Question of the day.

What was the last time you were in a bad mood?

My answer:

Bad mood is quite a relative thing with mental illness I think. πŸ˜€ But I guess I could say I was in a bad mood yesterday evening, when I was feeling quite blue for no apparent reason really, or at least it’s not known to me, and also Stinky Maggie – my inner critic – had a lot to say and was super snarky. Today things are okay and pretty normal.

You? Also, for those of you who struggle with any mental health issues, is it easy/possible for you to distinguish between your symptoms and a simple bad mood? πŸ™‚ I’m curious because for me, while I can definitely say when I’m in a good mood, it really is difficult to differentiate between what’s the illness and what’s a bad mood. I guess it’s bound to be tricky when you have a mood disorder like depression for example.

Happiness.

I thought I would do some journaling prompt-inspired post today, and I picked this prompt from Hannah Braime’s book called The Year of You:

“What does happiness mean to you?”

Thought it would be quite in-line with today’s question of the day.

They say happiness is easy to not notice, and you can find out that you had it only when it leaves you. It’s very true. Happiness is very quiet, makes hardly any sounds and walks very quietly, and is very small. It also often easily blends in with its surroundings because of its colour, so you don’t necessarily have to be blind to not notice it. It is also very easy to scare it away, even with just one unnecessary movement or sound. And then it may be very difficult to get it back to you. Happiness doesn’t like everyone, even if almost everyone likes it. Generally I’d say that a good rule to follow is that the less desperately you try to make Happiness come to you, the more successful you may be at it. Happiness doesn’t like unnecessary attention being drawn to it. If you call it and are lucky enough that it comes to you, don’t overuse its trust and don’t call it all the time. Also when it comes, make sure to provide it with the best food and sleeping accommodations possible. It’s not always the best idea to come very close to it. It always knows best what should the distance be between it and you, and if you will accept it calmly, it will be more likely to come closer than if you try to force it. When you hear Happiness at your door, it is not wise to wait with opening it, you should do it right away, or it will go somewhere else.

Happiness is very gentle and never intrusive. It is warm, soft and very smooth. It likes soft, quiet places, which is where you can usuallyy find it. There is only one Happiness in the world, which is probably just exactly why so many people are unhappy, and it often likes to hide. It is very clever, playful, but also a real scaredy cat. Almost everyone who sees it for the first time gasps in awe and wants to hold it, but it’s rare that you would be granted such a luxury right away. It has relatively big ears, so that it always can hear when unhappy people call it, but it doesn’t mean it’ll always come. It knows better than you when you actually need it most.

Unlike what many people may think, Happiness is grey. Not pink, rainbow-y, not even green, but grey. Perhaps this is another reason for why people often don’t notice it, since, ironically, the colour grey is associated with all things gloomy. Another fact about Happiness which may seem strange to many people is that it originates from Russia –
which seems to be feared as a whole by many people these days. – Perhaps the devil’s not so black… (if happiness can be grey, everything’s possible). It also has some Czech ancestry. Originally, Happiness cost $500, more or less (obviously because people, as always, didn’t even know what it actually was and what its value was, just that it looked kinda cute). I’m sure though that, if it ever had to be sold again (although I’m having a difficult time coming up with any legit reason why one would want to sell Happiness) its price would be much higher, and not even Bill Gates or Elon Musk could afford it. It only exists since 2016 (how did we manage to live prior to that excedes my understanding at this point).

Happiness can often be found curled up in a little ball. Although I said it doesn’t like too much attention, it also doesn’t feel well when you don’t pay any attention to it whatsoever and can feel hurt. Happiness loves flowers, leaves, feathers, birds, and especially the sunshine. It also loves routine, warmth and safety.

Happiness is actually male. He has the brightest green eyes. He poops every day and never flushes the toilet after himself. He has lots of facial hair, and he never shaves. Same about his armpits. Despite that, he always smells heavenly, and never sweats. He seems to enjoy, jazz, classical, baroque, and relaxing piano music, but secretly delights in Russian D&B.

The whole drama with Happiness – why so many people are unhappy, or pretending to be happy, or searching for Happiness, or racing after it, or find it so difficult to define Happiness, and all the other troubles that are caused by lack of Happiness – it has one very simple reason. Right now, Happiness is in my kitchen, happily eating sausage, and I’m not going to give him away any time soon. πŸ˜‰ What a bad, selfish Bibiel, keeping all the 4 kg of Happiness to herself, when so many people die without having ever felt a warm touch of Happiness. But hey, not all is lost, I can always sell you a bag of Happy Poop (if only you can afford it πŸ˜‰ Maybe it would work to some extend).

And maybe there’s also another reason for all the trouble with Happiness. If you want Happiness, affirmations, meditations, manifestations – they won’t work. – It’s best to be straightforward with Happiness and call him by his name, just like you would everyone else. Happiness is called Misha. Or better even, if you want to manifest Happiness in your life, say “Mish Mish Mish!”. Or make some other hissing, rustling sounds, and, who knows… maybe his ears will be big enough to hear you, too…? Maybe he already did, but the front door is locked, so he can’t get out to help you. Don’t blame me, it’s my Mum who locked it and watches Misha like Cerberus. πŸ˜›

Okay, so that’s my definition of happiness for you. If you’d rather have a more abstractive/serious one:

Happiness, for me, is any state of mind when I’m not unhappy.

Generally, I don’t really know if I know what happiness is. I hate it when people sometimes ask me if I’m happy, or unhappy. I know what unhappiness is and I know full well that I’ve experienced it, and I also know that I am not unhappy now. I also know what it’s like to feel joyful or euphoric, but I guess happiness isn’t really a feeling but more like a state so I don’t think you necessarily have to be happy when you’re feeling joyful, just like you don’t have to feel sad all the time when you’re unhappy. I’ve had depressive tendencies ever since I remember and had my first major depressive episode diagnosis when I was 8, but at the same time I laugh a lot and can be very enthusiastic about things. Sometimes it comes more genuinely, sometimes I need to fake it a bit, or a lot, but even so, I think it’s a natural part of me. Still, the depression is always there and I guess I’ve never felt happy the way people do when they don’t have stuff like this glued to their brains. Therefore, when someone, typically my Mum, asks me “Are you happy?”, I’ll always answer yes if I’m not unhappy. I try to keep myy expectations low in this department and be, well, happy, with what I get, if it’s something good. This strategy has served me well, as it’s a lot nicer to have your expectations exceded than unfulfilled, right?

I hope the way I explained it makes sense to people. πŸ˜€

So, how is it with you? Is there someone/something that embodies happiness for you? What is your definition of happiness, whether abstractive or more specific? πŸ™‚

If We Were Having Coffee… #WeekendCoffeeShare

Welcome to another

#WeekendCoffeeShare! πŸ™‚

Our host is Natalie, so if you’d like to join in with your own coffee share, you can go over to her blog. πŸ™‚

We’ve just had our lunch, and there’s still a lot of chicken breast left, so help yourself if you fancy, or if you’d rather have a lighter snack I can give you some salted peanuts, or feel free to bring something with yourself and share with other peeps if you want. Help yourself to coffee or tea or cocoa or or my Mum’s homemade black lilac juice, or I think we’ve got some kefir as well if you’d prefer that, or perhaps water. So, if you’re all sitting comfortably and have something to drink or munch on, let’s get started.

If we were having coffee, I’d ask each of you how you’ve been doing lately…? πŸ™‚

If we were having coffee, I’d tell you that, actually, this week hasn’t been very eventful, so I probably won’t have all that much to share with y’all, but I just wanted to have a coffee share, even if for a brief check-in, as I guess the last one we had was over a month ago.

If we were having coffee, I’d tell you that we’ve been having a fair bit of spring-like weather, interspersed with really chilly, windy and often rainy days. It was even hailing quite heavily earlier this week. Today is one of those chillier days and it’s raining all the time. As you may perhaps remember, we live by the river, it flows through our backyard, so we are at quite a high flood risk. We’ve already had a few minor floodings since we moved here which were scary, and now my Dad has been really stressed out that this year it will be more hardcore with the amount of rain we’re getting and are still supposed to get.

If we were having coffee, I’d tell you that I’m really pleased with my linguistic development over the last few weeks, mainly when it comes to Welsh, as currently this is the language I’m learning most actively because I’m not fluent in it yet, but also Swedish to a lesser extend, because I’ve been reading a lot in the latter. Concerning the former, I catch myself more and more often on having random bits of thoughts in Welsh, and not right after learning or when I’m sleepy or tired, which is most often when my languages mix up, but just randomly. My subjective feeling is also that my listening comprehension must have improved a bit lately. That’s all very motivating.

If we were having coffee, I’d tell you that, despite the usual ups and downs and myy anxiety being a bit up this weekend due to having quite an interesting and lengthy sleep paralysis session on Friday, mood-wise I’m still doing really well, most of the time with my mood being around what I consider my baseline, sometimes lower but not very low or not for long and usually in clear connection to something situational. Even Maggie, aka my inner self-critic, has been strangely quiet lately, not totally quiet but noticeably less active, she mostly just wakes up when I engage more with people or especially afterwards, but if she wouldn’t do that, she wouldn’t be alive. It has been like this for over three months now and it’s quite surprising. Yes, my amazing

faza peak

is still there, which certainly contributes to it, but despite being a really long peak compared with my previous experiences, it’s not an extremely intense one at all at this point, I’ve had much more intense faza peaks before, but I’m not sure the peak is solely responsible for this, especially not for Maggie’s unusual behaviour. Whatever the cause might be though, I’m quite happy with the results, I’m just a bit worried that after being up for so long, at least for my standards, at some point I will have a spectacular slide downhill, lower than I’ve had in a long time. I guess kind of like when there’s a draught for long, then you’ll have a storm and the longer it was dry, the stronger the storm will be.

If we were having coffee, I’d tell you that, while I do still get migraines like once or twice weekly, they have really gotten better in terms of intensity, regardless of what medicine I take, or even if I don’t take anything. They are shorter and not so incapacitating, and often will go away or lessen very significantly when I just have a nap or will totally go away after a solid night’s sleep, so it’s really not such a problem anymore. In case you don’t know, I’ve had migraines on and off for years, but for most of that time, they really weren’t very problematic, and I considered myself lucky compared with a lot of other migraine folks. Then the year before last, in November, I suddenly started getting them a lot more often, and they were a lot more painful and difficult to get rid of, and extremely easily triggered by just about any stressful situation or anything that could possibly trigger a migraine. Admittedly, I did have quite a stressful time then and my brain was going bonkers with rumination and anxiety so my main theory was that it really must be the stress doing this. Then things got better again in January, last year which coincided with my stress levels going a bit down overall, until September when, again, I started having yucky migraines. This time, I wasn’t in a lot of stress or anxiety really, just my normal anxious brain but nothing beyond that and nothing turbulent going on in my life at that specific time of the year, so I couldn’t blame the stress anymore. That lasted again until about January this year. So, considering this, I’m fairly sure there must be some seasonal pattern, like a lot of people seem to have, and for a lot of people their migraines also seem to get worse around autumn-winter. I’m very curious why. That could perhaps also be responsible for why I always had more severe migraines right at the start of a school year, which everyone was thinking must be to do with stress – which surely was also an important factor but as it seems not the only one. – Well, I used to have recurrent allergic bronchitis almost every autumn-winter season, and now that it seems to be mostly cured finally, I’ll have seasonal migraines instead. Life’s never boring. πŸ˜€

If we were having coffee, I’d tell you that, with the exception of sleep paralysis I had on Friday, I’ve been having absolutely hilarious dreams lately, and extremely vivid. I love having vivid dreams after which, when you wake up, you just have to laugh out loud at the absurdity of them. And I met some interesting folks in Dreamland that I wish could exist in real life.

