Answering another of Carol Anne’s questions.

So I decided I’ll answer another of the questions that Carol Anne of

Therapy Bits

asks her readers in her series called Carol Anne Asks. The question she asked us yesterday was:

Are you open with others about your struggles?

So, for me, it really depends what kind of struggles. It’s definitely very difficult for me to express my feelings especially those that I don’t really feel comfortable with, and it’s also always been hard for me to reach out for support, plus my social anxiety oftentimes makes things difficult when interacting with people, also AVPD comes into play for sure here, and makes me feel either like it’s not really fair to burden people, or like it’s not safe to be vulnerable and possibly coming across as pathetic which is something I always want to avoid, or like no one will be able to help or even get it anyway because AVPD makes you feel like an alien of course, but at least my ability to express the uncomfortable feelings and reach out for support have improved somewhat over the years, and it all impacts how open I am with people, so it’s better than it used to be. I also have a wider support network these days which also helps tremendously with any kind of struggles I might have and being open about them. It also really depends on how close I am with the people that I’m around and what environment I’m in because obvioously we’re all more open with some people and less with others for all sorts of reasons. Generally the person with whom I’m most open about my struggles is my Mum, who helps me a lot and I know I can always rely on her for some good advice or more practical help or just some insight. I haven’t been as open with her lately as I normally am or as I used to be because she’s having some yucky problems of her own so it’s more the other way around right now haha, which I don’t mind because I’m happy to help her if I can as well, and I wouldn’t like to make her worry about too much these days. I could never be fully open about my mental health struggles with Mum though. She’s great with practical help, and, as I’ve said many times I don’t know what I would do without her, but when it comes to my brain or generally things like anxiety or depression or whatever like that she doesn’t really get it. It’s not that she’s narrow-minded and struggles with empathy like my Dad kind of does, but I guess it just feels a bit too abstractive to her because she’s never really experienced such things, and I don’t blame her for that she can’t get it. Trying to talk about those things had led to some misunderstandings between us which weren’t pleasant for either side so it’s best to avoid it if possible. Also, we often share our small, daily life struggles with Sofi very openly, although of course Sofi is much younger than me so I have to be rather selective of what and how I tell her. I’m most open about most of my struggles online, because I struggle less with talking about them online, whether they’re really small or bigger, short or long term. Not all of them, especially if they involve other people closely who perhaps wouldn’t like me writing about that, or if I find something kind of difficult to put into words, or if I just think it’s better not to talk about something overly, but I do share a lot of them and I find this very helpful to get it out of my brain and not only in my personal diary but also for example on my blog or in conversation with someone.

How is it for you? Let me know here, or respond to Carol Anne’s post if you wish. πŸ™‚

 

The hiatus is over.

