So I did it. And I’m back home.

I took a nap during the day which made me feel a little bit better overall. As I wrote in the previous post we’ve had a family gathering because of my grandparents’ 50th wedding anniversary. We went to the church, and riding was tough, but pretty manageable.
When we left to go to the restaurant for the actual party, I started to feel quite overwhelmed by the amount of people. I really don’t do well when there are so many people, not even just because of the anxiety, but it also always makes me confused, particularly if I don’t know many of those people, as it was today. It’s hard for me to communicate effectively and have any pleasure out of it when there are almost 50 people, it’s rather overwhelming. But I tried my best and I think despite not feeling secure in the situation I did pretty well.
I only stayed for dinner, then we had a photo session and then some cake and coffee. As for the eating in a large group of people issue I managed it well because I ate very little before so by the time the dinner started I was pretty hungry and didn’t focus that much on other things. And the food was really yummy.
Then my grandad came to me and asked me if I’d like to leave. I thought maybe it’s very visible that I don’t feel very well among so many people, but it turned out he asked because he had to leave for a little while anyway to bring something from the house, so he could drop on his way. My grandad as I told you before is a typical introvert and he doesn’t like to be among many people either, I know he’d rather spent today’s evening fishing or something but that’s the reality, when you have a family, sometimes you need to make compromises.
I wondered whether it’s not too early to leave, but he said it’ll be completely OK and that he knows I’d be bored so I don’t have to explain myself. It’s good when you have someone who just gets things. And it felt very kind of him to think of me.
So then there was a little fuss because one of the guests came quite belated so they all were welcoming him and stuff and so we just sneaked out.
I asked grandad how he’s feeling about the party, because I know it was actually my aunts’ idea to make it so huge and sumptuous, and he said that yes, he’d much prefer to be already in bed watching his favourite movie that is on TV today, but he was happy that his family is happy and having fun. Hm, I don’t know if I’d have such a big family of my own and they’d make such a big party in honour of mine, that I would be so dedicated and thoughtful as he is. 😀
So he left me and I’ve just got out of my party outfit, fed Misha and checked my email and I think I’ll jump into the shower now and then go to sleep straight away. I feel kinda exhausted despite that nap earlier today, I think I’m having PMS or something, it would be the time, don’t know if I’ll sleep but at least just lie in bed and read something, it’s only 8 PM. I feel lucky I don’t have to be there now when they’re dancing. But I also think I managed fairly well those four hours I’ve been there and had my anxiety under control despite it was strong.
OK, so sleep well guys, if it’s sleep time for you as well, or if not I hope you’re having a nice day. 🙂

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No sleep last night.

I didn’t get any sleep at all last night. It sucks. I was very anxious and jittery for some not very speciffied reason and I think that was what kept me up mainly. I’m used to such things and it wouldn’t be a big problem for me if not that party we’re having today. As I wrote a few days before it’s my grandparents 50th wedding anniversary today and they will have a very big party with 48 people, with a big dinner and dancing. It makes me very anxious, plus honestly I just don’t feel like going there and if it weren’t my maternal grandparents I’d probably find some excuse, parties are deadly boring. And so much stuff about them makes me horribly anxious. All the people I don’t know, yes they’re my family, but I don’t know many of those who’ll be there, many are distant family. I feel sick in the crowds and any sort of noisy areas. I genuinely hate dancing, particularly with people I don’t know that well. I don’t think I’ll be dancing a lot but still I don’t like it. I hate eating in a big group of people. And it will be a completely unfamiliar area for me because they’re making it in a restaurant. Also before we go there, we’ll be going to the church that is my grandparents’ church that they go to, that we previously belonged to before we moved here. I like going to my grandparents usually but what always scares me about it and often makes me avoid it is… the road. It often happens that riding is a bit hard for me because of my labyrinthum issues. I get dizzy very easily while riding, which in turn makes my anxiety stronger, so sometimes getting places may be a little bit exhausting. It’s a bit like motion sickness, but not quite the same, it’s a bit hard for me to describe the exact sensation and how it feels, it’s a bit weird thing to feel and not pleasant at all, sometimes shitty to deal with. Usually it’s hard but manageable as I mostly got used to it, but ugh, the road to my grandparents’… there are a lot of potholes on the way to their house – they live in the village and this road goes through the forest and is absolutely horrid, everyone complains about it, not just me. Therefore I really hate going to them because it’s exhausting to go through that shit back and forth. And to go to their church you also need to drive the same road. I always sit on the front seat when we go to them but even then it’s always quite a nasty trip and I’m light-headed for quite a while afterwards. It generally really pisses me off because there doesn’t seem to be much I can do about it, so I generally try to ignore it, but it always makes me very anxious.

