I can’t believe.

   I am writing this post in memory of Ashley Leia whose family shared the above post on her blog and which I have just found out. I don’t even know what to say, because I feel utterly shocked and can’t think, but I really wanted to mention this on here because not only was she a great and very competent blogger in her niche of mental health, but also was a regular on My Inner MishMash and a two  times (that is every single time, so far) MIMRA winner.

   Ashley had been MIA for several weeks, which I had a very bad feeling about, so finally wrote to her a few days ago. Turns out I was way too late… 

   I can’t imagine what her family must be going through. 

   I hope you are at peace, Ashley… I miss you and will be praying for you a lot. 

Song of the day (7th September) – Cornelis Vreeswijk – “Hopeloos Blues” (Hopeless Blues).

   For yesterday, I planned to share with you this song by Cornelis that I really like. Or actually, I planned to share with y’all the Swedish version of it mostly because that’s what I know better and actually understand the lyrics and also like slightly more (not that I have anything against the Dutch version, it’s really good too), and then perhaps share the Dutch one as well more for comparison or something, but, surprise, surprise… the Swedish version doesn’t seem to be available to stream anywhere! :O I was totally unaware of this before I started preparing for this post, as I usually don’t listen to Cornelis online, because I have his discography and a lot of live recordings and just all kinds of stuff I could get anywhere on an SD card, and I was a bit shocked, because it’s from a fairly popular album of his – “Poem, Ballader och Lite BLues” (Poems, Ballads and a bit of Blues) – which is one of my favourite albums of his, by the way. The album technically exists on Spotify, but only some tracks are actually playable so they’re either deleted or have location restrictions perhaps, and there’s nothing on YouTube. Even good ol’ Songwhip didn’t seem to find anything, all it found was either covers of this song, or wasn’t available despite SongWhip was showing a link to it. So quite interesting. And I guess it wouldn’t really be okay if I just shared a link to my own audio file with it even if I took it down after some time. 

   But yeah, we still have the Dutch version! I’ve shared very little of Cornelis music in his native language, and he’s apparently a lot less known in the Netherlands than he is in Sweden, so that’s a good opportunity to share something Dutch by him. 

   As I said I really like this song because it’s so freakishly relatable. I think anyone who has depression, especiallly of the very long-term, chronic, lingering or constantly recurring variety that sticks to your brain like thick, crusty mucus (ewww Bibiel!), whether it’s dysthymia like for me or major depression or bipolar or anything like that, will be able to relate to it, and I guess particularly so if anhedonia is in the picture for someone as well, since this hopeless blues basically steals from you anything that has any kind of meaning or that you like. Another way in which it’s relatable for me is also that hopeless blues’ parasitic relationship with Cornelis/the lyrical subject reminds me in a lot of ways of my sleep paralysis and sensory anxiety “friend” whom I call “Ian”  on here, who is not a blues as such but also follows me everywhere and doesn’t  let me forget about himself for too long and can spoil anything fun. 

   Before I realised that there’s no Swedish version available that I could share with you, I already did a translation of it into English, and I don’t like my brainergy to go to waste so even though I’m not sharing the song in Swedish with you, I’ll still share the translation of it. The Dutch version isn’t very different from what I know, just some details are different that don’t really change the whole point. 

   

Hopeless blues
Has moved to where I live
He is lying under the bed, chewing on my shoes

It was late at night
I came from somewhere
It was late at night
I came from somewhere
And when I turned the light on
There was hopeless blues sitting in the corner
Hopeless blues
You are a parasite
Hopeless blues
You are a parasite
What are you doing here?
Why did you came here?

Every morning when I wake up
Hopeless blues lies in my kitchen
Every morning when I wake up
Hopeless blues lies in my kitchen
He drinks up my coffee
Nicks my last cig

He borrows my clothes
And he borrows my guitar as well
He borrows my clothes
And he borrows my guitar as well
He scares away all the ladies
Who come here and visit

My home is a desert
My life a parody
My home is a desert
My life a parody
I have been saddled with hopeless blues
I will never be free
Please, Ms. Therapist
I can’t take it anymore
Please, Ms. Therapist
I can’t take it anymore
May I ask hopeless blues
To move in with you? 