What would you share if we were having coffee? πŸ™‚

 

If We Were Having Coffee… #WeekendCoffee Share

Oh my, I haven’t done a Weekend Coffee Share in quite some time!

Since the last time I participated, we have a new host, who is

Natalie (thank you so much for hosting πŸ™‚ ).

If you would also like to join in on your own blog, go over to her post, where you’ll find the link-up.

So we can consider this coffee share a bit special, because it was Misha’s birthday on Saturday (he is 5 now and I’m still in a deep shock, especially that it’s apparently 36 in human years, is 36 middle age? :O ), and then it was my birthday on Monday (I’m 24 now in case you’re curious πŸ˜€ ). Also, this is my first coffee share ever since I’ve found my new

faza subject

which I was waiting for to happen for a long time, so I’m now in a nice faza peak, and I think a new faza does deserve a Weekend Coffee Share to be celebrated with, even though I probably won’t be talking much about my faza as such in this post. In case you don’t know but are curious, his name is Jacob Elwy and you can read more

here.

We don’t really have a huge variety of drinks right now, I’ve even run out of kefir, but we do have the usual black coffee and quite a lot of teas, so if you like some interesting teas, especially herbal, you’ll probably be able to find something cool for yourself, or you can bring your own drink and let us know what you’re having or contribute to the coffee share and share with people.

Because it was my birthday, I’ve got loads and loads of candies that I’m happy to share with you all, things like gummy bears or Toffifee or various chocolates. Just about an hour ago, I got some crisps from Olek, so perhaps I can share with you if you ask me very nicely. Sofi claims he must consider me very cool for some reason or something, because she didn’t get anything from him, nor did anyone else, he just bought himself an energy drink and crisps for me, according to her investigation. πŸ˜€ Wow, I feel honoured, wonder what makes me so cool! πŸ˜€ Or if you need something more substantial we have a lot of chicken. Or, again, you can bring something yourself and share with people if you feel like it.

So if everyone has some yummy food and drink and a comfy place, let’s start our coffee share properly, shall we?

If we were having coffee, I’d ask each of you how you’ve been doing…? πŸ™‚

If we were having coffee, I’d tell you that, despite I was having some situational stressors last week and at the beginning of this week (to do with my birthday, which is usually quite a stressor for me and even this year, with the pandemic, I couldn’t escape all the peopling), I’ve been feeling quite well lately mood- and mental health-wise. In fact, I had a lot of peopling to deal with, and yes, it was difficult and overwhelming, and I especially don’t like it around my birthday because then the attention is focused on me way more than normal and I just hate it, it usually makes me feel so overloaded that it happened a few times already that I would end up self-harming on my birthday after having had done it in months and being very proud of it, which was obviously quite disheartening, if nothing else. This time, I’m even more proud that it didn’t happen and despite all the yuckiness and even some really quite nasty situations with my family along the way that I perhaps better won’t be describing here in detail, it was manageable. Misha helped me a lot, and obviously the fact that I’m in a faza peak so everything feels easier, better and what not. Right now I’m having a period and while I’m feeling quite crappy physically, I haven’t have particularly bad PMS symptoms which I often do have. Oh and what some of you may already know, my migraines have mysteriously stopped like three weeks ago, where previously, for the last few months I’d been having at least one per week. I did have a slight tension headache the day before Jack the Ripper aka Jack the Butcher (which is how I affectionately call my period, in case you don’t know) came, but that’s normal and it didn’t make me non-functional. And my Welsh learning is going great. So, yay, good news from Bibiel land!

If we were having coffee, I’d tell you that it’s been frrrreezing this week! Which I’m happy with, except for the fact that it makes it very slippery which is annoying when your balance is shitty to begin with, but I don’t have to go out much now so it’s not a huge problem. It’s also been snowing so much that even Sofi’s fed up with it. I’ve heard that in some regions of Poland it could get as cold as -30 C (-22 F apparently), although I don’t know where exactly. Sounds exciting to me! Well, definitely way better than +30, so I won’t be complaining if it’ll be the case for us, although my Mum is missing spring. Spring is great, but summer not so much for me, so I’m appreciating it when it’s cooler. Misha is totally fascinated with the snow and likes to watch it longingly through the window. Sofi took him outside once and gave him a snow bath. I was worried that, because he doesn’t go out at all normally, he’d get sick or something. Physically he managed it really well (I guess he has this Russian fur for a reason after all), but he seemed not quite his own self and very jittery for the rest of the day and I think he had quite an emotional shock from being let out, even though it wasn’t much longer than a minute.

If we were having coffee, I’d tell you that yesterday, my parents finally bought a camper van. You may or may not know that it’s been my Dad’s life-long dream to have a camper van and he’s been entertaining these visions of himself being in retirement and driving through the world. We’d always taken it with a grain of salt, because he’s the type of dreamer who just gets stuck on the dreaming part, but for some reason doesn’t seem to want to accept it and at the same time will never admit it to himself that he won’t take it any further than dreaming and hoping. Or at least, so we thought. Also he is always very stressed and it just seemed very incongruent with his personality that suddenly he’d be wandering the world with no purpose, spontaneously and with no hurry. That’s something that perhaps my Mum could do – being very spontaneous, impulsive, living in the moment and following her dreams – but she wouldn’t either, because she feels better at home. Also it always made us laugh, because my Dad is a tanker driver, so he is driving all the time, and always whining about it when he has to travel somewhere far, and then he wants to spend even his retirement years driving even further. But, at some point it really came to that Dad started seriously looking for a camper van to buy. Something used and as cheap as possible, of course, but still. It was a huge step forward. We all observed it from a bit of a distance, with a lot of interest but no hopes or anything, because while it sure would be fun to travel in a camper van sometimes, neither of us is so crazy about it as he is, perhaps Sofi a bit.

Then he started actually contacting sellers, travelling to see various vehicles, but it seemed like he had some bad luck with it really and he had several situations where he’d arrange with a seller that he’d come see his camper van at such and such time, and then at the last minute he’d learn that it was sold, or he’d travell the whole country with the rain pouring all the way back and forth just to see something that looked way worse than on the pictures. Sometimes in turn he’d have some really good offers almost right in front of his nose, and would turn them down for no apparent reason, and continued to kill his free time by scrolling through camper vans for sale. We started thinking that he actually indeed does prefer dreaming, and may be afraid of achieving this dream or something. Sofi was a bit disappointed, Mum was a bit condescending, a bit amused but mostly neutral, and I could understand it a bit that now he was so close to achieving this, perhaps he was having second thoughts, for some reason, maybe because now he could also see that he is not suited for the life he was imagining.

And finally, he found some quite a bit more expensive camper van that he really liked, and earlier this week suddenly I hear that they – he and Mum of course – are going by train all the way to Silesia to see a new camper van. At this point, if they were going by train, and not by car or with someone else as another driver, I knew that things have developed seriously, because who would go see something to the other end of a country rising at half past 3 AM to do this, and then go back home with nothing. Even if it would be awful, they’d probably buy it anyway. πŸ˜€ Then I even heard that it was “almost bought”. And, yes, they went to see it yesterday, and bought it properly, and now we have a camper van, and they’re quite satisfied with it. This is quite nice, because with my vestibular problems, any kind of further travelling is a bit of a hassle, but while it’s doable by car with the right strategies, it is much more difficult on the sea and I haven’t even had the courage to try an aeroplane because the mere thought makes me floaty and dizzy, so that was also one of Dad’s crucial arguments when someone was asking him why he wants a camper van so badly – to be able to go abroad more, and to go abroad he thinks he has to go with Bibiel, because Bibiel can speak English and he can’t, and Bibiel won’t go anywhere by plane. – And whenever he’d drink a bit more he’d be giving me elaborate promises of how when he’ll have a camper van we’ll go to all my favourite countries etc. etc. etc. even though I’ve never pressured him for that. So, yeah, that could be fun, even if we don’t actually end up going to my favourite countries, it can still be nice to even go on holidays somewhere closer, and have your own place to sleep in.

Now, your turn. What would you tell me if we were having coffee? πŸ™‚

 

My favourite place.

Today, I decided to do a post based on a writing prompt that I got from the PaperBlanks app which is the following:

“One place I always feel happy is…”

I don’t know if happy as such (I’ve generally got a bit of a dilemma with the word happy), but there is definitely a place which cann often make me feel happier, because it is a place where I feel safe and where I know I can be myself and do whatever I feel like doing, and which my brain associates with happy things generally. This place is my room. It’s a place where I always recharge after peopling, where I go to when I want to be alone, where i do most things in fact that are important to me, from writing to learning to working to sleeping to daydreaming. I have a real connection with it and lots of good memories, even though I’ve only been living for four years in here.

I have no pics to accompany this post, but I thought I’d describe my room a little for you, so that you could have a bit of an idea.

Both me and my siblings live upstairs. When you go up here, the first door to the left is the bathroom, and then, next to it, there’s my room. One thing that I don’t like about it is that the walls here are rather thin so that I always hear people in the bathroom, which is particularly annoying when someone is showering as there is a whole lot of noise.

It has a green, flowery wallpaper and is quite girly in terms of the design I’d say. I have a double bed – which used to be Sofi’s because Sofi is taller than me and it was clear years ago that she was going to end up taller than me so Mum wanted to get her a bed that would serve her for years, but I don’t even remember now why it ended up in my room, anyway we switched beds with Sofi and I love double beds so I’m happy with that. – Sofi now doesn’t sleep on the sofa that she got from my room anyway, because she has like two rooms, one inside of the other, and recently she has arranged her bedroom in the smaller one, on the matress, it feels more atmospheric for her and she actually has a more comfy bedroom now. Anyway, I’ve got the double bed, which means I have the space for Misha’s bed on top of it as well, and all my many pillows and other things, and can toss and turn as much as I wish, which I tend to do a lot. Misha’s bed is in the far right corner of my bed – it is a basket –

Right next to Misha’s basket, there is my bedside cabinet. There is also my power strip that is fixed to it, which is more practical because this way the cables don’t get tangled too easily and I can use my devices more freely when I’m in bed which I do a lot. My bedside cabinet has three drawers, where I have some of my clothes and things like PJ’s, meds, cosmetics, important documents that I use regularly, Misha’s treats etc. etc. it’s real messy in there. On the cabinet, there is another, more fancy cabinet where some of my gem stones reside, as well as my gem stone figurines, and some other knick-knacks that I have and that just look representative in there because this cabinet has a glass so people can see what’s in there and often get very hyper about my stones if they see them for the first time. Others are in a sort of cassette that my grandad made for me for this purpose, or in boxes. On the sides of this cabinet there are little shelves and I often also put some things there, but what is there pretty much permanently are some saintly statues that I have, a little picture of Our Lady of Ostra Brama, a statue of st. Hyacinth, and of st. Michael Archangel, and I have my rosary on there as well, while on the other shelf there are cards that I got from people over the last couple of years. As for religious stuff there is also a picture of The Last Super on the wall above my bed that I got for my First Communion. Up on the gem stone cabinet hangs my Bluetooth speaker, which I now always use at night to play some music or radio from my iPhone, which is so much better than listening on the computer which I used to be doing for years and it was okay, but my current computer is quite loud, and it’s not particularly pleasant at night really to sleep in so much hum, it feels like in some sort of a laboratory or something. πŸ˜€ On the bedside cabinet I’ll typically also have my water bottle there, right now there are hyacinths that I got for my birthday and a mug and a pot of tea.