And that all with lacking sleep on top, ugh. I find it hard to manage anxiety with no sleep, and today seems to be a lot of anxiety at once. I am going to take my extra anti-anxiety pill and hope for the best, that seems to be all I can do at the moment. I’ll try to enjoy it and have the anxiety under control as much as possible, and I hope being around so many people at once won’t make my mood slip down again. Paradoxically, i often feel much more lonely among people, which in my opinion is actually far worse than feeling lonely while on your own, and this feeling often causes my mood to drop and I feel overwhelmed. I really hope that won’t be the case today. After all there will also be many people I quite like, so I hope I’ll be able to find it even just a little enjoyable.

Mum knows I hate dancing parties and crowds and she says maybe someone will be able to give me a lift earlier. She said she’d like to drop me home herself but she is one of the main organisers so she has to be there and she doesn’t think she’d be able to leave for a while. I suppose though that my grandad may need to leave earlier, he may like family gatherings but he’s almost as much of an introvert as me and as far as I know him he usually needs at least a little break from the people. I hope someone will be so nice for me because it is supposed to last until 3 AM, so really quite long I think, I don’t think many people would stay that long. I think Zofijka will also leave much earlier so we’ll probably go together, she usually goes to sleep around 10 PM.

By the way Zofijka’s coming back from the swimming camp today. She’s on the way home now. I’m curious what she’ll have to say about it.

So yeah, a bit of a rough day today for me, but it’s just one day and I hope it passes soon without too much shit.

Scared.

Long rant and unbossoming ahead, so be careful. Also TW for talking about emetophobia and all the obvious related yucky stuff. And about surgeries, and other related, possibly triggering, yucky topics. I will love you if you’ll get through all this, however it’s definitely not something I expect you to do, I just wanted to get things off my brain.

I’m having an absolutely shitty day, with lots of anxiety. I woke up very anxious because I had some gross nightmares for a second night in a row, but hey, that’s not the first time, so I thought I will get out of that murky place in a while. And I probably would, but then other things started happening. Particularly one thing a while ago.

Zofijka’s friend came over. She is, I dunno actually what’s with her, I guess she has some cold or something, anyway she is coughing a lot, but she seemed to be OK besides and they played lively as always and with lots of scream, as always. I was writing an exhaustive email to my pen pal, because I wanted to do it much earlier but haven’t been very well organised so didn’t manage, plus I wanted to distract from my other anxieties doing it. It wasn’t something very private or that I’d have to concentrate a lot on doing so I had the door open, the more that Misha was going in and out all the time.