   Edited to add: 

   Hiya, T’is Bibiel from the future chiming in. 🙂 In addition to the Swedish translation shared above, now I also have a translation of the Dutch version for you, which was kindly written for me by Hans Heemsbergen

   Hopeless blues, lives where I live these days

Hopeless blues, lives where I live these days

He’s in my smoking chair and he’s playing on my gramophone

I was out one night, it was getting late my luck was gone

I was out one night, it was getting late my luck was gone

And when I finally got home, hopeless blues was sitting in a corner

 

Hopeless blues, you’re a parasite

Hopeless blues, you’re a parasite

What are you doing here because I really don’t need you

Every morning when I wake up he is sitting next to my bed

Every morning when I wake up he is sitting next to my bed

He drinks my coffee and he steals my last cigarette

 

He’s in my winter coat, he’s even in my guitar

He’s in my winter coat, he’s even in my guitar

All the ladies who come here think it’s weird

 

Hopeless blues, even in my beer

Hopeless blues, even in my beer

He wishes me good night wishes me good luck

Miss Curator, I’m tired of my life

Miss Curator, I’m tired of my life

I’m sending hopeless blues to your private office

 

Question of the day.

   How are you today? 

   My answer: 

   I’m definitely better than I was, say, even on Friday, but this whole week has been a bit crappy for me, mentally at least. I’ve been having loads of sensory anxiety stuff going on lately and feeling quite emotional for some unspecified reason, or perhaps actually for lots of different reasons, depending on from which angle you look at it, with self-harm urges on top of that, and now that all these things have quietened downn a little bit, mostly I’d say I’m just kind of blah. Usually Misha helps me a lot with the sensory anxiety, but now that the prozac is flushed out of his system for good, he’s become quite wired again as is typical at this time of the year, so he doesn’t really sleep in my room all that much or spend much time with me. 

   How about you? 🙂 

Is my glass half full or half empty? Or, Bibiel’s take on defensive pessimism.

   Let’s do another journal prompt-inspired post, shall we?! For today, I chose the following prompt from Hannah Braime’s collection of journal prompts called The Year of You: 

   Would you describe your glass as half full or half empty? 

   I figured that with so much toxic, overrated, farting sweet, bright red and just ewwww yuck positivity floating around the world, it won’t hurt if I share my perspective on the glass dilemma, which, based solely on how often people seem to misunderstand it, must be not a very common perspective to have. Besides, I already wrote about it briefly quite recently in this post, so why not expand it further. 

   Like I wrote in that post, people who know me a bit, even some who know me a lot like my Mum, often tend to think of me as an extreme, incurable, even “hopeless” pessimist. And that’s kind of true except it’s not, and not just because I am not hopeless. My brain is definitely  on the gloomy side, and I am indeed a fan of thoroughly thinking through all possible worst case scenarios of a situation, which sometimes ends up spinning into proper catastrophising. Also if I happen to be very anxious, especially for a prolonged time or over a lot of stuff at once or one thing that feels really difficult to deal with, it’s extremely easy for me to slip into ruminating and overthinking, which as far as I know are all classic pessimistic traits. Yet, I don’t think I’m a real, pure pessimist. Many people I know who declare to be or are seen as pessimists don’t seem to get anything good out of the mindset that they have. It only stresses them out, makes it difficult to enjoy the good things in life while they are lasting, and often is very toxic, creating a really unpleasant and tense atmosphere in their surroundings that affects other people around them. For me, ruminating and overthinking can naturally be very stressful too and I’d much rather not deal with them, depression is also really shitty, but I tend to consider these more like brain malfunctions, even if deeply ingrained ones and ones which have been with me for a large part of my life, rather than a  mindset, definitely not a fixed one anyway. Those brain malfunctions can surely affect my mindset, especially when I feel particularly mentally unwell and have very low mood, but they can’t fully replace it because they’re entirely different things. I hope that makes sense.

   My pessimism is not about constant complaining (not that I think there’s anything wrong with complaining as such, as long as there isn’t too much of it and something constructive comes out of it, like yourself feeling better after getting something off your chest), constant/excessive grumpiness, finding faults with everything/everyone or never being satisfied with the good things that you have or that happen to you. 

