the Welsh marathon with a headache wasn’t the best idea in the first place, but I doubt it’d be much different otherwise, and I had enough free time on my hands so I knew I would regret it if I wouldn’t use it when I had it ’cause 2,5 hours without external distractions doesn’t happen often to most of us.

My Plextalk, and that it is so small so I can actually lie on the bed with it and plug the headphones in and listen. And generally, I’m grateful for it because it saves me from boredom, silence anxiety as I call it, and so many other things. I’m also grateful for my laptop as otherwise I wouldn’t be able to do most of the things I do, and for my Braille-Sense, ’cause even though it is falling apart I’m still using it a lot and life would be harder without it.

That I slept quite well last night. Not very well, because I have blocked nose since a few days because of allergy to something I have yet to find out what it is, but reasonably well. And I am also grateful that it’s already evening so I can soon go to bed and hopefully will wake up tomorrow and will feel better physically.

That I feel pretty much on the baseline emotionally and moodwise. That’s of course my baseline, not like for most people haha, but I am glad it is like this anyway.

Blogging, writing, journaling. As I’ve said multiple times, it always helps me with expressing myself so is always very therapeutical, and just pleasant.

Reading a lot of interesting things lately.

That I am able to learn my languages, and, even if there is such a bit of a low like with my Welsh lately, i am mostly really good at it, and am lucky not to have to put as much effort into it as many other people. I’m also very grateful that I could do my Welsh learning today, and hopeful that I’ll soon see some progress.

What are things you are grateful for? 🙂

Question of the day.

Where do you need to restore balance?

My answer:

In the amount of snacks I give Misha. Usually I give them to him to bribe him, like to stay with me or something, sometimes if there is a more chaotic day it happens that he gets a snack instead of a regular meal, or a couple of snacks actually. Also it is all very chaotic generally because he is normally fed in the kitchen – like gets his usual meals, some human treats and snacks – but then there is Zofijka and me and we also have our own snacks for him, so it looks like that whenever someone comes into the kitchen and prepares/eats something, and Misha is around, they feed him, not consulting it with anyone and not caring whether maybe he just ate something five minutes ago. He’ll come to either me or Zofijka and will usually get a snack too, ’cause oh well you know he’s so cute.

Our luck is that Misha isn’t your average voracious cat who will eat and eat and eat until it literally bursts, he’s actually often very fussy and has better things to do than eating, and he knows that there is food all the time, also his metabolism is very fast and he’s incredibly slim, almost skin and bones. Well not like emaciated or something but yeah, very slim, you can easily feel all his bones and he’s actually small. So physically it doesn’t seem to affect him, at least so far, but I think that – although of course he does like his food – it still isn’t healthy for him both physically and emotionally, because he also seems to like when things are consistent, or that’s how it looks like to me anyway. And boy I wouldn’t like him to become a stereotypical, obese, lazy cat, that isn’t interested in anything else other than his food.

If you want to change the world, you need to start from yourself, so a couple days ago I decided to cut off the amounts of snacks and other food I give Misha and be more careful of that, and also talked to Zofijka about this. My Mum agrees with me, but, you know how it is, until everyone gets used to something, some time must pass, so yeah, for now at least I try to not be too generous for Misha hahaha.

He is a cute child, he amazes me every day how just good-natured and clever he is, plus he seems to become more and more beautiful every hour, and he deserves all the best in the world, but I am not sure if he deserves being overfed, I want him to be the longest living cat in the world. 😀

How about you?

Question of the day.

What do you hope for in the next few months?

My answer:

The first thing that comes to my mind is for Misha to settle down, I mean I’d like him to feel comfortable now that Sasha is with us. He is getting better and better, but I can still feel he’s very insecure at times.

I also hope that I’ll be able to catch up quickly on all that time I was not able to ride. By the way, haven’t updated you guys on that, I’m going to the stud tomorrow and ride for half an hour. Usually it’s a full hour, but this time, because I’m still having this yucky skin infection, it’s gonna be half an hour, I don’t want to irritate it more, but I also don’t want to wait God knows how much longer until it heals. Oh yes and I hope my leg heals quickly, not for months as always.

I hope for doing some more visible progress in therapy. I can see that at this point there is something going on but so far it’s very small progress and I hope that with time I’ll go a bit further. And I hope I’ll get funding for all the tech stuff I need, or at least for a new Braille-Sense, my old one, as you may remember, is Zofijka’s age, so quite a senior as for a tech device, and is driving me crazy more and more with each day. So I also hope that in case I won’t get the funding, I’ll have the patience to get me through it all.

