Question of the day.

Today, my question for you guys is:

How often do you read? Where do you get your books? How do you decide what to read, next?

My answer:

I read ALL THE TIME. Well whenever it’s physically possible while doing other things. As I’m blind, I read (or some of you would probably prefer to say listen to) books usually on a specialised device called Plextalk Linio Pocket (I may post a picture of it just for fun sometime later as although it’s nothing very unusual, I’m sure not many of you could ever see it before 😀 ). It’s small and portable and I can either have audiobooks or talking books in a special format called Daisy on it or I can read ebooks or any other text files with speech synthesis and that’s how I do it most often. I also can read on another device called Braille-Sense which is basically a Braille notetaker with a Braille display, you can read and write in it and it has some APPS and if you write in it you can save it to a text file so it’s not like you have it only written in Braille. I like to read on my own, I don’t do it as often as I listen to books, but I like it even more ’cause I just simply prefer to read than listen usualy, especially if I read in another language, other than Polish I mean.

So when I have time, I read in bed in the morning before I get up, then I read from time to time throughout the day, I read when I’m waiting for something or someone or am bored and have PlexTalk with me and can do it. I always read before falling asleep in bed, very often in the car, and almost always when I can’t sleep at night. So there are lots of opportunities to read, I think.

As for where I get books, it can be problematic at times. Usually, the first place where I go to if I want to read a speciffic book is the website of the library for the blind that we have here, the main library, they have an option that you can simply download any book that is in their collection if you have sent them the proof of disability, speciffically blindness, and if you live in Poland. These are accessible books, but of course not all books are there, and books in other languages aren’t there, well only a few, and certainly not in Swedish or Welsh. 😀 So if something isn’t there and it is in Polish, I usually will need to either just buy it as an ebook if it is available in such form and if it’s in an accessible format, or would have to get a physical book and then scan it, which I just genuinely hate as it’s a bit of a sisyphean task, especially if you’re totally blind like I am, ’cause apparently people with some sight have it a bit easier. So I only scan books that I really really want to read. With English books, I use Audible and Bookshare and have just started with both this year. With Swedish books, an immense help was my Swedish teacher, who borrowed me a lot of books when he was teaching me and I have scanned them, but as I don’t know any blind Swedish people I don’t know how they really get books, well I know they have some organisation like NFB is in US or RNIB in the UK or PZN in Poland and they can have books from their library, but not people from outside the country, so, it sucks a bit. With Welsh books it’s just a pure luck if I get one and I always appreciate it even if it’s not my level yet. There’s so few Welsh books overall so I’m always extremely happy if I succeed to get something or if someone is so nice to help me. I recently got Mabinogion in Welsh, but I’m far behind with the vocabulary yet, so it’s waiting for me.

The way I decide what to read next, is very simple. I have quite a lot of books on SD cards, which I use with my devices, and usually I just read them in alphabetical order, unless I need or really want to read something speciffic at a certain time. And as I still get new books, I never run out of them. As for how I choose books I want to read, I use either our Polish site called BiblioNetka, which is basically like your GoodReads, or I use GoodReads and then check the original title in BiblioNetka whether it’s translated into Polish and if the book is available anywhere for me, then I get it. Also I regularly check new books in our library and get what sounds like I might like it or what I’ve been waiting for, and sometimes I’ll read what my friends or other people I know read if we have similar tastes.

How about you? 🙂

What’s your favourite?

Today is #WYF day at Revenge Of Eve

and the question is about your favourite colour.

Well when I was blogging in Polish on the platform for the blind I once asked people this question and it started a long discussion about how strange it is when people ask the blind about their fav colours. I’m totally blind since birth and I don’t see anything strange in it. I’ve always had my favourite colour, or, as it is now, even a few colours. What is really strange is that although I’ve never seen any colours obviously, I have some things I associate with them or imagine when I think about them and according to many sighted people I talked about it to, they are pretty accurate to how these colours really look. I know which fit with which, which are lively or calm, can distinguish some shades in my imagination and some blind people who have seen my stories say that my descriptions of people’s appearance are too detailed to be written by a blind person. 😀 I don’t know any other congenitally blind people who can’t see colours who have it like that but that’s how it is. for me and I think I’m glad of it. I suppose it may be somehow distantly related to the fact I’m synesthetic.