   So what is it? My pessimism is defensive, so aside from being a way of thinking, it’s also a coping strategy for me. I firmly believe that it’s a lot better to always prepare yourself for the absolute worst possible thing and keep your expectations rather low, rather than hope for the best. Hoping for the best might be easier during the waiting  for whatever is supposed to happen, but if something positive that you’ve been waiting for doesn’t end up happening, or isn’t nearly as good as you imagined, the crash down from so high up will most often be  a really unpleasant experience, and you’re ultimately left with nothing other than your disappointment, and possibly other difficult feelings, depending on a particular situation. Whereas if you don’t expect much, you can only go higher. You won’t end up dramatically and painfully crashing down from anywhere, but you can end up feeling very pleasantly surprised. And, as a defensive pessimist rather than a plain grumpy pessimist, if something does exceed my expectations, I try to appreciate it as much as I can, rather than be like: “Oh well, it’s just an exception from the rule, something will surely go wrong”. It may or may not be an exception from the rule, and something else may or may not go wrong very soon, but I try to be very appreciative and grateful for the things that do go well, and enjoy them nevertheless. In fact, perhaps a little paradoxically, despite being an anxious melancholic with dysthymia, I am also blessed with the ability of finding even small things in life enjoyable and pleasurable, and if my mood is somewhere around what I consider my baseline, I don’t have to try very hard to make myself feel these feelings or focus on it very much. 

   Similarly, when you’re awaiting something that you consider stressful or otherwise difficult, for example an exam like Sofi does tomorrow, I personally don’t think it’s a good idea to try to convince yourself for all means that everything will be fine. I think it’s worth considering things that might go wrong, so that when something does go wrong, you can handle it better emotionally at worst, because you’ve sort of already been through it in your brain, and prevent it from happening altogether at best. You sure can’t always think of every possible thing that could go wrong in a given situation and prepare yourself for everything, but still, going through a few different difficult scenarios in your brain before a situation takes place, even if the actual situation won’t look exactly like any of the things you imagined, can be helpful in handling things in my opinion. 

   I guess though that while this works for me, it doesn’t necessarily have to work for everyone. I guess if so many people promote positivity, positive affirmations and stuff, it must work for them. I only know that my approach works well for me. I’d tried being more optimistic, because everyone, and especially my Mum, says that when you think of good things, then good things happen to you, and when you think about bad things, then you get bad things. And I have no reason to believe that this is not the case for people who say so. But for me, most of the time it just doesn’t work this way. I can seriously count on my fingers all the times when my very positive thinking led to a very positive outcomes, not counting all the situations when I just had a very strong gut feeling bordering on certainty that everything will go well and didn’t feel like I needed to either think of worst case scenarios or force myself to optimism, because when I have very strong gut feelings like that, they’re usually right. Most of the time when I tried hard to think positively about something, the actual outcome made me feel really anxious and overwhelmed because I totally didn’t see that thing coming. Meanwhile, very often, if I think of all the possible awful outcomes of something, and think that one of them is probably more likely than a positive outcome, the thing ends up very positively for me. Not always, but very often. This is part of why I’ve always considered myself an almost ridiculously lucky person, ‘cause apparently I do everything to attract all the bad things yet so many good things happen to me and, more importantly, so many bad things that could happen to me, just don’t. 😀 Admittedly, I’m perhaps not as insanely, , incessantly, provocatively, in-your-face lucky as my optimistic Mum, but still extremely, miraculously lucky. So if my defensive pessimism gives me very similar results to those that optimists get from optimism, I really don’t feel like changing my  brain and re-learning optimism just because optimism is more well-seen by society. It’s also rather boring. 

   I’ve actually been using the term defensive pessimism to describe this before I even learned that there actually is such a term in psychology, which has been coined by Nancy Cantor. I guess mine is a bit different though because it seems like that official definition of defensive pessimism is a little more narrow, only viewing it as a cognitive strategy, whereas I’d say mine is a mix of that plus just a more general way of thinking that is quite stable, I guess like a personality trait, or an attitude or something…? Not sure how to describe it well. Anyway, when I read that defensive pessimists perform worse in experimental tasks when encouraged to use a more positive cognitive strategy, it made me think that perhaps that’s just how it’s supposed to be, not only with cognitive strategies but also the more stable attitudes – that is, whether you’re an optimist, realist, pessimist or whatever else there is, you should just follow your brain and think the way you’re made to think, or the way you’ve learnt to think, in order to make things go well for you and be successful, rather than twist your brain wires at uncomfortable angles to tweak your thinking to what most people consider best and risk electrocuting yourself in the meantime. – What do you think? 