So, as I wrote in the last post and as some of you could notice from my activity on your blogs, my blogging hiatus seems to be over. It’s so great to be back to blogging and connect with you guys! πŸ™‚ I think I wrote you in my last post about all those strange issues with my new computer, which, again, turned out to be caused by the fan that was loose, so the computer couldn’t work properly. Interestingly, when I got it back last Friday, the fan was fallen off again, but this time I didn’t send it to that company again, but my Mum took it to a nearby servicing place. It seems to be fine now, although my trust for this thing has been broken very badly so, while it is a major and stressful change for me anyway, with all those complications along the way it will take me probably even longer to adapt to this new computer and feel confident with it. I have a lot to get used to, and I haven’t figured tons of things yet which is awfully stressful, and there are some that I might just never figure out and will simply have to deal with. I don’t have most of my speech synths – because some seem to have keys that don’t work any longer (including the Welsh and Swedish one which makes my language learning a bit more difficult), I also don’t have Jacek about which I was telling you earlier that I had had that speech synthesiser for years and out of all I’ve ever had Jacek was the best and most reliable Polish speech synthesiser and I simply had a sort of emotional bond with him so to say. After the last time I sent the computerΒ  to the company who helped me get it, I also lost (hopefully temporarily) most other of my voices, because they were doing multiple system repairs, restorations and what not and in all that chaos there have been some licence issues that I’m not able to sort out on my own and will just potentially have to buy them once again which is so totally unfair, especially that I’ll most likely also have to buy myself some other Swedish voice. I can do without Welsh, but definitely not without Swedish. Thus, since I lost all those other synths, I’m also left without a decent English synth which I can deal with but which stinks really badly! Also I have to figure out why my computer doesn’t seem to like virtually any headphones, and they just don’t work exactly properly on it, because while you have them plugged in the sound output can just change at random back to the speakers, or the sound goes somewhere into the space and you can’t hear it neither on the headphones, nor in the speakers. This stinks too, because while my speakers are quite gorgeous, at least for listening to music, I do appreciate my privacy and don’t always want everyone around to know what I’m doing, or even listening to, and sometimes do things which you just need to use headphones for. I hope it’s not some major issue but I probably will not be able to solve it on my own because I simply have no idea what’s the problem here, and, as you can imagine, it can be quite a bit of a problem when you use a screenreader and can’t control whether you are actually able to hear it or not. And oh gosh I do have to get used to all that humming in the background! It’s a trivial problem but it’s really annoying for someone like me who has music on at night while sleeping and so far had only had laptops before. Obviously desktop computers are much noisier. Or at least mine is. I only listen to the music quietly at night, so I can hear it slightly but can still fall asleep and not wake up because of it or something, and it alleviates my sensory anxiety stuff, but now, this way the humming is what I hear predominantly then. I’ve been wondering whether there are ways to quiet it down a bit but I’m quite clueless and I suppose if I won’t get used to it after a while, I’ll have to look for some other ways to have my music on at night, because in this case I’m not up for any compromises. So yeeeah plenty of change and I’ve only mentioned the major things! πŸ˜€ Actually for now the whole adjustment process makes it hard for me to see any upsides of the situation, even though there certainly are some. Like, my files don’t get randomly damaged any longer, yaaay! That’s a huge positive, isn’t it? I believe you can get used to everything, and people definitely get used to much worse things which have no positives about them, but I’m really quite curious how long it will take for me, and while my adjustment process is lasting it’s rather daunting.

I thought that since I’m already writing a post I’ll base it on some writing prompt, or a challenge or whatever. And I decided that I will answer the question of Carol Anne at

Therapy Bits

which she posed to her readers yesterday in her series Carol Anne Asks, especially that her question is very general and I haven’t posted in a LONG while. The question is:

How do you feel today? πŸ˜€

So, today I feel a bit better than in the last days and weeks, which have been tough for me because of all those tech issues and the whole computer transition thing, but also there has been quite a bit of socialising and general anxiety and stuff. Today I’m still an anxious, stressed, a bit anhedonic and overthinking mess but to a slightly lesser degree I’d like to believe. πŸ˜‰ I had a headache in the morning, but thankfully it was just very slight and didn’t develop into anything worse and it has vanished after a few hours which was great. I did some Welsh late in the afternoon, which I wasn’t able to do in a serious way for a good couple of months because of my laptop being glitchy and eating up or destroying my files including Welsh files, which felt kind of good but also more stressful than usual because, well, I had to get used to doing it without Gwyneth – my Welsh speech synth – and because I’m generally not doing too well right now which shows up in how well I absorb what I’m learning. I don’t know if I’ve told you about that ever before but my current dominant music crush, or faza as I call it in Polish – on Gwilym Bowen Rhys – is fading slowly but surely, and I am very worried because this has never happened with my crushes before, not before another one came into my life and dominated over the previous one. Now there doesn’t seem to be any other crush on the horizon to replace Gwilym onn the dominant position in my brain. As I’ve often said, crush is such a shallow word but for me a crush means more than it typically does to someone. My crushes/fazas inspire me, fascinate me, boost my mood, help me to develop in new directions, make me want to live, etc. etc.! They feel absolutely necessary for my mental wellbeing and self-development and make a huge difference, and I believe that a decent crush peak is actually one of the best natural medications for depression. So, this is worrying. All my crushes are still there, even when they fade slightly they are there, but they can’t have as much of an influence on me as a crush that is dominant. So I believe that explains why I’ve been feeling somewhat more mentally lousy and anhedonic in the last couple of months and it’s been slowly increasing, and when I feel better I frantically look for a potential new candidate for me to get a faza on, even though I know well that it never works like that when I want to have a faza on someone, I will, it just comes spontaneously. But maybe my brain needs some… inspiration, stimulation, or whatever. πŸ˜€ I would love my next crush to be called Jack! So, here’s my request to you lovely people, if there are any musicians, or even literary characters called Jack, or something similar that you know, that you think I might not know but might like, do let me know! If you have any idea, and by any chance that Jack will indeed become my next crush, you have MIMRA absolutely guaranteed! πŸ˜€ Seriously. Jacquelines and the like also count. Or if you know a Hamish…