When I was a little girl, I loved red. Now red is my least favourite colour. I dislike very bright colours and don’t wear them or don’t have them in my room. I would feel awfully with the consciousness I am wearing something brightly red. 😀 It’s absolutely weird but I find this colour somewhat… anxiety provoking? Really hard to explain it.

Now, my favourite colours are: black, white, blue (all shades, or all I’ve heard of), green (excluding some shades) and grey.

I like to be surrounded by these colours, have lots of objects inn these colours or wear clothes in these colours. My favourite flowers – which I believe are called muscari in English – are blue and so many beautiful things are blue. As my favourite colour to be surrounded with I would pick green, my current room is dominated by green, while the colour I love to wear the most, feel the best wearing and people say I look good in is black. I am rather girly and love wearing dresses and almost all of them are black, except one.

ah, and I like silver too, but mostly just in jewellery.

So that’s it about my fav colours.

 

Question of the day.

What easy thing do you most often screw up?

My answer:

Oh, really many things. Lots of objectively fairly easy things to do around the house seem practically not doaable for me at least on my own, or take me lots of time and the effects aren’t really impressive. Same with some other things requiring good fine skills for example. My spacial orientation is rubbish too, also due to issues I have with my labyrinthum, I hope I spell it right. Ah, but something I screw up most often are casual talks with people or smalltalk. It either bores me to death or scares me and I VERy RARELY can do a good job of it.

How about you?

A quick update.

I didn’t write anything about my life for quite a while, recently I feel like I’m behind everything, so decided to do it quickly today as I have a bit of free time on my hands.

So I’m back in the routine since last week, my winter break has finished and all goes relatively well. Besides being busy with school, my languages, family life and other stuff, last week I also went to the OM doctor. I think I didn’t mention yet that I am working since about two years in my Dad’s company as an office worker. My Dad is a tank driver and delivers fuel. I don’t do much and it’s surely nothing like the job of my dreams, but I can earn some money which I can save for the future or spend for some things just for myself which I really appreciate and I think I’m lucky I’m in such situation. I suppose lots of disabled people would love to have such a start in life, no matter what they’d do next. So obviously I need to go to the OM doc every year, I had my bloods taken and other things like that and then I talked to him. At some point he wanted to measure my blood pressure, he took my arm and was very astonished why my skin is so dry. Actually, I was astonished too, because I never really thought it was dry. I do have hypothyroidism, but I always thought that, especially as for a person with hypothyroidism, my skin is definitely OK. So I told him I have thyroid issues and maybe it’s about that, but he said he doesn’t think so. My Mum, who was in there with me, was astonished too. He asked her if it feels like her skin is dry. She said that no, absolutely not. We both were actually convinced our skin is very smooth. But he asked her to show him her arm and he said that it is dry. So that amazed us even more, like I didn’t know whether to actually believe him. And he said he’s a dermatologist, besides being an OM doc and we could make an appt with him as a dermatologist if we wanted to. So then I told him that although I’ve never thought about myself as having any bigger skin issues, recently I have often pretty disturbed sleep because of being very itchy at night and Mum said the same is with her, which I already knew about. So he told us there is apparently a genetic condition and when you have it, your skin tends to be dry and the problem increases in winter when you have the heating on or if you stay in air conditioned rooms for long periods of time. I surely am not in air conditioned rooms often, but obviously we do have heating on now when it’s winter and that itchiness occured in me very recently. He also said you can have skin infections frequently, can feel more itchy while having shower or when you’re stressed and that’s exactly what me and Mum experience from some time. So we decided we’ll book an appointment with him. I’ll have it tomorrow. I’m interested what he’ll tell me and what’s this condition, I’ve never heard of it. Sometime ago I wrote about the infection I’m having on my leg and maybe that’s why it’s occurring. So I will show it to him and maybe he’ll have any idea what to do with it, as I definitely don’t want to have it again and want to heal it as quickly as possible, I want to be able to horse ride again, but it’s too painful right now so I wouldn’t have any pleasure of it. So that’s it about my appointment.

As for other things, I finally got accepted to write my final exams in the school for the blind and not the school I’m attending to. My school is a mainstream school and it would be hard for them to technically adapt the exams for me and I would feel challenged and both me and my Mum think like I’d have quite a lot of additional stress while I’ll be already stressed out just with exams, so I’m glad I don’t have to worry about technical stuff now.