What are your hopes? 🙂

I am just so darn lucky! 😠

Guess what? I’ve got the skin infectionn on my leg, again. I was writing about it early this year, that I get very weird skin infections, or whatever it is, on my calves and I can’t, no one can’t, figure out the reason. I’ve been to three dermatologists and two surgeons with it and everyone is kinda clueless. I thought it’s maybe allergy, but I can’tfigure out what could I be allergic to that I don’t know of, and I don’t apply any chemicals on my skin nowadays consciously, most of the cosmetics I use are homemade by our lifestyle guru – my Mum, the rest are either al natural or hypoallergic, if I need to use anything else which is extremely rarely. Hell my Mum even got me tested for diabetes because we were worried it’s healing for so long, but I don’t have it. I’ve been told I once had staphylococcus in it, but not much more, and I’ve got a lot of meds for it, which worked sometimes more, sometimes less, but always very slowly.
It doesn’t look too bad because it’s always small and I’ve never had any complications, but as I said it heals for ages, like a few months, and I have scars after that shit, I have it twice a year, so if it doesn’t stop, I wonder how my legs will look in ten years time. It’s also pretty painful most of the time and makes long walking or standing a bit hard.
I’ve felt my leg hurting since last night but I didn’t figure out it can be that until I saw it bleeding when I was going to shower a few hours ago. I was mad.
I wouldn’t be whining at all, after all I kinda got used to it and many people, including me have to deal with worse and more important things, but this time it drives me crazy for a reason.
It means that, AGAIN, I won’t be able to ride for God knows how long. Some part of me is starting to wonder whether I actually should still insist on riding if there have been so many things speaking against it over the years. Maybe it would be wiser to give it up, or maybe there’s something else that God has planned for me, but I can’t accept it, and won’t. Not yet at least. I guess I just have to wait some more. Maybe then I’ll get some luck with riding finally. But OMG I’m so angry with this!

Hoping hearts.

Tomorrow my Mum has an appointment with a coeliad disease specialist in the afternoon, and in the morning, she will have some blood tests done, mainly to see if she has enough of iron, feritin, or however it is called, and how her thyroid hormones’ levels are, because she’s constantly very tired and having menopause so it was actually what I suggested her to do because so many women in her age seem to start to have all those Hashimotos, hypothyroidisms and stuff.

But what I’m mostly concerned about is that coeliac disease thing. She has had isssues with gluten and with food in general for a long time now, feeling unwell after pretty much anything she eats. It’s really concerning for me, and I know for her too, even though she pretends to take it easy. She had gastroscopy and colonoscopy done and thankfully there’s no cancer or other alike shit involved, I was freaking out it could be that. But still, the perspective of my Mum having coeliac disease quite scares me. I just hope it could be just something milder, something easier to treat, I’ve heard so many awful stuff about coeliac disease. Maybe it’s just some allergy or something. But even if she doesn’t eat any gluten she still feels tired and very often feels bloated.

and I know she’s stressed too, and can’t wait to know what’s up.

So we both, with more or less desperately hoping hearts, are awaiting for the results, and I, despite identifying myself strongly as a defensive pessimist, still am praying for the best possible outcome for her.

 

If We Were Having Coffee… #WeekendCoffeeShare

Weekend Coffee Share at Eclectic Alli’s

So it’s another weekend and let’s have some coffee guys, although I’d rather suggest ice coffee, it’s incredibly hot here, 30 degrees C. or something like this. 🙂

If we were having coffee, I’d ask each of you how you’re doing…

If we were having coffee, I’d tell you I am really looking forward to some cooler temps. I’m not the best at tolerating the heat so not feeling the best physically this week. I’ve suspended the Tibetan exercises until it will cool down and did them only on Monday. My room is the hottest in the whole house, it always warms up in the afternoon, luckily I have an air conditioner now and it’s on from like 3 PM until the morning. I am glad the weather is nice but a bit exhausted with the temps above 30 C in the end of May and the beginning of June. What pisses me off is that always when it’s so hot my blood pressure seems to go even more down than it’s normally and so my energy is almost non existent. Misha’s sleeping most of the time and my Mum who also has constantly low blood pressure and low tolerance to the heat feels crappy too. We’d be really glad to have a little storm and some rain.