So, yeah, that’s more or less how I’m feeling today.

I missed blogging awfully, so I’m glad I can finally get back to it, although I don’t know if I’ll manage to write daily for now, we’ll see. πŸ™‚

How are you feeling? Let me know in the comments, and go over to Carol Anne as well, or if you want to make a post of your own let me know so I can read it. πŸ™‚

Me and Misha are heading off to Sleepland. 😴

Question of the day.

Hi guys! πŸ™‚

This is my question for you today:

When was the first time you remember feeling really angry?

My answer:

I generally wasn’t the type of a child that would easily get angry, not in my very early years anyway, later it started to look a bit different, when I would bottle it all up and then my brain would suddenly throw it all out at once and I’d feel out of control, but when I was very small I remember I was actually wondering why people get so angry so often about everything, and how do they do it, like as if I didn’t even know how to be properly angry. πŸ˜€ Yet my very first childhood memory is all about anger. The first thing in my life that I remember is when Olek was born. I was 2 then, and some people tried to persuade me that children don’t remember things at that young age, but, well, turns out that I do, at least this one thing, maybe because of how intense it felt. Mum was in the hospital, and me and Dad came to visit her. I remember clearly when we came in to the hospital and then we were in a very creaky lift and I was a bit scared because I felt dizzy in it. Mum was on her own in the hospital room and we were both very happy to see each other. Olek, like me and Zofijka, was born through C-section, and she showed me her belly, and I saw the wound and all, it looked horrid, and I remember she had a big needle close to her tummy, I don’t even know what it was for, but, at least then, it looked huge to me and it was all just awful, and I was feeling absolutely, seriously mad at that horrible creature who did that to her, I think good for him that he wasn’t there. I was mad at him for hurting my Mummy, and for taking her away from me. I don’t remember anymore of that, but when me and Olek were kids, we weren’t really like typical siblings – yes we played a bit with each other, and yes we argued like all siblings, especially sisters and brothers do, but I didn’t really like him at all, and I didn’t feel anything positive towards him, I was indifferent to him at best. – And, while I don’t remember those things, my parents recall that I would often come over to him and start to beat him with something, or wouldn’t let him play with me or with my things, or wouldn’t talk to him etc. I was real nasty to him. And we still don’t really have much of a relationship at all, which kinda sucks, and is definitely weird, and we both feel pretty awkward around each other and mostly only talk casually. But I no longer beat him, I’d be afraid to do that as he’s at least 30 cm taller than me. πŸ˜€ And it’s not that we don’t like each other now, just don’t have a close bond I guess. But while it seems slightly weird, especially given that I have a much more strong bond with Zofijka who is 10 years younger than me, I guess not all siblings have to have a great relationship.

How about you? πŸ™‚

Question of the day.

Hi people! πŸ™‚

When was the first time you remember feeling accomplished about something?