Right next to the bedside cabinet there is my desk with an office chair. On and under the desk there is the computer (I have a desktop one, Braille-Sense, and a salt lamp, just to make it look nice, I think salt lamps are really cool. There is also a hand-made box that I got from Sofi where I keep some things that I need to have in close proximity but don’t want them necessarily to cluter the desk space. There’s also my Bluetooth keyboard for the iPhone although I use the Braille-Sense to navigate the iPhone screen far more often, and my Bluetooth headphones are there as well. There are also drawers where I keep all sorts of work documentation of my Dad’s or other papers, tons of Braille paper sheets which I don’t really use because I don’t use a Brailler all that much anymore for anything but Braille paper is expensive so it would be a shame to throw it away especially that it does come in handy sometimes when I still do need to write something, or sometimes Sofi uses it for something when she needs a thicker paper, some stationery supplies and ready-made Christmas cards that I got from my Mum when I started sending out cards to people but before I came up with MIMRA, I usually use these when I send cards or something to people outside of MIMRA, loads of cables, pen drives, SD cards, and currently also a lot of candy that I got for my birthday.

To the left of the desk, there is a window. I have both curtains and external blinds, which can be quite helpful in the summer, because my window is west-facing and my room heats up super quickly even when it isn’t hot but just very sunny outside, and it also helps when it’s very windy. On the windowsill is Misha’s observation point, you can see a lot of interesting things from here. When he gets weary of the outside world, he can go to sleep in a little basket that is standing there.

A brand new addition to my room is a big armchair which is standing between the window and the cupboards, which my Mum got somewhere last week because she liked how it looked, but didn’t really know where to put it, and eventually decided it would fit my room best. Previously I used to have a very old armchair that used to belong to my grandma decades ago. It was mostly used by people like my Swedish or English or math tutor when they used to come here, or anyone who would be visiting. Because I no longer have tutors or anything like that, and don’t have much of a need for using the armchair myself, I’m perfectly happy sitting on my bed or on the desk chair, its purpose will probably be mostly decorative, as it apparently looks really well, and my Mum likes to sit in here when she comes to my room to vent about life, which she does regularly. πŸ˜€

Then I have cupboards where there are all the other of my gem stones, another energy strip which is fixed on the inside, which I use for charging devices that I either don’t need to charge very regularly or don’t use all the time. There is also my OCR scanner, different documents of mine, some only archival like from schools, some that are actually useful sometimes. Up on the cupboards are my books in standard print, the ones that were able to fit in my room. I don’t really have a good place for storing books in here, and there isn’t really a good place for a proper bookshelf apparently either, so most of my books are on Sofi’s bookshelves. The books that I have in standard print are mostly either Swedish children’s books that I got in Stockholm at Junibacken, or books about names, and some books with fairytales and myths from all around the world – – and my Polish-Swedish and Swedish-Polish dictionary, and some other Swedish and even Norwegian books that my Mum got in a second-hand clothing shop (yes, you read that right, that’s where my Swedish tutor found that you can find ridiculously cheap Scandinavian books and my Mum had a look and found loads of them that no one was interested in, only she never could figure out which were Swedish and which Norwegian so I’ve got a lot of both, and I’ve never read the Norwegian ones or even scanned them in full, even though I think if I set my mind to it, I could, it just sounds like a lot of hassle, and I’m not motivated enough).

To the left, there is a wardrobe where there are all my clothes, and on top of it are some cartboard boxes where Misha likes to go to sleep, particularly when he’s somehow overwhelmed and doesn’t want anyone to see him. There is also myy old Brailler up there.

What is a place that you feel happy, or just safe in, and that you like? πŸ™‚

Question of the day.

When was the last time you laughed, and why?

My answer:

Despite having dysthymia and feeling more or less depressed 99% of the time, I do laugh a lot, for all sorts of reasons. Because sometimes it’s the best way of masking that works for me, and because generally even when I feel anything but happy I don’t lose the ability to laugh or even the impulse/desire to laugh, unless when it’s like really reeeally shitty, in fact I think it’s a lot easier than smiling for me because while laughter conveys stronger emotions than a smile, at the same time it is kind of more diverse. Like, to be able to smile convincingly, I need to feel at least neutral moodwise, meanwhile I don’t need to feel neutral or above to be able to laugh genuinely, or even just convincingly, because for me laughter is not only about feeling happy. I can feel amused by something without needing to feel happy or even close to happy. It’s just not about happiness. I can have a super shitty day but still find something worth laughing at, even if just sarcastically. But a smile has to be happy. A sarcastic smile just doesn’t do, right? πŸ˜€ A sad smile makes you feel more miserable, well it does make me feel miserable and I guess look miserable too, so I don’t bother with smiling when I’m sad unless I think someone is really going to think I am rude because I didn’t smile at them. Also laughter is a coping skill for me some of the time, plus it’s the Bibiel part of me who just is this way that she always sees the funny or absurd side of a lot of situations. Considering that, regarding the latter, Sofi is exactly the same, well maybe not exactly but her way of seeing things is very similar and at the same time we complement each other so that makes that together we can find even more humour of different kinds in things, we have a lot of laughs together. And so, I think the last time I laughed must have been some time last night, as I was spending time withh Sofi, and yeah, we usually laugh together at this thing or another, at least a little bit. And yesterday we both were in a bit of a crazy mood so we were laughing a lot and with Misha too.

You? Also, just out of curiosity (well, this whole series is just out of curiosity but anyway) what do you find easier, smiling or laughing, especially if you have any kind of a mood disorder? πŸ™‚

Question of the day.

Hi people! πŸ™‚

What is something that is makiing you feel bad?

My answer:

One thing that makes me feel perhaps not like super bad, but a little anxious and uncomfortable, is that I have a doctor appointment tomorrow to have a thyroid ultrasound done. I’m not particularly enthusiastic about having to interact with people there so while it’s not a super challenging or unusual situation that would paralyse me, I also have my Mum to help out as my spokesperson, it’s just a bit uncomfortable and it’s been in the back of my brain all the time for a while. As you may know, I’d been treated for hypothyroidism since I was a very little child, I was taking thyroid hormone and growth hormone. At some point I went off the thyroid hormone though, which most people have to take throughout their entire life, as I seemed not to have neither any specific symptoms anymore when off it, nor any special improvement in anything while taking it. Probably the only symptom of hypothyroidism I can strongly relate to these days is low mood, for which I have a separate diagnosis these days though and no doctor has ever said that I have the mood difficulties that I do because of hypothyroidism, and low energy which is a common thing in womenn on my Mum’s side of the family because of low blood pressure, and my Mum has the same thing. Anyway, recently I had some blood tests and it turned out I still do have my TSH (thyroid stimulating hormone) levels elevated, so my GP thought she’d refer me for the ultrasound, just in case there’s something else going on. I’ve never had anything particularly wrong going on on ultrasounds as far as I know, except for my thyroid being a little bit too small, but it’s always better to check it out once in a while I guess, especially that I didn’t have it in like over 5 years. So I am also a little bit stressed in case something may have changed, even though rationally I know it’s not super likely.

Also the Dad thing is still affecting me a bit.

My Mood has been very much up and down lately, but I don’t think there are any more clear, external reasons right now for the downs, or can’t think of any, so it’s probably just mostly my brain.

How about you? πŸ™‚

Question of the day (11th August).

Let’s talk a bit about our daily habits.

What time do you wake up?

My answer:

Really hard to say. It’s different almost every day, or at least every few days. It depends on which timezone my brain clock is at the moment. As you may know if you’re a regular reader of my blog, I have a problem with circadian rhythm, probably mostly due to that I am blind and don’t have any light perception or anything so my brain is probably permanently confused whether it’s day or night, but I’ve also learnt that pituitary is in some way responsible for controlling circadian rhythm – not sleep-wake cycle as such I guess or I’m not sure about this particular thing, but circadian rhythm in general, in any case, it could be relevant since I have hypopituitarism, and mental health surely plays a huge role with sleep problems as well. – Whatever is the reason, that’s how my brain works, and I’m mostly okay with it at the moment, of course it can be annoying but I am now having the luxury of being in charge of my own time at this point so I can usually decide when I need sleep and when trying to sleep doesn’t make much sense so it’s better to stay up and do something constructive. I used to supplement melatonin but it would work only to some extend, meanwhile giving me loads of vivid nightmares. I have a PRN sleep med which helps and I try to have some kind of a sleep-wake schedule at least in theory, something to aim to I’d say, but what probably makes my sleep problems worse is also that I’m not the best at sticking to sleep routine, but also I don’t want to be too obsessed with it as that could get more stressful than helpful long-term I guess. So that being said, my waking time shifts depending on my current circadian rhythm, and my circadian rhythm seems to depend on a lot of things, external and internal, I guess I’m not even aware of all of them, funny thing is also that with my sleeping and waking times, my need for sleep also changes kind of in cycles and sometimes I feel the need to sleep a lot, and sometimes I feel rested after just a few hours and get lots of energy at night, or don’t sleep at all.

With my “ideal” sleeping schedule, I try to wake up at 7:30, because I’ve figured out after some experiments that it seems to be a generally optimal time for me, though as I said, it can look different in practice. I have an alarm – previously on my PlexTalk, now on the iPhone – and I try to stick to it when possible, but when I’m not asleep say by 3 AM I just turn it off so it doesn’t wake me in case I will fall asleep until 7:30, since usually falling asleep that late I’ll also probably need to sleep a bit longer than that, or when I feel very sleepy and it goes off I just turn it off, go back to sleep for however long I need and don’t care, unless I have somewhere to go or something really important to do on time. Also when my depression is particularly bad, sleep is my best friend, as long as I can get it, and then I turn into a real sleep escapist if only I can do it and have no plans, and turn the alarm off altogether, and turn it back on again when I feel more motivated to actually live or when it’s really necessary for me to get up at a specific time. At the moment though, I’ve been sticking to my normal waking time since a few days and I like it, though my falling asleep time is later than it should be in theory so I’m not getting a whole lot of sleep but I’m not feeling it really.

How does it work for you? Do you have any sleep routine at all and if so, are you good at sticking to it? πŸ™‚

Some fun stuff instead of question of the day.

Hi guys! πŸ™‚

I’ve found something today that I thought I could post on here so we can have some fun. Below are sentences that we can complete. I’ll do it here in this post, and you can do it in the comments, or in your own posts (don’t forget to pingback or leave the link in the comments so I can read it). Keep them as long or as short as you only wish. For your convenience, I’ll write the unfinished sentences alone first so that you can copy paste them without having to edit them and delete what I wrote. Here goes:

I am confident about…

I am insecure about…

I need to…

I want to…

I like to…

I recently bought…

I am thinking about…

I am anticipating…

I am procrastinating…

I am watching/listening to/cooking…

Mine:

I am confident about… nearly nothing, I guess. I’ve been thinking on this for a while now and I just can’t come up with one thing I would be like absolutely and unquestionably confident about. πŸ˜€

I am insecure about… almost everything, which I guess is pretty logical from what I wrote above.