If we were having coffee I would tell you I had an awful migraine on Wednesday. I think it was because of the heat. I spent almost the whole day in Mum’s room which seems to be the coldest one and either sleeping or just existing. I actually didn’t think it would be a full migraine, I just felt some little headache in the morning, but it got much stronger very quickly. What I hate about migraines other than just having it and being in pain and stuff is that usually when I get it I also have some scary dreams. And this time wasn’t an exception, although luckily I didn’t slip into the sleep paralysis and those very very dark dreams, they were just exhausting and weird and definitely not good. I felt better in the afternoon though and was completely free of pain in the evening. I decided to do some creative stuff, despite my brain melting successively and worked on one of Vreeswijk’s poems, which I started translating to Polish months ago. It is so frustrating, so far I have only a few of them done, I started a couple of them already but can’t finish any. I haven’t finished ANYTHING this year, guess I was too low most of the time even when I had some more time for it hypothetically. It drives me crazy that it seems that when I translate his poems, I can get through some part smoothly and then I always get stuck somewhere. But with this one – “Balladen Om Bonden Och Djävulen” (The Ballad About The Peasant And The Devil) I’m very near the end now. Despite I find it rather hard – masculine rhymes, which are so common in Swedish, but not as much in Polish, but since this poem is also his song I thought I should leave the original structure of verses, and his very unique style which was kinda hard for me to transfer into Polish in case of this poem, but at least no word games this time. This is a funny, folkloristic ballad about the peasant who is visited by the devil and he complains to the devil that he has gotten old and unappealing, while his wife is young and beautiful and he’s jealous of young men’s youth and he asks the devil to help him keep his wife by his side, so that she’d love and desire only him and the devil helps him, supposedly. I really miss those times when I translated more of him, and was very productive with doing it. So I really really hope that I’ll be able to finish this one soon and the final effect won’t be too rubbish. Then I’d like start to work with his “Veronica”, although this one is a real masterpiece so I’m not sure how it’ll go and I think it would take me a lot of time. I’m a little anxious about it, because what if I foozle it completely… but at the same time I really want to try because I know no one else would do it in Polish, and I’m curious whether I can manage it. Or if not “Veronica” I might go with a short but powerful poem called “Hemställan” which is about death and really speaks to me, but looks lke there is a word in it that is hardly translatable into Polish. I think I could go much further with translating his works if I wouldn’t be so intimidated that I may fuck it up or that translating his poems to Polish is pointless and that my dream just can’t come true. But I still am, maybe because I can’t judge my translations objectively. I tried to show them to my Swedish teacher back when he was teaching  me but I feel like he can’t be objective too, well I was his best student and he wasn’t really used to having students translating Swedish poetry, so any time I showed something to him he was shocked and wondered how I do it which I can’t explain because it’s usually very spontaneously. And I feel like he never saw any flaws to my translations, other than some very glaring ones, which was always a bit confusing for me. There was my friend Jacek – the one with whom we made up the novel about Ragnarok and the viking gods – and he spoke Swedish, but sadly I can no longer ask him for any advices… Although back then he was very constructive whenever I showed him something I’ve translated. But I actually don’t know whether it’s really the problem that no one can be objective or just my AVPD goes in the way and makes me think that there’s no way at all I can do it right, which, I suppose, might also be possible. So anyway guys, please wish me luck with that ballad, it’s really short, but I’ve been dilly-dallying with it for so long that now when I finally got a bit forward I’d love to get through it and do it well.

On Thursday morning I had a blood test planned to check how my thyroid hormones are doing and had to get up at 6:30 to have it done, but because I slept so much during the day because of the migraine, I had a sleepless night, then I finally fell asleep at 5 AM so Mum decided I shouldn’t go anywhere and be a Zombie and she rescheduled it. after the blood test we planned to go to the church because it was Corpus Christi holiday and we wanted to do it possibly early because of the heat, but finally they went without me and I just listened to the Mass in the radio later on. Then they went out again to take part in the procession, but me and Mum stayed home because it was really hot and we didn’t want to risk fainting in public, that would be scary. 😀 In the evening some of Dad’s family came and we were barbecuing, although I wasn’t with them for a long time because it was just so boring so I helped Mum out in the kitchen a bit.