My answer:

Well, I guess I don’t remember which one could be the first time… I used to take part in many song competitions and such as a small child, so maybe something in relation to this. I especially liked our local song contest, where I competed with children from a special needs school in a neighbouring town, who were all multiply disabled often including intellectual disability, in contrast to me as I have only one disability per se, and I always won those contests, which wasn’t difficult for me at all, and I guess it wasn’t even that very fair as the jury were kinda biased towards me, haha, so not much challenge at all. So I always came back home from there with a big basket of sweets and we’d have a month or so of devouring horrendous amounts of them every day with Olek. Although now I wonder why they actually got me in there and then always made me a winner whether rightly or not rather than give more chances to the children at that school, and not make them compete with someone who had completely different kind of difficulties than them, I guess some people, even those in the field of disabilities, still think that a disability is just a disability and it doesn’t matter if you’re using a wheelchair, are blind, mentally ill or having a rare disease, it’s all the same for them, which is stupid. At least not all people are like this nowadays.

What’s the first accomplishment that you can remember? πŸ™‚

Working On Us.

It’s week #4 of Working On Us at

Beckie’s Mental Mess

and I’m very happy to participate in this prompts series for the second time. Last week, I was answering the questions for prompt #1, but this time, I found prompt #2 really relatable. It’s a photo prompt, so I couldn’t actually see it, but Beckie described it and the image of a brain inside of a bird cage really spoke to me. I suppose I should include the photo in my post somehow, but since I have no clue how to do it, and am blind, so don’t need to have a clue about pics haha, I’ll just leave it as it is.

I was thinking about that prompt a lot last evening and thought I would make some piece of creative writing but since I don’t feel very creative at the moment it’ll just be a bit of a ramble.

I’ve been fascinated by brain for years, and it’s one of my main interests. But it’s not only that why I found this prompt so relatable. I could say I often feel as if my brain was locked in a bird cage, and unable to get out, just never thought about such a metaphor before. What does it feel like when your brain is locked in a brain cage? For me, among other things, it means difficulty in releasing emotions, there’s no way to get them out, whether you want it or not. Your brain fills up until it’s all full and all the feelings are one big mishmash, so that sometimes you don’t even know what you feel any longer. Things get mixed up, until finally the brain can’t contain anymore, and things start to leak out. But instead of leaking outside in a proper way, instead of being expressed, they spill all over the cage. It’s flooded with stuff that can’t be released otherwise, and the brain is swimming in all the intense feelings. That’s when overload happens, and I start feeling a lot of intense anger that gets turned inwards, so I feel like self-harming. Sometimes, when the flood is really strong, something will spill outside through the grating, but the cage is tall and thick so it’s really hard. The only way for me to get my brain out of that cage is writing. Then, the bird cage opens and it can fly out and feel more free.

Another thing that a bird cage makes me think of in the context of my brain, is the feeling of alienation, or feeling disconnected, or loneliness in the crowd, inadequacy, or however you want to call it. I like being different, and individualistic, and I like being on my own more than around other people most of the time and feel more comfy with it. But when it becomes a bird cage for my brain is when I do need to be with someone, but for whatever reason can’t make a connection with people. Sometimes it’s like you can see other people from there, but there’s no way of communicating effectively. You can only bang on the cage and hope that they will hear you, but even if they will, they usually won’t be able to help you out, or open the cage, or get close enough that you could communicate, or feel the way you feel. Even if they do get to you, you’ve been living in this cage for so long that you can’t even explain to them what it’s like, and what you need, and they won’t understand, because they live out there in the world which is so very different. So after a couple trials, you just sit in the corner of your cage and look out, watching people come and go. Sometimes they’ll glance in your direction in confusion, not understanding why you are the way you are and live in a bird cage, what’s wrong with your brain that you constantly keep it in there. As if it was your choice. Sometimes you might feel desperate, and try to jump over the cage, but that hardly ever ends up well and is risky, you can easily get hurt. Even if you do get out of there in one piece, you quickly realise that you don’t fit in, and lots of consequences come with it. And after so many years of living in a cage your brain just doesn’t know otherwise and has it hard to adjust and be just like any other brain living in the outside world. So after all, you put your brain back into the cage, voluntarily this time, ’cause a familiar enemy is worse than the one you don’t know anything about and don’t know how to deal with.