I need to… find myself another faza. It’s really getting imperative! I haven’t written much about that lately but I’m still searching intensely. My latest finding has been Jack Hughes who is cool but too normal, not versatile enough, and has a bit peculiar way of singing which would be annoying for me long-term. Why do I have to find a faza for myself in the first place, rather than it just happening without my conscious effort, like always before? My brain is getting way too lazy. And it’s a vicious circle because lack of a faza and thus beneficial stimuli in the right amount only makes it more lazy. πŸ˜€ What do you do with a lazy brain?

I want to… stop cutting myself. I did last week again, and a couple of times, so this time I only managed to go without it a month or so I believe. And on the other hand I don’t want to stop cutting. Well but what I do want is I don’t want to do it in such an impulsive way. Or at least be able to not do it for longer periods of time, like once I managed not to cut for about half a year. In case you’re wondering why I did it, I was just feeling depressed and overloaded, also had a lot of anxiety for no obvious reason, it was my friend Jacek from Helsinki’s another death anniversary on July 29, and then later in the week it was my cousin’s 18th birthday party and I reeeally couldn’t deal with the socialising and all that comes with it. Quite ironically, I have some special memories with Jacek from Helsinki and my own 18th birthday party, which didn’t help. But it’s better now.

I like to… sleep with Misha.

I recently bought… my new Bang & Olufsen headphones, yaaaaaay!!! Seriously, this was a very spontaneous purchase, totally on the spur of a moment, completely unlike me, just because it was my Mum who found these headphones online on sale and she told me about them, I only briefly looked them up online to see if it could be something for me and it seemed like it could perhaps be but might just as well not be, but it was on Zalando Lounge so they were way cheaper than they would be otherwise and I could return them if I decided they’re not for me. I really needed some good headphones for my iPhone, I also need a good speaker(s), so I figured I might just as well try these with an opportunity like this. I had to wait ages for these headphones, about a month, and also I was rather sceptical whether it could really be something for me ’cause I’m sort of picky and have some very specific requirements. But they came on Monday – just before my parents went out on their camper van trip so Mum could pick them up for me – but they had to go and Sofi wasn’t home when they were leaving so I had to set them up and pair by myself. Which was not difficult but I had no accessible manual or anything and I didn’t really know how to do it. I figured how to turn them on and turn Bluetooth on after a while but they still weren’t visible for my iPhone because it turned out I had to get an app to set them up, so I was very apprehensive and wondered how accessible it’ll be with VoiceOver – the iPhone screenreader – and moreover how usable for me as a still more or less beginning iPhone user. It would probably be badly inaccessible if not the fact that VoiceOver can now guess what different buttons in an application do from how they look if they’re not labelled properly, and as far as I remember none or very few were labelled originally in that app and VoiceOver did a very good job at the guessing game. Then I didn’t remember what exactly model I had and I had to select the one I had from the list in the app to set it up, and some only differ between each other with one number so not very Bibiel-friendly. So I ended up having to call Mum and she had to check up what my model was. Then still iPhone couldn’t connect to the headphones for ages and I was getting really frustrated, but then finally I did something random and they did connect to each other. And once I had them paired, a very Bibiel-friendly manual showed up – both with audio and text, not some weird, hardly descriptive video like a lot of tutorials are – so I could figure out hhow to actually use the headphones without anyone’s help very easily. And once I learned it it was very rewarding because I’ve already grown to like the headphones a lot. I would never buy them for their original price, I seriously don’t think the sound is worth as much, but it’s definitely good for me and good for the price I paid for them. When I read reviews people complained that the active noise cancelling feature is meh because it doesn’t work as well as in other similar headphones but for me it’s just right. They’re my first noise cancelling headphones and, I don’t know, I have a terribly, horribly, freakishly loud desktop computer and when I turn the noise cancellation on and sit at the desk I can barely hear the hum nor anything else outside. Granted, I don’t need some really extreme noise cancellation, I am obviously blind and a control freak, I want to know what’s going on around me most of the time so that I don’t need to worry that someone is lurking behind me and I have no idea because I’m listening to music. On the other hand I do like the noise cancelling for situations when I don’t need to hear the world around me so that I have a good and immersive environment for daydreaming haha, and these headphones are just right for this purpose. Even yesterday I had a situation when Sofi was in my room, watching a video on her phone, and there was some really weird music that was setting my brain off a little bit, so I just quickly put my headphones on and turned my own music on with the noise cancelling, and I could no longer hear Sofi’s evil shit. They also have transparency mode which is good sometimes for such people like me (Sofi once said that they should invent cheekphones for me because with my computer headphones often when someone was in my room or something I would have the headphones more on my cheeks than ears so that I could hear my surroundings clearly without having to constantly put on and take off the headphones, yes, cheekphones could be a cool idea for some specific situations πŸ˜€ ), and integration with Siri which is useful at times, and the earpads are really comfy, though I haven’t used them for a longer stretch of time yet. They have gesture control which seems to work very poorly, or perhaps it’s me not doing the gestures the right way exactly, but thankfully you can also control them within the app or just simply from the phone. They also have a cable so I can plug them into my PlexTalk which does not have Bluetooth which is cool because my previous PlexTalk/computer headphones are falling apart. Oh wow, what a mini review I just wrote lol.

I am thinking about… Jocky, whom Sofi has just let inside and he’s devastating the house and barking his lungs out, and about Misha, who is thankfully cosily tucked inside my wardrobe – this is his recent hideout for when he’s a bit stressed as it seems, and he certainly is stressed now because Mum is away and he’s very attached to her.

I am anticipating… huh, nothing really. Can’t think of anything I’d be anticipating at the moment.

I am procrastinating… way more than I realise on a daily basis. I’ve only recently thought more about it. I really procrastinate a whole lot and it’s usually because of anxiety as it seems. But it’s not like impairing or anything so I can’t say I care very much, just a little alarming when you suddenly realise such things.

I am watching/listening to/cooking… listening to BBC Radio Cymru at the moment.

So, who wants to play along with me? πŸ™‚

A letter to my 33-year-old self.

Continuing with the

Letter Writing Challenge

today I am writing a letter to my older – 33-year-old – self.

Dear Bibiel, because I believe that, if you are still there, you are still Bibiel, deep down, aren’t you?

Remember me? I’m your younger self. How’s life going for you right now? What are you doing today? I must say I’m quite curious what you would write to me, but since you have more important things to do at the moment, I assume, I decided to write to you first, and hope to get a response, someday.

I wanted to remind you that, wherever you are at in your life right now, whether you like it and are satisfied with it, or not and are struggling a lot, everything is transient in life. I’m sure you know that better than me but it’s easy to forget about it in everyday life. I also want to remind you about another cliche thing that I’m sure you know, but I want you to never forget it, that no matter where you are, and what people are surrounding you, or maybe you’re alone or lonely, no matter whether you like it or not, what you are doing and what life is like, what is going on with the world and what challenges you are having to face, you have your brain. Use it. You know I am not talking about thinking, although that’s important too especially that we humans seem to be worse and worse at it and get tired of thinking more and more easily, and I don’t expect this trend has changed in the world where you live. I am talking about coping with things. I hope you are surrounded by supportive people, even if it is mostly or exclusively online as is the case with me, and that you are privileged to be able to support other people and do it as much as you can, but even if you do, and especially if you do not, it is important to know that no one will help you more than you can help yourself, and that you can’t rely too much on other people. Your brain is your fortress so do use it, as much as possible, especially when all else fails, and don’t forget about your Brainworld, it is always there.

How is Misha doing?… Does he still live with you or did you move somewhere and leave Misha with your family? I hope that if you live on your own, you weren’t selfish and possessive enough to take him with you, if you did, know that I loathe you for that. Well, unless some miracle happened and you are able to take proper care of him and provide him with all that he deserves. On the other hand I hope you do not live with Zofijka, because as much as she is a sweet kid, I know you would have a very hard life living just with her, or possibly her family, since you both are quite clashy and neither of you would be happy long term. I also hope that you didn’t have to bring your emergency plan into life, if it did have to happen by now, I hope you are managing and have something that brings joy into your life, and that it isn’t as bad as it used to be. At the same time I congratulate you for being a very courageous Bibiel, courageous enough to make it happen and I know it must have been a very difficult decision, and its outcomes are certainly no less difficult. Most of all though, I hope you will never have to do that.

How is your language learning going? I hope you can continue with it and it’s exciting to think that you may be able to speak even more languages than I can. As you may realise, I am in a faza limbo right now, or I hope that this is a limbo, and not the end of everything, as I sometimes feel. Please tell me that it’s not the end, and that you have a faza!

You may also remember, that at the time I’m writing to you, the world is going through the coronavirus outbreak. I’d be curious to hear from you what you think about it, looking back. Were you scared of it at any point? Did it affect you?

Looking forward to hear from you in the future and sending you a little piece of Mishfur, and a little Mishpurrr, with this letter, in case you forgot how it feels and sounds.

Bibiell

*****

I thought I’d clarify one thing in the letter, so that no one has any doubts. One of my readers was concerned that my “emergency plan” was suicide, and after re-reading this, I agree that it is easy to draw such a conclusion. But it was not what I meant, and it isn’t anything dangerous and unsafe. Just something I am not particularly looking forward to, but will do if I have to. I may have a lot of passive suicidal ideations in the background of my brain but I am stable enough at this time in my life that I don’t make active plans or anything like that, and I would definitely trigger warn this post if it was about suicide even indirectly.

 

This year so far.

A couple of days ago, the writing prompt at Word of the Day Challenge was

year

and so I decided to write a bit on how this year has been so far for me.

The first thing I immediately think of when thinking of this year are the dreaded tech issues of all sorts, as well as changes. As you know, I had my computer changed, which was planned for months in advance, and was supposed to take place much earlier that I’d finally transition to it but in the end there were a lot of unexpected things happening. At first, the fan in the new computer got broken on the delivery to me, which was back in September of last year. That made it useless but the delivery company decided to cover the costs of a new one for me and then the new one was sent to me not long before Christmas. And just some time around Christmas as you may remember, this one stopped working too, as it turned out later on, also due to the fan being loose, but the ways in which it manifested were so weird and puzzling to everyone that it took a while to figure it out. I had it sent back to the company who helped me with choosing it and setting it up and they fixed it – luckily I didn’t need to buy a completely new computer this time – and then they sent it again back to me. And, surprise – after a few days, some time mid January – the fan was loose again. Obviously this time I didn’t send it anywhere but just my Mum took it to a nearby servicing place but we were scared doing even that ’cause what if such simple transportation will make something else go loose. The guy at the servicing place put it in place more firmly and since then, I’ve had no fan issues thank God and hopefully it will stay this way. As you can imagine, this has been very stressful to me, and made my transition process even more difficult, as it was a rather unwelcome but necessary thing to do for me to begin with, and presenting a lot of small but at the same time significant changes in itself. Not only was it a transition from a laptop to a desktop computer, but also I switched systems and had to stop using or replace a lot of apps I had been using. With all that glitching at the beginning, and such a huge delay, my brain was ruminating like crazy and the whole thing was much more scary than it probably would be in other circumstances. I’ve mostly gotten used to my new computer by now and I like that it’s more efficient than my laptop, and I’m usually quick at learning things, but I still have some getting used to and figuring out to do, especially that, at least for me, learning is one thing, and adapting a completely different one. And to this day, whenever I hear the slightest click or creek inside of it, I freak out that something is loose again, and my tolerance to tech issues is not very high these days haha. After the fan saga has finished though, I was still left without most of my speech synthesisers and had only a few of those I actually own. For some, I lost the licence because in that loose fans havoc there was a lot of major and deep system digging and repairs done on my computer because people didn’t know what was the problem and it looked like a system error. That all led to my licence being irretrievable. As I shared in the last Weekend Coffee Share, I’ve been contacting the company producing those speech synths, who were very unresponsive to begin with, but once they did respond to me things started to happen relatively quickly, and I am happy to announce that yesterday I finally had that remote session with the support guy, the one I was so strangely anxious about, and it turned out my anxiety was not adequate this time round, because it was not only super quick but also – yes – successful! So quick and successful that for a good while I couldn’t believe that it was all OK and was sure something will soon come up and be wrong again. πŸ˜€ But now I have my new licence working and my English, Scottish, Finnish, Sami, Faroese and Dutch speech synthesisers. As soon as we were done with that I also wrote their distributors who are closest to me from whom I’ve got my original licence and asked them if they could upgrade my licence to Scandinavian, because I need Swedish voices now (I had had a very good Swedish voice on my laptop but it’s no longer produced and seems like I am not able to activate it anymore so I need to look for something different). But I am so happy I’ve regained so many of my voices and that all my stalking them via email and phone, in English, Swedish and Swenglish which was probably much more stressful to me than to them paid off. πŸ˜€