   Interestingly, I guess I haven’t always been a defensive pessimist. Similarly to how I wasn’t always quite as introverted as I am now. I’m pretty sure that the little Bibiel, like below age 8 or so, must’ve been an optimist, and the defensive pessimism thing has developed later on as I was gaining  new life experiences. When I wrote a post about defensive pessimism on one of my old Polish blogs as a teenager (which I remember I called “A Recipe for Luck” 😀 ) I said in there that I thought the main reason for why I ended up being a defensive pessimist was that I often experienced disappointment when expecting to go home from school, or my Mum to visit me in there during a weekend, which often ended up being cancelled or delayed multiple times for all sorts of reasons, which was an absolute catastrophe for me every single time, and that this way of coping became even more strengthened during my recovery from the Achilles tendons surgery, about which everyone kept reassuring me that it will  be okay, and which I also really wanted to believe, but didn’t really have much of an idea at all what to expect, and the whole recovery thing was a lot more difficult than I expected and I was totally unprepared mentally to handle that sort of thing. Even though I remember writing all that with a lot of certainty, I’m not sure it’s truly the direct cause of my defensive pessimism, and I don’t think it matters very much what exactly had caused it, but it sure is possible. My Mum is a bit impulsive and she would often get my hopes up telling me that she’d take me home next weekend, so then that was what kept me going all week long, until when it was almost Friday I’d learn that it won’t be happening just yet.  And so I guess over time my brain could have learned that the more frantically and desperately it’s hoping for something positive to be true, the more likely it is that it will be the opposite. If I didn’t expect to go home next weekend and lived as if it wasn’t supposed to happen, it was a lot easier to deal with such disappointments when they came, because they weren’t really actual disappointments anymore, and when I was able to go home, in a way it felt even better because I wasn’t really expecting it so it had a bit of a surprise factor to it. Generally I’ve never liked surprises very much ‘cause they’re really awkward, but a surprise weekend at home or visit from Mum was always more than cool. By the time I had the surgery I guess I was already quite an experienced  pessimist, and ruminator for sure, but it could have indeed been the ultimate thing that has cemented it into my brain for good. Regardless whatever it was that made me a defensive pessimist, in the end I can say I actually feel grateful for that, because it works for me, so why not. 

   So to answer the prompt question, is my glass half full or half empty, I’ll say the same thing that I said in the post linked above, that Bibielz expect an empty glass, and when Bibielz get a glass that’s half full, Bibielz go “Yayyyyyy! There’s water in it!” This is such a cool feeling, when you don’t expect to be able to find a single metaphorical drop of water to drink all day long, and then someone gives you a whopping HALF a glass. Who cares if it’s half empty or half full? There’s actually something in it, that’s what matters! And you relish every single metaphorical drop of it, because you don’t know when the next time will be that you’ll be granted such a luxury, and it tastes a lot better than if you were expecting it to begin with, because then it would be just normal water and you’d likely take it for granted. And it’s even better when you get half a glass of metaphorical kefir… 😉 

   Now, you tell me about your glass. 🙂 Oh yeah, and what is it actually filled with? 😀 Also if you have a mental illness, I’m curious if/how it affects the way you see your glass. 

Question of the day.

   You meet your thirteen-year-old self, but you can only tell them three words. What do you say and why? 

   My answer: 

   “Wait for Misha!” I think Misha is one of the best things that have happened to me in my life and I’d like to give my thirteen-year-old self something to look forward to in life. I was really depressed at that time (well when wasn’t i? 😀 ) I guess not in a suicidal way or anything like that anymore but I just felt really fed up with life and hated existing, and perhaps if I knew at that point that I’m gonna meet Misha in a couple years it would give me a little bit of motivation to keep going. If I told her “Wait for Misha” she still obviously wouldn’t know who that Misha is actually supposed to be and why wait for him, but I guess that would only make things feel more exciting. 