Yesterday I had an awful morning. I woke up around 9, but didn’t feel like getting up, didn’t have anything necessary to do and not much energy and there was no one else at home except my Mum and Misha who were also napping, so I stayed in bed and I did one challenge of my Welsh course, well I didn’t finish it because suddenly I felt somehow very tired and exhausted, definitely not as if I just woke up. Soon I fell asleep again, or rather in a sort of lethargy, with some very weird and enigmatic dreams. But I know that even in those dreams I felt incredibly weak and tired and wondered why. Then I woke up around noon and was really concerned. I just felt so… faint, wiped out, weak, dunno… like I just ran a marathon, haven’t eaten for weeks and was very sick, all together. Even turning in bed was a bit of a challenge. I was dizzy, shaky, sweating and unable to do anything. my pulse was racing And my mind felt lethargic and a bit foggy. After some time, don’t know how much really, Mum came in to my room and told me it’s noon and that we slept really long and that maybe I”d get up already. Hmmmmmm, good sugestion, but… easier said than done. I just couldn’t imagine how I could make such a heroic effort as getting up. But maybe if I got up, ate something, drank a coffee, things would get better? I motivated myself, prepared for the effort for like 15 minutes, then finally managed to sit on the bed. I thought maybe it would be wise if I drank something first, well it’s hot, and we had a lot of salty and spicy stuff in the evening at the barbecue, and I hadn’t drank much then, maybe I’m a bit dehydrated, well I doubted that I can be so very dehydrated to feel this way, apart from the evening I was drinking something almost all the time, but who knows… That thought made my fucking emetophobia kick in. But I wasn’t even strong enough to feel very anxious. I made another considerable effort to reach the glass of water I had on my bedside table. My hands were shaky as if I was a drunkard in intense delirium or something, the part of my mind that was working more efficiently was very concerned that I may soon pour everything over my bed and my precious PlexTalk. It all was taking me ridiculous amounts of time and deep down I felt kinda scared. I even thought about calling my Mum to help me out somehow, but thought that when I’ll call her, she’ll freak out and I’ll freak out too, ’cause it will feel like it’s too bad to manage it on my own so something really concerning is going on, plus I thought I have too little energy to waste it on screaming. As I was drinking the water very slowly, stopping every now and then, I just remembered my Finnish pen pal named Sohvi. Sohvi’s biggest passion is painting, she’s sent me some of her paintings’ photos and my Mum saw them and described them to me and said they seem really good. She could be a professional painter, but can’t, because she has M.E and POTS and I remembered how she wrote me that on her significantly bad days she’s actually unable to do anything and just lies in bed because even sitting can make her dizzy and is too exhausting. So the only times when she can paint or do anything else around the house are when she has her better days. It always seemed so sad for me that she can’t fulfill herself being such a wise and sensitive person as she is. I am quite an empathetic person and my imagination is very fertile so I could imagine how she has to feel on her bad days, but now it felt like a horrifically similar experience, for me personally, not like I know exactly how it is to struggle with these conditions. My imagination started to work. So what? Am I going to end up as Sohvi so suddenly? And what then? I will never translate Vreeswijk’s poems for Polish people, I will never write that novel about the viking gods, my blog will be just hanging in the blogosphere, waiting for the day when I’ll be able to write anything, and my languages… Well that seemed rather saddening. Actually I had similar things happening to me before a few times that I woke up so faint and exhausted but never as intense. It was usually due to too low blood pressure or when I was sick or at some point at the boarding school when my brain was completely screwed up from all the anxiety, stress etc. and I ate very little because of my emetophobia and because I cared very little about and for myself in general. When I drank the water I still had enough ambition to get up, but my body was stronger than me and I just fell on the bed again. Finally I found the strength to get up, didn’t even  get dressed, although was incredibly dizzy, but managed to get downstairs by some miracle, and then find Mum in the cellar. I told Mum I think something’s wrong with me like I have low blood pressure or sugar or maybe something is going on with me because of the heat, and that I am completely wiped out and actually feel like I’m gonna faint anytime. Mum helped me, or rather dragged me to the kitchen and made me breakfast and then I felt more manageable. I showered, had a black coffee, then two big glasses of Mum’s orange juice and felt almost OK and definitely functional. Although when Mum measured my blood pressure it was still very low and for the whole day I felt dizzy and faint while standing and if I stood for longer it felt really unpleasant. My Mum also wasn’t feeling the best though. I think it’s all because of this heat. Anyway, I’m glad I’m OK now, but it was a bit scary, to just wake up and not be able to do anything, some part of me was really so anxious that almost sure that from now on I’m gonna share Sohvi’s fate although it was ridiculous to think so cos I guess such things don’t happen during one night.

If we were having coffee I’d tell you today Zofijka went to the Jump City with her cousin. It’s because it was Children’s Day yesterday. Zofijka is a kind of kid who always seeks for more adrenaline and likes when a lot of stuff happens around her, and she seemed happy. What I am kind of disappointed about is that those skunk slippers I bought her for her birthday still haven’t come. I hoped maybe I’ll be able to give them to her on Friday, but seems like their road is very long. Tomorrow I’m gonna be home alone for most of the day, Dad is going to work somewhere further and Mum is going with him – he’s a tank driver for those of you who don’t remember and sometimes he takes someone of us with him – and Zofijka is going on the beach with our cousins, and Olek is working. Don’t really know what I will be doing though.

OK, so that would be all from me.

What would you tell me if we were having coffee? 🙂

 

Cara Dillon – “Here’s A Health”.

So as I told you guys today I also have for you a song by Cara Dillon. This one is also a traditional Irish song, apparently was particularly popular in Ulster, in modern times it was popularised by the band called The Chieftains. I really like Cara’s version.