Also, another piece of good news regarding synths is that, it seems like there is a slight glimmer of hope I may yet get back my Jacek synth – the Polish one that I love so much. – I just need to experiment a little bit with something I just discovered and who knows, that would be so cool! I’m still disconsolate that, just like with my Swedish voice, it’s very unlikely I’ll ever get the Welsh one back, and it was very helpful with my Welsh learning, even though I am learning north Welsh and it was south Welsh and that was getting in the way sometimes, but still, it was a lot of help especially with reading longer texts because my own reading in Welsh is still a bit sluggish. On the other hand though, it will probably just motivate me to read more myself even if it will take ages. πŸ˜€

Those first two months were also very gloomy and depressive to me. You know that I have dysthymia, so, while the way I feel can often be shitty, externally I am usually rather high-functioning as long as not too much overwhelming stuff is going on. My physical energy levels are usually also not that bad that it would be noticeable for outsiders that something is wrong in this particular regard or at least I think so, unless my blood pressure is particularly low or something which does tend to happen a fair bit of time if I don’t stimulate myself with something in the morning or if it’s hot etc. While I often have to force myself to do even small things especially if I feel worse than my dysthymic baseline, and force myself to feel things sometimes, to be more enthusiastic and all, I generally don’t tend to experience very bad anhedonia or at my better times (especially when a crush peak is involved) none at all, and as you probably know my fazas and passions (plus now also Misha since I have him) are the only things that keep me going and wanting to keep going, even if as I said there are times when I have to force myself to feel some enthusiasm to them, and sometimes the only thing I can force myself to do is only faking it for the sake of other people. Towards the end of last year, and at the beginning of this year, my anhedonia has gotten worse. I associate it with the fact that my current or last dominant faza/crush on Gwilym Bowen Rhys has been slowly fading (which absolutely doesn’t mean anything like that it’s going to fade completely or that I don’t like him anymore – fazas for me are a bit different than what most people understand by a crush and so far none of the major ones I’ve had has just gone away, they are still there but just in the background) and as I said my fazas are very important to my wellbeing, they inspire me, help me to develop, learn new things, discover new things, make my life more bright and add more dimensions to it, and the so called crush peaks – that is periods when faza is particularly strong are especially pleasant and make you feel a bit high, kind of more creative. – Generally I’d say fazas are like fuel for my brain, my creativity, but also what drives my passions. Usually, when one of my fazas starts to fade discreetly (at least that is how it had been before) soon, before it fades to any serious degree, I come across a new one. Well not this time. And so, as you also probably know, I’m trying to help my brain and frantically looking for some new faza myself. Normally I don’t have to look for them, they just come to me. Sometimes via other people, sometimes a string of events, or somehow else accidentally. I associate my recent anhedonic tendency and lower energy and feeling flat and having to fake things with that, but it’s possible that other things have been also involved, possibly something deeper that also doesn’t let me develop another faza, who knows. And I’m sure the recent stressful stuff hasn’t been without an impact either especially that my anxiety, specifically the more kind of situational one, always drives the depression very much. I’ve been at very different points with my dysthymia and I’d had a few major depressive episodes before I was even suspected to have dysthymia, but I’ve never been on any antidepressants as such. And I’ve always felt like, as long as it will be possible for me to cope at least somehow, I’d rather not be. I would really not like to become overweight due to them, for some reason this has always felt the yuckiest effect of them for me, even though theoretically I shouldn’t worry perhaps because I’ve been either bordering on or underweight for years now. But the recent state of things got me thinking whether perhaps getting some medication to boost my mood wouldn’t be wiser. I haven’t made up my mind on that, but since a week or so, I’ve noticed a bit of an improvement, despite I still don’t have a major faza. Perhaps it’s again due to the stressful stuff resolving a bit. It’s good to feel more pleasure out of life again, it’s a really yucky feeling when you have to fake things and force yourself to everything and just nothing makes you feel better. On one hand I want people not to see the way I really feel because it’s pathetic and doo all I can for them not to see but on the other when someone who knows about my struggles says it doesn’t show I feel like I’m just attention-seeking or manipulating people or just evil or what not, even though what I want is definitely not for people to pay attention to my depression as I said. I know it’s Monkey Maggie talking but I don’t have enough bananas to stuff her with to keep her quiet, as I don’t like them at all. That’s a dilemma… πŸ™ƒ My anxiety has still been pretty high though, or rather it’s like different of my anxieties are coming to play at different times.

I’m pretty happy with the way my relationship with Misha has been evolving this year. I have an impression like we’ve become closer in those two months. Recently I am trying to help him the way I feel could help with his fear, I’ve mentioned many times that he is so afraid of closeness and touch and movements and is generally very fearful and on one hand he does like to be cuddled, petted and spoilt and wants to show us his affection, but on the other he’s scared of it, the reasons of which I don’t fully understand other than that he’s afraid of touch, so then there are frequent situations like that when Misha comes to someone very closely and then suddenly turns back and runs away, or hhrrru?’s at someone to come over and stretches on the floor and as soon as this person comes closer he goes away as well, or he is afraid to come over to his food bowl when someone’s close to it, or hides under big objects when there are people around, or something. It’s not always like this but like I wrote recently sometimes he’s much more courageous than at other times. Anyway, I’ve been doing one thing with him every evening before bed – that is on days when he decides to sleep with me. – I don’t know if it’s right because I have very little idea what is on his mind and what his fears really are, and a huge obstacle for me is that in contact with Misha – and probably all other cats – it’s eye contact that can tell you the most about him, and in Misha’s case it’s even more important because he doesn’t always respond to touch very well and is not particularly vocal, so it’s just what I think could be helpful. – I simply sit on my bed with his mini sausage, and I ask him to come to me, and once he manages to go on my lap, then I give him the sausage. I have to ask him repeatedly and it can last even 15 minutes but even I can feel how his mind is working and analysing, whether to come or not, and when he comes to me he does it very slowly and cautiously so I can’t even move too much or otherwise it discourages him. But, sooner or later, he does it, and I can give him the sausage, so I think in fact he is a very brave Mish, don’t you think? My Mum is laughing that brave is the last word one could describe Misha with but brave is not the one who doesn’t feel fear, right? When he manages to do that, so far he has always slept soundly with me, without showing much distress and having to leave as he often did before, so perhaps it’s seriously working. But apart from that sausage challenge, even before that, I feel we’ve been getting along better and understanding each other better.

My language learning hasn’t been as dynamic so far this year. I’ve been doing a lot of Welsh repetitions but not much new material, mostly because of having to get used to all new stuff, also my new situation with learning that I do not have a Welsh synth any longer. Besides I didn’t have any good English synths until yesterday either and I am learning Welsh via English. While I can read things like blogs or emails or websites etc. in English with a Polish synth with no problem and I’m used to it and sometimes it’s even better, in language learning, it’s not such a good option, not for me anyway. Also the most plain reason was that simply my motivation hasn’t been great lately due to feeling blah and I was just being lazy. I am hoping to get more consistent with it now that I do have English synths.

Okay, I guess that would be all about my beginning of this year, I can’t think of any other major stuff going on that would be worth mentioning.

How has this year been for you? πŸ™‚

 

If We Were Having Coffee… #WeekendCoffeeShare.

The weekend is over, but Weekend Coffee Share at

Eclectic Alli’s

is still open so I thought I’d take part and have a coffee with you guys.

As you know, I don’t really drink coffee now since quite a few months as I discovered it doesn’t agree with my brain, except for some very special occasions, but you can have it, or you can help yourself to some tea, I have a lot of different teas, as well as orange juice, Pepsi, milk, water, or you can take your own drink with you and share it with others as well if you want. For those who – like me – love coffee but don’t drink it, I can offer you some Kopiko candy – Kopiko are Indonesian coffee-flavoured sweets that actually contain caffeine, but not enough to send your brain to Freakland, unless you eat really many, and they do taste like coffee, unlike so many -flavoured things which are not particularly convincing. I also have some chocolate that I can share with you guys (oh, and we have hot chocolate and cocoa as well if you wish), and also I have hazelnuts in chocolate. My Mum is really awesome, because Christmas is over but she made Christmas pierogi for us again. Well, after all Christmas period is actually still lasting until Sunday. Anyway, if you’d like to try them, feel free to do so. I hope everyone is sitting comfortably and has something yummy to drink, and eat if you want. I’ve just had a glass of orange juice and now I’m sucking a Kopiko.

If we were having coffee, I’d ask all of you how you are doing…? πŸ™‚

If we were having coffee, I’d tell you that it’s been quite a tough week for me. I am struggling with a lot of anxiety lately, and my anhedonia has been increasing slowly but steadily since a few months and these days it’s more noticeable for me. It feels strange because, while I’ve been familiar with feeling depressed and struggling with depression and depressive thoughts since forever, I don’t have as much experience with anhedonia. I’m kind of scared that it’ll stay with me, and I’m pretty sure it will if I don’t find myself a faza/crush very soon. Probably the whole transition process to my new computer and having to get used to it doesn’t help as changes hardly help me to feel better. I’m hoping it’s temporary. I’ve also had quite a bit of socialising to do this week.

If we were having coffee, I’d tell you that there was a bit of a party in our house on Monday. My uncle and his family came. I think I like him the most out of my Mum’s siblings because he’s quite laid back and often looks sort of different at things than the majority of mediocre people, and is funny, although he’s also very noisy and drawing lots of attention to himself, and goodness they all were making soo much noise that I managed to spend only a little while with them and then me and Misha escaped to my room! πŸ˜€ They were all partying until like 2 AM, which is longer than my family usually does, haha, especially that there were children too.

If we were having coffee I’d tell you that we were visiting all my grandparents last Tuesday, because it was Grandma’s Day, and on Wednesday Grandad’s Day. We couldn’t really break it down somehow because on Grandad’s Day, we were having other plans. So there was a lot of riding around and sitting behind the tables and socialising and eating and that, and I wasn’t really doing well as my blood pressure was very low and my mood definitely not up to socialising, but I was trying my best. Sofi was in an even worse situation, because she had a headache all day long after not a very good night’s sleep and the party, and you know how awful it is to have a headache while having to travel or visit other people, I really felt for her.