   How about you? 🙂 

Question of the day.

   What is something that drastically improved your mental health? 

   My answer: 

   Well, I could focus on several different things, as there have been many things that I’ve found helpful for my mental health over the years, some to a significant extent. But the most important one I think, it’s not something but someone. It’s Misha. Misha has helped me so much. In a way, I don’t think I’ve ever been able to form such a very strong bond with anyone as I have with Misha. This has been a very interesting experience, and also a very healing one, to feel so very strongly about someone and at the same time not experience any sort of anxiety or insecurity around such relationship, unlike what has been the case with all kinds of my closer human relationships. Well, I am scared of Misha dying and I suppose that’s quite out of proportion, but that’s an unavoidable part and risk of all relationships really. Other than that, I feel very safe in my relationship with Misha, and I want him to feel the same. I also feel kind of less lonely with Misha. I’ve never really been one to complain about loneliness, I know how to cope with your typical loneliness and it’s not much of a problem for me. But the sort of loneliness that I experience and struggle with more strongly isn’t something that being around others can help with a lot, in fact often it feels even stronger when I’m around other people because it can sometimes be fuelled by stuff like feelings of inadequacy. It’s a strong, gnawing feeling that’s really difficult to get rid of in any way, something that comes from within rather than from being alone and feeling sad or frustrated or bored in this situation. And, well, Misha hasn’t magically freed me from this, but when I look back at the time when I didn’t have him, it’s really clear that having him has made some difference in this aspect. I find Misha’s presence especially comforting at night when I’m struggling with this. He doesn’t sleep with me every night, but he will usually come of his own accord if I really really need him. His presence is also very comforting for me in dealing with these lonely feelings when I can have him close by when there are a lot of people. Perhaps because Misha doesn’t like peopling very much either, so I know he feels similarly and this makes me feel less alone and like I have someone who gets me, and someone who is, like me, though for totally different reasons, perceived as different from the rest of the individuals socialising in a given situation, so that we are both outside. Misha is outside and different because he’s a cat, so he can’t speak human, understands things differently and all that jazz, for many people from extended family he’s even weird for a cat because he’s apparently very different from all the cats they know who purr nice and loud and aren’t scared of every slight movement or something being placed somewhere else than it usually is and come obediently when you call something like pussy or kitty kitty whereas you have to call Mish Mish for Misha because that’s what we’ve taught him, and even then he’ll come when he wants, though personally I suppose the latter is what most cats do. I am outside and different because I can’t do peopling like most people expect their fellow people to be able to do it, I am blind, which makes a huge difference for a lot of people in how they see you, plus it means I am outside of a large portion of their non-verbal communication and my perception of things is quite different, just as it is the case with Misha. I can’t always have Misha close to me while peopling, even when we’re peopling at our house, because Misha obviously doesn’t care about people’s rules and won’t necessarily want to be there with me, or if he does, it’s usually for a very short time, unless there’s yummy food and people provide him with the kind of attention that he likes. But he’ll often be close to me at the start of various family gatherings, so that I can often come into the room with Misha on my shoulder, hearing his purr. It’s funny, actually, because this is the only situation when he sits on my shoulder and many people find it impressive like my grandad thinks we must have some miraculous connection if I can go around carrying him on my shoulder like that. 😀 This way, people’s attention focuses on Misha, whereas I feel calmer having him close to me. Then after a while he’ll usually sneak out to the kitchen or go up on the radiator into his basket, and then when my brain battery is low and I go to my room, he’ll always follow me and we’ll recharge together, as he tends to find all the people noise and the unwanted kind of attention especially from children quite overwhelming and needs a lot of sleep.