That’s the way my brain feels sometimes. Well, regularly. Again, writing, for myself or with/to others, is something that helps, to some degree, especially blogging and penpalling is what I’m thinking of.

Also, I think the bird cage analogy works very well in regards to my sleep paralysis experiences too. It feels like my brain and me are locked up in a bird cage with all my dream monsters. I can see the outside world but they don’t see me, and I can’t run away because my dream “friends” are all over me. The only thing I can do is wait for the dream cage to open and flee as soon as possible.

What’s a bird cage of your brain? How does it look like and what does it represent? πŸ™‚

Question of the day (29th April).

What are you feeling?

My answer:

Ooooooh lots of things now. First, as I wrote with my last question of the day post, I’m a bit sleepy and tired from all the steam that my brain has produced absorbing Welsh language for 2 and a half hours. I’m also a little bit frustrated that it’s going so damn slowly and that I can’t seem to understand much without reading the English translation first. I’m also hopeful though, that it’s going to change if I’m going to be determined enough. I’ve been feeling slightly anxious, that is slightly more than my baseline is, I’m fairly anxious on my baseline already I guess compared with most people, but never mind, it’s not a big deal at this point. But, all that is vague and unimportant now!… Just a few minutes ago, just as I was preparing to write this post and go off to sleep, I got an email, that changed everything for me today! πŸ˜€ It sounds like exaggerated and exalted but I’m serious about that actually. I got an email from Bandcamp, notifying me of a “new release from Gwilym Bowen Rhys”! For those uninitiated/not remembering such a small yet very important detail in my Mishmashy world, Gwilym Bowen Rhys is my current crush, my dominant crush that is. Yyyyyyyyyaaayyyyy! I only wonder how could I miss that?! I mean, usually, when such things are about to happen, I know about them way ahead, not just like this, at the last minute. Maybe it was something spontaneous though it doesn’t look like that to me. Well that’s not important now but if not Bandcamp being so kind, I’d probably miss it… and that would be a tragedy! So, OK, how do I feel about it? my crushes always make me feel more positive, more creative, ’cause in a way they’re a bit more than my crushes, they’re like my inspirations, fascinations, they are very important to me, even if it’s ridiculous because I don’t know them personally, I don’t think though that’s a good indicator of who/what should be important to anyone so I don’t know if it really is that ridiculous, they keep me afloat on many of my bad days, help me indirectly to develop myself. I feel very intrigued, and much less sleepy now, and am really looking forward to hearing that album. I believe though that if you’re listening to some piece of music for the first time, and it is important to you, you need the right atmosphere for that if you want to be a good listener and a fair critic. Plus I’ve always had a hint of masochistic tendencies, ( just kidding). But I’m thinking whether maybe I should wait with listening to this album, when I have time to really get into it and when I am fully focused and not sleepy and tired. Some actually say that waiting for something nice is actually more pleasurable than the thing itself… The question is whether I can survive so long, with such an overwhelming curiosity. πŸ˜€ We shall see. OK but I’m off to sleep now, it’s past midnight already. ANother thing I’m surprised about, didn’t think it’s that late, i had an honest intention of going to sleep early today. Well hope at least I can sleep well. And going to find Misha to accompany me for the night.

OK so, how about your feelings right now? πŸ™‚

Question of the day.

If you could change one thing about yourself, what would it be?

My answer:

Recently I’ve been dealing a lot with feeling inadequate, and that’s the first thing that comes to my mind now. It’s a bit of a paradox, because I generally like being different and feeling different, I never wanted to fit in perfectl ywell an dnever tried to, but at the same time I have those feelings of being inadequate very strong, and in some situations they can be a big struggle to deal with.

You? πŸ™‚