If we were having coffee, I’d tell you that we had a priest’s visit on Wednesday. I don’t think it’s a thing in Catholic parishes in other countries but here it definitely is. It’s like, during the whole period after Christmas, that is until February 2nd, priests visit all houses in their parishes to consecrate them and pray with people, also talk a little bit, get to know the family a little etc. It’s a very short visit, maybe 15 minutes, but, in our case, usually the waiting for it is sooooo long and daunting. They usually start on the neighbouring street to us, go through it, and then along our street but from the opposite end towards where we live. So the visits start, say, at 4 PM, but ours take place at 8 PM or so. And there’s no communication between the houses really and you have to be prepared because you don’t really know how long it will take this time. This year was a pleasant surprise though, because we were one of the first who were visited on our street, so we didn’t have to sit in the living room the whole afternoon and get bored and frustrated. It went very quickly and we were free. Although such events usually stress me a bit, it’s usually quite awkward if I’m honest, no one really knows what to talk about, so it’s good that we have Zofijka.

If we were having coffee, I’d tell you that I got another computer related scare on Friday. My antivirus informed me that I got some malware and that apparently it was a Trojan, which freaked me out mostly because I’d never had a major infection of a computer before, but also because as I said I’m still not fully used to it. Also I was very suspicious because this computer is still very new, and I had no idea how I could get it, because I haven’t really got to using anything else on it other than the apps I’ve always been using for ages, and same about websites. My antivirus “cured” the thing and then I made a full scan and now there seem to be no dangers, and I haven’t seen any weird behaviours of my computer or any issues that coould be down to a virus or stuff, so I believe it’s okay, and Olek actually says it probably was a false alarm and my antivirus must be just very hypervigilant, although I have no idea if that’s really possible. Anyway, it certainly didn’t help my anxiety as you can imagine.

If we were having coffee, I’d tell you that yesterday was my grandpa’s 16th death anniversary, and because of that, on Saturday we went to the Mass for him and after that, we had another family gathering, that was for some reason even more difficult for me to go through although I’m not sure why. Perhaps just because I don’t get along with my gran and the whole Dad’s side of family, or perhaps because of all the anxiety bubbling in my brain. Anyway, it was very difficult for me and there was a lot of food. I always find it more or less difficult to eat among many people or people I don’t know, but on the other hand I feel like it’s awful not to ever do it because someone may just feel offended or something, and it’s awkward when everyone else is eating. But this time round it was really difficult for me to eat anything at all. I caught up on that though when we got back home and I devoured a whole packet of crisps right away. It’s funny how much stress can impact you. For me it’s always like this. When I feel very stressed, I virtually can’t eat, but then when it passes away, I become ravenously hungry. πŸ˜€

I think that would be all from me for now in this coffee share. It’s not much, because I wrote a sort of smaller update post not long ago, and also because apart from some chaos in my brain and what I’ve already told you about, right now not much is happening.

Oh, Misha’s birthday is coming on Thursday! Hope things will be looking a bit better by then, although on the other hand I don’t suppose they will.

What would YOU tell me if we were having coffee? πŸ™‚

 

The hiatus is over.

So, as I wrote in the last post and as some of you could notice from my activity on your blogs, my blogging hiatus seems to be over. It’s so great to be back to blogging and connect with you guys! πŸ™‚ I think I wrote you in my last post about all those strange issues with my new computer, which, again, turned out to be caused by the fan that was loose, so the computer couldn’t work properly. Interestingly, when I got it back last Friday, the fan was fallen off again, but this time I didn’t send it to that company again, but my Mum took it to a nearby servicing place. It seems to be fine now, although my trust for this thing has been broken very badly so, while it is a major and stressful change for me anyway, with all those complications along the way it will take me probably even longer to adapt to this new computer and feel confident with it. I have a lot to get used to, and I haven’t figured tons of things yet which is awfully stressful, and there are some that I might just never figure out and will simply have to deal with. I don’t have most of my speech synths – because some seem to have keys that don’t work any longer (including the Welsh and Swedish one which makes my language learning a bit more difficult), I also don’t have Jacek about which I was telling you earlier that I had had that speech synthesiser for years and out of all I’ve ever had Jacek was the best and most reliable Polish speech synthesiser and I simply had a sort of emotional bond with him so to say. After the last time I sent the computerΒ  to the company who helped me get it, I also lost (hopefully temporarily) most other of my voices, because they were doing multiple system repairs, restorations and what not and in all that chaos there have been some licence issues that I’m not able to sort out on my own and will just potentially have to buy them once again which is so totally unfair, especially that I’ll most likely also have to buy myself some other Swedish voice. I can do without Welsh, but definitely not without Swedish. Thus, since I lost all those other synths, I’m also left without a decent English synth which I can deal with but which stinks really badly! Also I have to figure out why my computer doesn’t seem to like virtually any headphones, and they just don’t work exactly properly on it, because while you have them plugged in the sound output can just change at random back to the speakers, or the sound goes somewhere into the space and you can’t hear it neither on the headphones, nor in the speakers. This stinks too, because while my speakers are quite gorgeous, at least for listening to music, I do appreciate my privacy and don’t always want everyone around to know what I’m doing, or even listening to, and sometimes do things which you just need to use headphones for. I hope it’s not some major issue but I probably will not be able to solve it on my own because I simply have no idea what’s the problem here, and, as you can imagine, it can be quite a bit of a problem when you use a screenreader and can’t control whether you are actually able to hear it or not. And oh gosh I do have to get used to all that humming in the background! It’s a trivial problem but it’s really annoying for someone like me who has music on at night while sleeping and so far had only had laptops before. Obviously desktop computers are much noisier. Or at least mine is. I only listen to the music quietly at night, so I can hear it slightly but can still fall asleep and not wake up because of it or something, and it alleviates my sensory anxiety stuff, but now, this way the humming is what I hear predominantly then. I’ve been wondering whether there are ways to quiet it down a bit but I’m quite clueless and I suppose if I won’t get used to it after a while, I’ll have to look for some other ways to have my music on at night, because in this case I’m not up for any compromises. So yeeeah plenty of change and I’ve only mentioned the major things! πŸ˜€ Actually for now the whole adjustment process makes it hard for me to see any upsides of the situation, even though there certainly are some. Like, my files don’t get randomly damaged any longer, yaaay! That’s a huge positive, isn’t it? I believe you can get used to everything, and people definitely get used to much worse things which have no positives about them, but I’m really quite curious how long it will take for me, and while my adjustment process is lasting it’s rather daunting.

I thought that since I’m already writing a post I’ll base it on some writing prompt, or a challenge or whatever. And I decided that I will answer the question of Carol Anne at

Therapy Bits

which she posed to her readers yesterday in her series Carol Anne Asks, especially that her question is very general and I haven’t posted in a LONG while. The question is:

How do you feel today? πŸ˜€

So, today I feel a bit better than in the last days and weeks, which have been tough for me because of all those tech issues and the whole computer transition thing, but also there has been quite a bit of socialising and general anxiety and stuff. Today I’m still an anxious, stressed, a bit anhedonic and overthinking mess but to a slightly lesser degree I’d like to believe. πŸ˜‰ I had a headache in the morning, but thankfully it was just very slight and didn’t develop into anything worse and it has vanished after a few hours which was great. I did some Welsh late in the afternoon, which I wasn’t able to do in a serious way for a good couple of months because of my laptop being glitchy and eating up or destroying my files including Welsh files, which felt kind of good but also more stressful than usual because, well, I had to get used to doing it without Gwyneth – my Welsh speech synth – and because I’m generally not doing too well right now which shows up in how well I absorb what I’m learning. I don’t know if I’ve told you about that ever before but my current dominant music crush, or faza as I call it in Polish – on Gwilym Bowen Rhys – is fading slowly but surely, and I am very worried because this has never happened with my crushes before, not before another one came into my life and dominated over the previous one. Now there doesn’t seem to be any other crush on the horizon to replace Gwilym onn the dominant position in my brain. As I’ve often said, crush is such a shallow word but for me a crush means more than it typically does to someone. My crushes/fazas inspire me, fascinate me, boost my mood, help me to develop in new directions, make me want to live, etc. etc.! They feel absolutely necessary for my mental wellbeing and self-development and make a huge difference, and I believe that a decent crush peak is actually one of the best natural medications for depression. So, this is worrying. All my crushes are still there, even when they fade slightly they are there, but they can’t have as much of an influence on me as a crush that is dominant. So I believe that explains why I’ve been feeling somewhat more mentally lousy and anhedonic in the last couple of months and it’s been slowly increasing, and when I feel better I frantically look for a potential new candidate for me to get a faza on, even though I know well that it never works like that when I want to have a faza on someone, I will, it just comes spontaneously. But maybe my brain needs some… inspiration, stimulation, or whatever. πŸ˜€ I would love my next crush to be called Jack! So, here’s my request to you lovely people, if there are any musicians, or even literary characters called Jack, or something similar that you know, that you think I might not know but might like, do let me know! If you have any idea, and by any chance that Jack will indeed become my next crush, you have MIMRA absolutely guaranteed! πŸ˜€ Seriously. Jacquelines and the like also count. Or if you know a Hamish…

So, yeah, that’s more or less how I’m feeling today.

I missed blogging awfully, so I’m glad I can finally get back to it, although I don’t know if I’ll manage to write daily for now, we’ll see. πŸ™‚

How are you feeling? Let me know in the comments, and go over to Carol Anne as well, or if you want to make a post of your own let me know so I can read it. πŸ™‚

Me and Misha are heading off to Sleepland. 😴

Song of the day (16th November) – Coma – “Los Cebula I Krokodyle Łzy” (Fate Onion And Crocodile Tears).

I didn’t plan to share this song at all but I kind of had no idea for a song for this day, and I heard this one playing in the bathroom, so decided to share it because I have a bit of a personal story with her. It’s a song dedicated to people who struggle with depression but also generally just any kind of life difficulties. I heard it for the first time in the kitchen, one late Sunday evening, night actually. I went downstairs because I had self harm urges and wanted to cut or something. I came into the kitchen and took out the knife from the drawer when I heard this song playing: “Leave that damn mug alone, you’ll cut your fingers…”. πŸ˜€ I had a knife in my hand, not a mug, and intended to cut not necessarily my fingers with it, but the irony of the situation made me laugh out loud despite I was crying some five minutes earlier. πŸ˜€ I started to listen to the song and it sort of made me feel better, at least I could relate to it. I’d like to tell you that Coma prevented me from cutting that time but they didn’t, but the song helped me a little bit to make me feel less alone with my shit. And now I am going to share it with you and my translation of the lyrics as well.

Β Β  Leave that damn mug alone – you’ll cut your fingers.
Drink the milk, wash your face. I’ll come before you fall asleep.
Even though the galactic blast will destroy the civilisation
It’s not enough to burst out into tears.
For me, the day wasn’t too gracious either.
For me too, too long and bad is the winter
For me too, but you must admit, that all in all, life is wonderful
And stop wailing! Stop wailing! Stop crying!
And why do you read the comments from frustrated pipsqueaks?
Let the blockheads poison themselves with venom, save yourself the evil.
For me, the day wasn’t too gracious either.
For me too, too long and bad is the winter
For me too fate, onion and crocodile tears.
Stop wailing! Stop wailing! Stop crying!
For me, the day wasn’t too gracious either.
For me too, too long and bad is the winter
For me too fate, onion and crocodile tears.
Stop wailing! Stop wailing! Stop crying!i

Ten Things Of Thankful.