And suddenly I heard someone running to the bathroom, the one that we have upstairs and that is beside my room. It was Zofijka’s friend. She was choking and then it sounded like she was gagging. So, well, I just froze. I couldn’t do anything, even just turn on the music or close that stupid door or do whatever. This is usually my reaction when I hear someone vomiting. Then Zofijka came to her and they talked silently and after a while they walked out. I don’t know what happened to her, I guess her cough was just so intensive. I know she had a brain tumour and isn’t fully recovered from it and Zofijka was mentioning that she had different things happenign to her as a result of it, but still objectively it didn’t look like something major. But I don’t want to know what it was… Or actually, I want, but I don’t want. That’s the best way I can describe it. But I think I don’t want more than I want. She looked like besides the cough she’s just OK, she played with Zofijka they were running and stuff, but now they just are sitting in Zofijka’s room and watching something. Obviously I wonder whether she has some flu or something and whether it’s contagious. I hate overthinking about such details. I wonder whether she’ll sleep with Zofijka. I generally like when other kids come to Zofijka for night, which may be surprising for you if you know me even just a little bit and how socially freaked I am, but everyone of us likes it, because then we don’t have to pay so much attention to her, she can be really really absorbing and exhausting long term, so it’s nice when another child comes to her for a weekend and she has something to do without either Mum or me having to constantly watch her, keep her company or endure her moodswings. BUt if she’s sick… and Zofijka will catch it too? And these scary bacteria and all will be all around our house… Grrrr!!! Scary!!! But I can’t stop thinking about it. Even if it isn’t anything contagious, I’m still scared, and I feel absolutely helpless about it at the moment.

I’m trying to distract, listening to music, I snuggled with Misha for a while when he wanted, went down to my Mum to smalltalk with her, but realised my Dad came back and they’re arguing so… well, ugh, I was reading blogs, tried to finish that email I started to write which didn’t go that well so I’d have to rewrite it, and now I’m writing here in hopes that if I’ll get it out it won’t feel so scary. More than an hour has passed since that little incident and I still can settle, and it scares me too, because I feel like it’s way too much time to process such a little thing, I don’t even know whether she actually vomited. But I just still feel so shitty, shaky and nauseated and cold and hot and dizzy and my thoughts are racing. Before that happened I planned to eat something soon but now I can’t think about eating anything without getting more nausious. Actually I’m rather surprised it affected me so much because I was doing better with my emetophobia recently. My family were sick in March and I had a lot of stress with it and other stuff combined together and although it WAS very tough, they were sick for a long time, I got through it more smoothly than this thing now. And I also feel like some major mood dip is starting for me, or maybe it’s just my anxiety trying to convince me that just everything is pointless. I took my extra anti-anxiety med but it doesn’t seem to do much.