The only thing I am worrying about in this case (besides passing the exams of course) is that there is a boarding school as well. While having exams, me and my Mum will most likely have to stay there. It’s not the boarding school I was in, it’s a completely different school and I will stay there with Mum and Zofijka, but I feel kind of stressed about that. I feel like it can be a bit triggering. And I feel weird admitting that actually. I know it’s another school, other circumstances, but seems like my brain doesn’t know that. And that makes me wonder whether if simply staying in the surroundings resembling my school, where I didn’t feel well emotionally, makes me so anxious, even if the circumstances will be completely different, whether it means I have some more trauma around that or what… It makes me feel really weird, it was a really hard time for me, being there, lots of hard stuff, but I wasn’t abused there, well there was a time when I experienced emotional abuse from the staff, but my Mum realised what’s going on and it stopped reoccuring. But other than that, nothing really dramatic happened, no one did any harm to me at least not consciously. So I would really like to know what it’s all about. And, actually, that isn’t the first time and situation in which I’m wondering about it. Am I more traumatised than I think, or just so horrribly emotionally weak? I don’t know if it makes sense for you, I’m not even sure if it makes sense for me so… well it’s just so strange. 😀 But there’s still some time until May, so hopefully I’ll be able to pick myself together a bit until then. I didn’t talk abaout it with my Mum, but I talked briefly with my Dad. Not about my emotions around that, but just asked him if he would be able and if he would like to go there with us. Because if he could, it would be easier to move around and I know that my Mum would prefer it too, then we could stay somewhere else outside the school. But his work hours are very unpredictable so he didn’t tell me anything in particular and I know he would be bored to death there even if he wouldn’t have to work, so my question was actually rather theoretic.

And the last thing I would like to mention about is that last week I got a wonderful gift from my Maths tutor. She is a typhlopedagogist and surdopedagogist and because I am learning on my own outside of school, just at home, but having trouble with Maths, I have lessons with her two days a week and she explains stuff for me. She is also helping Zofijka with her Maths, although Zofijka goes to school regularly and doesn’t have any special needs, but has issues with Maths and it’s just easier to pay for one tutor than for two. And Zofijka is absolutely fascinated by her. Anyway, what I wanted to tell you is, last week on Tuesday, when she came to us she had three large boxes of gem stones for me! I was so excited and I really appreciated the fact she remembered that I collect gem stones. After all she’s only my tutor, but she’s really involved and helpful. Some time ago we chatted after the lesson and she saw my huge collection and I told her a bit about it and showed her many of my stones and she mentioned her brother was collecting gem stones and other minerals when he was younger and now no one cares about them so she brought them to me. And there are a few pretty rare minerals, some which I looked for and couldn’t find anywhere, so, yeah, I was extatic. 😀

Today I’m having a really peaceful day finally which I really appreciate. I spent a lot of time with my Mum. Zofijka has sinus infection so she’s still at home and we played a lot. And although I had lots of weird and sometimes scary dreams recently, I feel really well today.

How is it going for you guys? 🙂

Question of the day.

Today my question for you is:

What’s your biggest screw up in the kitchen?

My Answer:

I am not very experienced in cooking, in fact, I’ve never prepared any meals completely on my own. I had some cooking lessons at the boarding school or we were doing some food for ourselves with other students, sometimes I help my Mum with most basic things, but generally I was never good at cooking, maybe because my fine skills are a mess, and I often felt kinda discouraged because I never succeeded in it and felt like it’s something impossible for me to learn. But although sometime ago it was a bit frustrating for me, now I don’t care that much about it, I don’t need to cook for myself, I live with my family, and there still are caterings, restaurants etc, lots of able-bodied people can’t cook as well.

So that being said, I suppose almost every activity I would try to undertake in the kitchen without assistance, would likely end with a massive screw up. The one I can recall at the moment was when I wanted to help my Mum to cut the carrot for the salad and almost ended up cutting my finger out, luckily it didn’t happen, but I hurt it pretty bad and there was a whole lot of blood allover afterwards and my right hand was non functional for quite a while. 😀

How about your screw ups? 🙂