I haven’t participated in

Ten Things Of Thankful

in ages, I saw the post by Astrid of A Multitude Of Musings last weekend and only realised I haven’t linked up in a long time or so it feels. So I’m very happy that I’ve managed to do that this week, although I doubted I will be able to do it in time. I’ve been feeling rather crappy emotionally and moodwise the last few days so a bit of gratitude will be a good thing.

  • Because it is Independence Day in Poland, the first thing on my list is just that – our independence! That we have been an independent country for 101 years now, that we have had such difficult history yet are thriving, and in the recent years it’s visible more than ever. I’m grateful to and for all those people who sacrificed their lives for it to happen, who went through all sorts of horrific experiences or personal losses during WWI. As I said in the song of the day post I think we so often tend to take it all for granted. I’m also so extremely grateful that I’m Polish. I love many countries, and even more languages to pieces, but I often feel like I wouldn’t like to be born any other nationality than Polish, and it would be such a flippin shame if I wouldn’t speak Polish. I probably would never learn it because it would be too difficult, so my brain would be so much poorer, and would I want to learn languages as I do know, my start with it could have not been as easy with a less complex mother tongue. πŸ˜€ Living in Poland has its downsides just as anywhere else, but there are so many things that are just non-existent in all other countries and that are absolutely great.
  • That I won’t have to pay for the repair of my new computer. As you may remember, it got damaged during the delivery, so the company through which I bought it appealed to the delivery company so that they would cover the cost of the repair, because it was actually not working at all. In the end they said they’ll cover the cost of a new one. I’m also grateful for that somehow my laptop is still functioning. I really don’t know what’s going on with the drive, it’s not working properly and I really don’t like this limbo phase lingering on forever, especially that getting used to a new one will be even more stressful, but at least I do have a (more or less) working computer. Otherwise my brain would stop working. πŸ˜€ Okay, maybe not straight away, but not long afterwards. So I hope I can keep it (the computer) alive as long as it’s necessary. And I’m doing something on it most of the time so I bet it’s exhausted.
  • That my airways are doing better. This time of the year is allergy time, and then it’s very easy for me to get my seasonal bronchitis. It felt like I was going to get it very soon but to my relief I’m feeling much better, and hope that doesn’t mean the bronchitis thing is just going to be delayed, but that it won’t come this year.
  • (mentioning self harm and other stuff, nothing graphic. Please skip if you feel it could be triggering) My bed. I spent all morning in bed and got out of there long after noon. I’ve been in a shithole and just didn’t have the mental energy to drag myself out of bed whatsoever, and the perspective of having to interact with people was overwhelming. So, when you can’t get out of bed, it’s good when you have a comfy, double bed like I do. I’m still rather shitty though more functional, generally that doesn’t happen often to me that I seriously can’t get myself to do things, I often struggle with it but can do it in the end, so today was pretty hard. I’m just feeling emotionally overloaded lately and my inner critic Maggie is having a hyperactive phase or something, she’s hyperactive most of the time but sometimes more than ever and then I feel like annihilating us both. Oh and another thing I’m thankful for that is related, I’m thankful for not cutting at all lately! I’ve managed to go no cutting since July which is not my life record but at some point this weekend I was sure I’m gonna do this but I didn’t. I guess apart from my will-power what held me back was that now I have that weird sore thing on my leg I’ll have more than enough scars on my legs, and I usually cut my legs because it’s not very likely to be noticed. I guess the cutting crisis is over for now so that’s good. I’m not sure why I’m having this overload thing right now, I guess just because I haven’t had for quite long so my brain decided it’ll be the right time, and I suppose a lot of small things triggered it.
  • painkillers. I’ve had a bit of a headache today, not a strong one but annoying enough for me to decide to take something for it as I had a hard time focusing on my writing. Luckily it helped as now it’s lessened and hopefully will go away completely soon.
  • My Inner MishMash Readership Award. I’m so excited about making it. It’s a long weekend now but hopefully tomorrow I can get the last things I need for it and then will be sending it out and revealing the winners.
  • Misha. Misha is such a tremendous support for me. For the last few days he’s been very moody, but he has his cuddly moments now as well when he wants me to cuddle him for like 15 minutes and is so cute then. It is rare for him so the more I appreciate it.
  • my Dad. I’ve been having a bit hellish times with him but that makes me feel like the more I should include him. I’m very grateful that he employs me, and helps me in a lot of practical ways, though being around him is a real test for my patience more and more, gradually and when I’m having those emotional overloads and all that self-loathing stuff I’m particularly easy to get angry with people as well.
  • my mum. Just like my Dad, she is very practically supportive of me so I wouldn’t manage without her, especially that she is my proxy when dealing with people, which I appreciate hugely and can’t imagine what my life would be like without a “peopling” proxy hahaha.
  • All my blogosphere friends and penfriends. They make it a bit lighter in the shithole. As I said, my family is brilliant but I can’t really talk to them about most of the stuff that is going on in my brain, except for with Mum about some of it that she can relate to in any way, and it’s also extremely hard to reach out to people when I’m feeling like I do right now. So it’s good that I have people online these days. Even when I can’t or don’t know how to talk about my mental health struggles it feels good to just be able to chat with someone who thinks similarly, and it makes a difference when you know you’re not alone.

If this list feels a bit forced to you it’s because it was, haha. But I just felt I needed to write something and I guess we should be grateful for even the smallest things, shouldn’t we? πŸ™‚

Question of the day (10th September).

Hi guys! πŸ™‚

Here’s another family related question I have for you.

Do you stay in touch with your extended family? If so, how?

My answer:

Not all of them, but my grandparents, most aunts and uncles and some cousins. Our family on both my parents’ sides likes to get together so we see each other at different occasions, like birthdays, name days or such. My social anxiety and other things often make it difficult for me to be around a lot of people for a long time, it’s overwhelming, and, I have to say it, it’s frequently also boring because I don’t really have the close connection between me and my close family, so there’s not much common ground between me and most of them, and sitting at the table for hours and listening to/trying to engage in conversations I don’t really feel a part of or don’t have any real interest in certainly is boring. Eating around many people makes me feel anxious too, and anxiety makes me not hungry at all so it’s stressful if you don’t want to offend someone and eat at least something. And talking to more than like 3 people at once is hard for me, let alone when there are groups of people scattered around the room and each of them talking about their own thing, so I usually feel way more alienated and lonely in such situations than I do when being on my own, and I hate hate hate feeling lonely while being around others, and usually I end up just listening to people and forcing myself to smile all the time. And that’s largely why I often avoid those family gatherings if it’s not necessary for me to be there and if I can avoid them. Also most of us live quite close to each other so we sometimes bump into each other on the street or on similar occasions.

How about you? πŸ™‚

Working On Us – self care.

It’s week #12 of Working On Us, a mental health prompts series hosted by Beckie of

Beckie’s Mental MessΒ 

and the topic of this week is self care. Gonna be tricky, but let’s try. I’m going to participate in prompt #1. Here goes.

 

  1. Were their signs of your self-care routine lacking before you were officially diagnosed with a mental illness/disorders? – Yes, definitely, especially that all my official mental health diagnoses are relatively recent. I think I’ve struggled with self care my entire life, and not only due to mental illnesses. For a long time I wasn’t concerned about my appearance at all, which had surely to do with my blindness. Since I didn’t look at people and care about their appearance, why the heck would they look at me and care about mine? And I just wasn’t interested in that. I am still not, and I’m still not particularly caring about my appearance, when I feel OK I just do the minimum to look OK, I never do makeup at all, I hate clothes shopping, I don’t even do this myself, my Mum likes similar things to me in terms of clothing and she knows what I like and look OK in so she is my stylist as I say. Then when things with my mental health started slipping down fast, which I can’t even tell now when exactly it started happening, my self care routine slipped down too. It’s all very complex and layered and not even fully understandable to me why I experience all the difficulties with self care that I experience. As I said in a way it’s that I don’t care, then I’ve never had healthy self-esteem so on the other hand I feel sort of like even if I did care how I look like, I don’t deserve such things as self care, my inner critic cringes even at the sound of this word. I’ve got a deeply ingrained conviction in my brain that I am very emotionally weak because of what happened to me and how I reacted to all that, and also I hate feeling vulnerable and showing my vulnerability both because it makes me feel weak and even more insecure around other people. And then there is depression, which sometimes just makes my self-esteem even worse, sometimes it gives me so many other things to care/worry about that I just don’t find the time and space for self care and it feels very unimportant, or I don’t have the energy for it. And on top of that, there is the fact that I am not very independent, I need relatively much assistance with a lot of things, well it’s hard to make comparisons especially that I hate comparisons but what I mean is that I often need at least some help with certain self care activities that a fair few blind people I know can do on their own, and there are probably other things involved too that I either can’t think of right now or don’t fully realise. So when my mental health started slipping down, I started doing things like not eating on purpose when I felt hungry, not for weight related reasons but I’d say as a way of punishing myself but also distracting from what I felt, my emetophobia which was very bad at that time played also a role in it. It wasn’t like I wouldn’t eat at all and I tried not to make it obvious but at some point one of the staff at the boarding school noticed some things and was worried I am anorectic though I wasn’t. I often deliberately didn’t do things that were bringing me pleasure when I could do them, and I started self-harming, though in fact I was doing mild self-harm a lot of the time since I can remember. Pain has often been comforting for me or at least distracting, or my inner critic whom I call Maggie in English would just punish me this way. Or I would do things like when I felt cold I deliberately didn’t put warmer clothes on either to distract from my feelings or to feel that weird and crazy satisfaction that I am doing something against myself and that I could manifest how I hated myself. A lot of those things have gotten milder now or disappeared because my life circumstances are now different and my self-awareness is a little bit better.
  2. Did you (or) do you suffer from low self-esteem? – Yes. One of the things I’ve been diagnosed with is AVPD (avoidant personality disorder) which is very tightly related to having very low self-esteem. I really don’t like to talk about my self-esteem because it makes me so much more vulnerable and it’s not fun when people know such things about you, the more that deep down I have a feeling that they already know it because it’s obvious, but also because it’s hard to talk about it honestly in an open and raw way and not sound whiney and I hate sounding whiney. I try to change it on my blog where it’s much easier, but still difficult, hence this post is a little bit tricky for me. My inner critic Maggie is very good at her role and I have that niggling, snarky feeling about myself always there in the back of my mind. I do have times when my self-esteem goes higher, sometimes for a while it goes veeery high if there is something that makes me feel really good about myself or accomplished but then it doesn’t take much to crash in a big way and I end up self-loathing. When I feel more depressed or overwhelmed with all sorts of feelings I loathe myself for days or weeks very intensely and then self care is more challenging and it’s hard not to self harm.
  3. Is there (or) have there been stages of guilt when not properly taking care of your self-care routine? – Hm, well, I deal with guilt a lot while depressed and then it doesn’t need a specific reason for me to feel guilty, but I guess I never or very rarely feel seriously guilty specifically because of lack of self care, unless I look really horrific or something happens because of it that affects other people in a bad way.
  4. (You can refrain from answering the next question if you wish to).Β  What was the longest period of time between taking a shower, and/or brushing your teeth? – I try to always shower or take a bath, I’d have to be suuuper unstable not to do it or extremely wiped out and my energy rarely goes that low solely because of mental health as I only have dysthymia and not major depression so it’s not normal for me to feel so very drained. Taking a shower actually often helps me to feel better and calmer. Sometimes when I’m really depressed/overwhelmed/self-hating I only have a very quick shower just to get it over with as quickly as possible, or in turn I can sometimes stand in the shower for ages with my brain either running a mile a minute so I’m too absorbed in my own anxious/dark thoughts to do anything else in the meantime, or frozen because of the depression, and I go out of the shower and realise that: “Aha, cool, I didn’t even wash myself. Oh well, who cares. Let’s better go off to sleep”. πŸ˜€ So, completely without showering, I remember a time when I was 15 and didn’t shower for 3 days, and that’s the only single incident with not showering for a few days because of mental health stuff that I can think of. Brushing teeth is tricky. I hated doing it as a child for a while because of the sensory feel of it, then when my emetophobia got bad when I was a teen there was a situation when I saw my Dad brushing his teeth, and he was brushing his tongue so very energetically that he gagged and I was like “Oh no, no teeth brushing for me anymore, I don’t want this to happen to me!”. And it was really tough for me to brush my teeth until my emetophobia calmed down a little bit and I was able to talk some sense into myself that people don’t normally just gag when brushing their teeth. πŸ˜€ On the other hand, because I hate having things other than food in my mouth, also because of that same fear, I am also scared of the dentist visits and such, so I try to take care of my teeth. But still, when I feel shitty, I don’t care and I don’t brush my teeth or I do it very superficially. I can’t remember for how long it was when I was so scared of brushing teeth because of that gagging thing, but I can sometimes go without brushing teeth for 3 weeks or so. Then when I don’t do it for so long, I easily plain forget to do it sometimes, as I can be very scatterbrained. I am one of those lucky folks though because I’ve never even had a single cavity or any such things.
  5. If you are supposed to be going out for whatever occasion, are you concerned with your over-all appearance?Β  (Or) Do you take care of your self-care needs before leaving the house? – It depends whether I am concerned or not and how much on how I’m feeling, if I am concerned then usually because I feel so self-conscious than because I want to look well. I do basic self care things before going out though even if I’m not concerned, just for the peace of mind, because I should. πŸ˜€
  6. What advice can you give to someone who is having difficulty with their self-care routine?Β  (Note: If someone was to ask for your advice, what would you share with them?) – Oh gosh! That if they need a good self care advice, they shouldn’t come for it to me, because I’m anything but a self care guru. πŸ˜€ No, I’m kidding of course, but it’s really hard to advise people on something you struggle with yourself, it feels hypocritical. Wait a moment, I have to think… I think what I can say is that you are certainly not alone with it, most people with mental illness struggle with self care, and it is OK to admit that you are struggling, that you don’t feel like focusing on your appearance, that you are not into it at this moment, it’s OK and it is valid, and you shouldn’t feel ashamed or guilty about it if you do, because it just happens, it’s not something you chose to happen, did you? It’s important how you look, but it’s not the most important thing in the world, not the most important thing about you either, and you don’t always have to look glamourous, especially that it is such a subjective thing, and, let’s be objective for a second, most people care and worry too much about how they look to judge everyone else’s appearance and whether it is appropriate. And that everything in life is transient, so there are big chances that you won’t always struggle with it as much as you do right now. Uhhh what a lengthy post haha!