And that other thing that scared me, not as much as the previous one, but now it all just combined into one scary monster in my brain, was something we talked about with Mum earlier today. Mum woke up having awful muscle cramps in her neck – she has issues with her spine so it’s like normal when she sleeps long in one position, and last night she slept very heavily. ANyway she wanted to make an appointment with her massagist as soon as possible. Then it reminded her that she also wanted to talk to him about me. Because of my feet and my muscle contractions that came up again when I started doing those five Tibetan rites with her. I agreed that she could talk with him about me and that it perhaps would be good if he saw me. Well I actually don’t remember if I had ever told you that I had a surgery for my Achilles tendons when I was 10. The orthopaedist I saw said that the source of the issues with my feet are the Achilles tendons which are to short so they’d have to lengthen them. They told me I would be in plaster for six weeks and how the surgery would look like. But it was all very brief and I didn’t really know what is going to happen, how I imagined it to be was completely different, and it seemed a very distant future. And when it finally happened it happened very suddenly, just the doctor told us out of the blue he can operate me in a week so we can come soon and that was it. So I had this operation, in pretty awful circumstances which I won’t go into now, and then I woke up hearing my Dad and nurses complimenting my new white high boots and how fashionable they are, and then I realised I had plasters allover my legs. Like, the surgery area was my Achilles tendons and maybe some part of my calves, while the plaster was all the way from my tighs to my toes so that I couldn’t even bend my legs. I think it had to shock me. I saw people in plaster before, like my Dad had his leg broken a few times, but I never thought you can be like this – I just though people who have something in plaster walk with crutches and do everything normally, like my Dad did. While I was actually bed bound. I think my parents weren’t prepared for such a big thing either, which only contributed to my insecurity around this. I actually felt much more like I was after some major accident than a minor surgery. Mum asked them to discharge me after the surgery and so they did, but I didn’t feel any better emotionally when I was at home. My existence started to be absolutely monotonous and depressive. This was the same year when I started integration school for a while in hopes it will work out for me, and Zofijka was born, so a lot of changes in other fields as well. I was overwhelmed that all the independence I had to the day of surgery was actually taken from me and I had to ask people for help with literally anything, like my Dad had to carry me to the loo and all that felt incredibly humiliating. I spent most of the time alone with not much to do since I couldn’t even change my position a lot. Mum was very occupied with Zofijka who was a very screamy baby and also we were moving houses and there was a lot of hustle with it so that she was mostly out of the house and then coming back in the evenings. I remember that I felt then that I was never going to recover or things will even get worse, that it will turn out I will have some weird complications or something. I think apart from all the boarding school shit etc. it was one of the things that screwed me up the most. That year many of my worst anxieties were brought to life or exacerbated, and I think then it was exactly when my first full episode of depression started, but it was diagnosed much later. It was then when I first was actively suicidal, and lots of other rubbish happened. When they finally took off the plasters of me I was very unsettled. In fact, when I was going hme after the surgery I was rather numb, but when they took the plasters off I felt like everything suddenly bursted out of me and I was a sobbing mess and noone, including me, could actually figure out why. It wasn’t the end though and the recovery afterwards and all the physio was even more traumatising and scary for me. When I finally recovered, after some time it turned out that the whole thing was actually waste of time and didn’t help much, and also that the plasters didn’t necessarily have to be that huge. I couldn’t recover emotionally for much longer, like even the songs I heard on the radio that I heard back then in the hospital or that were often played when I was after the surgery could bring me back to those feelings and experiences, and I could just feel situations as if they were now, or I had dreams in which it all was starting allover again, or a deep conviction it’s going to happen again, also that depression in which I slipped after the surgery has stayed with me for a long time. But I hardly ever talked with anyone about it and if so, very briefly and not going into my feelings. The only thing I am happy about with that surgery is that at that time I was luckily at home, not at the boarding school, otherwise I would have to go through that hell there, my Mum even told me once that she actually regretted I didn’t have the surgery there because it would be all easier logistically, so well, I should be thankful. Then Mum also brought me to another orthopaedist after a few years, and he told us that actually all that could be done with my feet, should be done when I was a baby and then everything would be OK, but what we could do at that moment was a surgery called Grice-Green’s surgery. I was just frightened, the more that this guy in turn described it all to me with lots of details and it seemed dreadful to me. However, somehow the thing was soon brushed under the carpet and of course I didn’t want to be the one uncovering it. My feet deffects aren’t so serious that they would affect my every day functioning significantly, or be very troublesome to live with, so I didn’t care and still don’t care much about it.

But where I’m going to, is that this massagist my Mum goes to is also a doctor. And it just scares the shit out of me that he could tell me I need another surgery or even anything similar. Of course I’d refuse, I won’t put myself into such things again now when I have the choice, but it all just… I think it triggered me. Because since we talked about it my brain is just flooded with memories. I feel so damn frustrated that I still haven’t got over with it. Like maybe I have a bit, but it still feels scary. I haven’t thought more about all that stuff for a long time now, I didn’t want to, and now it just all goes through my brain without me actually controlling it, like eveb the very details of that time and it makes me wanna scream. My Mum says he won’t do it, that he will just work on my muscles, because in recent years I’ve been getting a lot of contractions and stuff in many of my muscles, but particularly in my legs, and it actually is a bit disturbing for example with my horse riding or now with the Tibetan exercises. But some catastrophising parts of my freaky brain don’t want to believe in it.

Finally she called him and asked him if she could come, and then she went to him, and talked about me. She told me he said that these muscle contractions can also be neurotic, and that he’ll see me tomorrow at 12. I feel soo anxious about it.

Another thing I feel anxious about with this appointment is that I hate strangers touching me, even more if I’m just in my underwear. Mum says he wouldn’t care about it and how I look and stuff, that she was anxious about it too, but he has seen too many people to care about it, and she is sure I will like him. But for me it’s not about him. I don’t care if he’ll think I’m pretty or ugly or if he’ll care about how I look at all. It’s about me. I really really hate when people pay so much close attention to me, yuck.