Working On Us.

This week, I’m again participating in Beckie’s mental health prompts series Working On Us over at

Beckie’s Mental Mess.Β 

This week’s topic is suicide, which is a very difficult and often triggering topic for so many of us, so please read this post carefully or do not read it, if you feel like it might affect you in any negative way.

I am going to participate in the prompt #1, which consists of the following questions.

  1. Have you ever experienced suicidal thoughts? – Yes. I’ve been experiencing suicidal thoughts and ideations since about the age of 9-10, which is also roughly when I was diagnosed with my first depressive episode by a psychologist. Back then, and throughout my early teenage years, my suicidal thoughts were the strongest.
  2. Have you ever attempted suicide? – No, but I was very close to attempting a few times. There were a few things that were holding me back back then. First of all, I am Christian, so I always felt like I needed to be strong for the sake of that, and that if I’d die by suicide, it wouldn’t necessarily mean things would become better for me. Another thing is that I was always scared of overdosing, which would be in practical terms the easiest way to attempt suicide. I’m scared of that because of emetophobia, I mean the consequences I’d have to face if my attempt would fail, being cleared and all that. Also I’ve heard some awful stories as a kid, of people who overdosed on meds and ended up as pretty much vegetables with very damaged brains. If I am to live in this world, I want to have my brain working at least, as it is my shield and weapon. When my suicidal ideations were particularly severe – that is when I was 10 and recovering from an Achilles tendons surgery – looking back on that time I think that if I was given a chance, I could very likely make an attempt, but I had my both legs in huuuge plasters and was very immobile and relied on others for a lot of things, so, although I had plenty of ideas, fortunately they weren’t that easy to undertake. Besides, so many people say suicide is a sign of weakness. I think you actually have to be a strong person to be determined enough to do it. I don’t consider myself particularly strong.
  3. Were you ever hospitalized for a suicidal attempt and/or ideation? – No. I rarely even talk to people in my surroundings about such things in a serious way, so back then no one actually knew I was suicidal, just that I was depressed, and now things are better in that respect so I wouldn’t need to be hospitalised at this point.
  4. When you were hospitalized, what was your experience like? – N/a.
        1. Do you ever feel suicidal ideation since your release? – As I said, I’ve never been hospitalised for being suicidal, but yes, even though I’m doing better than I did in the past, at least in terms of suicidality, I still do experience suicidal thoughts. They’re usually of a passive kind though, unlike in the past, unless I feel really depressed and overloaded, then sometimes I can still feel really bad active suicidal ideations. But it’s just a mere echo of what it was like for me when I was younger, that was hellish.

 

Question of the day.

Hi guys! πŸ™‚

Have you experienced any minor annoyances today?

My answer:

Well, the last couple of weeks hasn’t been particularly easy for me and I’ve had a lot of particularly low depression, and now a lot of anxiety. Overall I guess things aren’t bad, on the outside, so I can’t think of any external minor annoyances that would be major enough to actually mention them, but my brain is not very cooperative at all and all messed up, and I could say that’s what annoys me the most. Just every single thing stresses me out or I overthink it for what feels like ages and can’t stop it.

How about you? πŸ™‚

If We Were Having Coffee… or whatever else you fancy. #WeekendCoffeeShare

#WeekendCoffeeShare at Eclectic Alli’s.

Welcome to another coffee share, quite an early one, especially as for me, but I haven’t been too regular with posting lately and I might not be for a few more days so I thought we’d have another coffee share as some longer, catch-up post.

I’ve had my green tea already in the morning as I woke up early and needed it badly so I’m now having sparkling water with lemon, and very yummy Polish biscuits called Delicje – they are round sponge biscuits covered in chocolate with a jelly filling, mine are with orange jelly and as much as I love Delicje, the orange-flavoured ones are the only ones I find acceptable, OK, raspberry ones are OK, but just OK. – Help yourselves! I’ve also made a cake earlier today – a sponge cake with jelly and raspberries – (wow I’m kinda monotematic today with sponge, fruit and jelly, perhaps someone has an idea why? :D). It’s my name day on Sunday, hence I made it. And Mum made yummilicious croquettes (I don’t even know if that’s exactly the same thing in English, but oh well) with rice and mushrooms. I love them, and so does Olek, so if you’d like to sample, you need to hurry as he’ll soon be back from work and there will be nothing left. πŸ˜€ And I guess that’s all really yummy food (in my opinion) we have today, and you can bring something you have to our coffee share to make it more diverse than just sponge with jelly. πŸ˜€ Get yourself a comfortable place to chill and let’s start our chat, shall we? πŸ™‚

If we were having coffee, or not coffee, I’d ask you how things have been going for you and what has happened in your life this week…?

If we were having coffee, I’d tell you that I’m feeling like rubbish today. Not the most optimistic note to start a coffee share and a weekend in general but what can I do. I don’t even know why. I woke up feeling OK, like near the baseline, but things have started spiraling down since early afternoon. I can’t get to why that is really. I feel depressed, and even a bit anhedonic, which is not my usual definitely, even if I am badly depressed I can often still feel the pleasure from things I love to some degree but I just feel kind of apathetic and sort of disconnected and don’t care about things too much, I also feel lonely because I feel disconnected, and don’t know what’s going on with my brain. Not like it would change a lot if I knew, and like it matters to me at the moment very much, but it’s always nice to be able to have a clue at least about your brain. I’ve also been having extremely sad and emotional dreams for a couple days which I don’t get either. I mean, scary dreams – yes, – intense, in whatever way – definitely, – strange – all the time, – but I don’t normally have plain sad dreams in which I’d feel all emotional and vulnerable, and yesterday I actually woke up crying. Today I had a sad dream too but it wasn’t quite as unsettling and I mostly remember the emotions of it, not the plot, so I didn’t think much about it, but the phenomenon of such an abundance of sad dreams is interesting. I get emotional dreams like this sometimes around the periods of time that used to be difficult for me in the past but now it’s not the case. Sometimes I wish my brain could speak, or write, or something. I’m so used to bottling up stuff that now I often don’t understand what it’s trying to tell me, ’cause I suppose it must want something from me if there’s no straightforward explanation.

If we were having coffee, I’d tell you we’ve had another hot week here, but thankfully today it’s very nicely fresh and chilly, apparently only for a while, Dad says we’ll have another hot day on Sunday. But it’s a relief for all the people I think that at least now it’s cooler.

If we were having coffee, I’d tell you that at the beginning of this week, my router died. I had to get a new one and installing it and configuring was quite a pain, and I had a whole long boring day and a half with no Internet and not much to do, but now things are back to normal.

If we were having coffee, I’d tell you that Misha has a new hiding place, and this time, it’s a really good one, ’cause we still can’t figure out where it is, after over a week. He just disappears every day for a good few hours and then suddenly comes back out of nowhere. It’s amazing how after 3 years of living here, he still hasn’t ran out of ideas! πŸ˜€

If we were having coffee I’d tell you that I’m going to another meeting – like the one I went to earlier this month, in that sort of foundation or association that Zofijka’s friend’s mum works in – this time with a woman who used to live in Ireland, she’s Polish. That’s going to be very interesting for me for sure, since I love Ireland! I’m quite anxious again, even though I’ve already been there and it went well. It’s going to be on Monday.

If we were having coffee I’d also tell you that Zofijka’s friend’s mum was supposed to visit us yesterday, and then today, or on Sunday, but it seems like nothing will come out of it. While I’m happy for her to come over, I’m also secretly relieved that she won’t be coming today, as I’m definitely not in the mood for socialising whatsoever and wouldn’t be able to do it right the way I’m feeling now, just normal smalltalk feels so depressing and exhausting at the moment. As if I ever was good at smalltalk hahaha.

If we were having coffee, I’d tell you that we’re most likely going to the beach on Sunday, which I’m quite glad about, the sea usually makes me feel very good and I feel a strong connection with it, and I love being by the sea. We have our very special beach that is quite far away from us, it’s situated in a village in SΕ‚owiΕ„ski National Park, and it’s really clean and tranquil there, there are few beaches that are that quiet and clean. And we had a plan of going there, but because it’s apparently going to be rather hot, and the ride is long there, and then you have to walk 2 km through a nature reserve back and forth it would be quite tiring and time consuming compared to how much time we’d actually spend on the beach, so we probably won’t be going there and somewhere much closer and filled with people. πŸ˜€ In any case, I hope it’ll be cool and I’ll feel less depressed by then. Also as I said it’s my name day on Sunday so that’s going to be a nice way of spending it I hope.

What would you tell me if we were having coffee? πŸ™‚