So yeah, am very anxious today, but will have to get over it somehow. My emetophobia has calmed down a little bit as I’ve been writing and this girl isn’t sleeping with Zofijka, and also nothing very bad couldn’t happen to her, Zofijka would already tell me for sure.

I feel exhausted by all that anxiety, it’s been a while since the last time I can remember it being so intense, so I think the best thing I can do is to just shut off my brain and go to sleep, if I’ll manage, and hope tomorrow will maybe be better. Mum says she feels like having period and actually I would be glad if she would. It isn’t a Christian behaviour to wish someone a period, but then I know Mum would be stranded at home for the first day and we won’t go anywhere. I know I will have to see him and I know it could help me but I feel like right now I’m definitely not prepared. All that anxiety is, I guess, not adequate to the situation, and I would like some more time to digest it. I definitely wouldn’t like to come to him and freak out completely and lose the control over my anxiety, have a panic attack or something, which, in my current state of mind, would be very possible. Or I just hope this appointment will go better than I think it may. I just hope I’m only catastrophising with all this.

OK, sleep well, world. .

Question of the day.

Name one thing you must do more of and one thing you must do less of.

My answer:

Lately I noticed I need more physical activity. It’s been a little bit hard recently. For most of my life, my main physical activity has been horse riding. But this year things have changed slightly. I am taking my final exams this year and preparations consume quite a lot of time, and also money, as I have the tutor who helps me with maths, which is obligatory to pass the exam from and I simply wouldn’t be able to achieve this without her help, I’d say it’s even doubtful with it, but anyway… I needed to stop horse riding for some time as it also consumes a lot of both things. Besides my horse riding instructor and hipotherapist is a very busy person, she is also a professional rider, a doctor – working as anasthesiologist, neurologist and now also on A&E, ER or however you call it – and a mum, and has a lot of both children and adults she works with as either hipotherapist or riding instructor, so sometimes she just doesn’t manage to crowd everyone in her schedule and as I am one of people with less complex needs of those she works with and don’t necessarily need constant therapy/stimulation, it’s more of my hobby, it often happens that I may have breaks between my riding. Also my horse has been not in the best condition lately. I think I”ve told you about my horse Ɓoƛ who is quite an old guy with lots of stormy and not the nicest life experiences and because of that, he’s having more and more health troubles, recently something’s going on with his bronchi. I have my “emergency” horse – Rudy – but he has a lot of people who ride him, mostly children, on a regular basis, so it isn’t always possible for me to ride him. ANd also I’ve been through that awful skin infection which I had on my leg this year which was too painful to ride with. So actually the last time I rode was sometime in December. That’s such a pity. I feel like I’ll forget how to ride! That would be scary, but I hope I won’t and that I’ll be able to come back to riding soon.

Anyway, I’m out of riding for now and it’s a little hard to find some replacement activity. My spacial orientation and related stuff are rubbish, I’m barely able to navigate through our backyard and I don’t feel very confident about it, not to mention anything outside, I need someone to guide me. So I can’t organise much for myself. We do have some walk from time to time with Mum as we have some time on our hands at the same moment, but we both feel like it’s too rarely. At least I do some muscle exercises for my legs to not go out of practice when I’m back to riding, but I’m not that very systematic about that to be honest, especially now in all that mishmash. Hope I’ll be able to take it more seriously after the term session, maybe then I’ll have some more spare time, if the stress before the final exams won’t eat me completely.

The thing I think I should do less is overthinking. This is something I’m really an expert about, I could be a PHD in overthinking really lol. I feel like it’s a bit pathological and often very overwhelming so that I can feel absolutely insane just because of my thoughts overwhelming me. It’s damn hard to have any control over this, but I need to try and try and maybe someday I’ll succeed?

Now it’s your turn. 🙂