   When I’m having a particularly hard time due to depression, Misha can sometimes be the only thing that will motivate me to get out of bed really. I don’t know how I did it before Misha! When I’m not overly depressed, I really enjoy waking up to Misha’s sweet “Hhrrru?” Which is how he greets people. I love talking to him first thing in the morning, giving him his food and cuddling him for a while if he’s up to it. It’s really the best start for the day you could imagine. Some people are surprised that I don’t mind and even want to sleep with him and then have to let him out of my room in the morning at such insane hours as 3 AM sometimes, hardly any later than 6 AM, my Mum says it’s like having a baby. Perhaps it is, but I really don’t mind getting up and letting him out, and unlike with a baby, I can go right back to bed if I want and sleep to my brain’s content or even longer, or I can let him out without actually waking up, just on autopilot. 

   But most of all I think Misha has helped me with anxiety. Especially the more panicky/acute types of anxiety like my typical sensory anxiety aka sound/silence anxiety. It is such a relief having Misha at home in this respect. It doesn’t solve the problem completely, though I really doubt there’s anything that can always do it with 100% effectivity but Misha helps to varying extent every single time. I think this type of anxiety that I have must work similarly to fear of the dark that many young children experience, which I base on that I believe that silence and darkness are similar phenomena in a way, and that Sofi, who still deals with fear of the dark a lot even though she’s a teenager, seems to have a lot of similar experiences around it, though that could also be of course due to that we’re sisters and experience some things similarly. Anyways, while in general I’d say Sofi’s fear is thankfully milder than mine because she only experiences it at night, not in all kinds of dark conditions, and nothing else triggers it other than darkness at night, there’s one thing in which I really feel for Sofi regarding her anxiety. Misha doesn’t help her at all. In fact sometimes he even adds to her discomfort because he can be so quiet and creep her out if he’s in her room and she can’t see him. And I think that really sucks. For me, there are times when Misha can make a world of difference and allow me to fall asleep at all or alleviate my anxiety enough that I don’t need my PRN anxiety medication. I feel a lot safer when I’m at home with Misha vs just on my own. Even when he’s not directly in the same room as myself can sometimes make a glimmer of difference, knowing that he still is somewhere in the house. Sometimes when some creepy sound or a sleep paralysis episode triggers this type of anxiety for me bad enough, I have trouble with such seemingly unrelated things like being in the bathroom, whether as in in the loo, or showering. It’s really difficult to explain the connectioon and the whole sensory anxiety thing in general, but when I’m in this particular freak out mode it’s like everything seems murkily scary to me, it’s a really weird experience to describe with lots of different dimensions to it I’d say. But in such situations, having Misha with me in the bathroom, laying on the radiator while I’m showering, can help a little, or in the latter stages of the freakout phase quite a lot. We have a radio in the bathroom but it never helps half as much as Misha does when the world goes all creepy. Speaking of sleep paralysis, Misha can help that too, though of course for that to be possible, he has to be in the room with me. He has frequently gotten me out of a beginning sleep paralysis dream in the morning by frantically crying, hhrrru?’ing and scratching the door to let him out. I always thought it’s just a coincidence that he frequently happens to do that right when I’m floating away, but then I had a nap a few times during the day with Misha in my room. I don’t like taking naps because they dysregulate myy sleep cycle even further than it normally is and because they’re more likely to start or end with sleep paralysis, so I only nap if I really have to or if it just happens involuntarily while I lay on the bed for a while with Misha and we both drift off. Well, and I have happened to drift off to sleep paralysis in the middle of the day with Misha either next to me or at my feet, and every single of those times I woke up feeling Misha tickling my foot with his paw, as he sometimes does playfully. Now I don’t know whether Misha has some extreme superpower of sensing sleep paralysis in humans which even fellow humans are typically unable to figure out and think you’re just sleeping heavily, or perhaps he simply saw me wriggling my toes, as people sometimes do in their sleep, and which I do in sleep paralysis if I am able to because I discovered that it can slow down the initial floating/drifting and alleviate this sensation which I really hate, and if I wriggle them to a specific side it lets me float in a specific direction rather than being aimlessly thrown around dreamland until I reach the one and only right destination, and sometimes even the right toe move at the right moment lets me wake up. Misha, like most cats I presume, likes things that move, and he likes to make out with people’s legs whenever he’s only allowed, which is never but he never loses hope and perhaps he just thought my toe wriggling was an invitation and the tickling was some sort of foreplay. Regardless though, I’m glad that as it seems Misha is able to wake me up from this at the right moment before everything starts for good. It’s just quite shitty that he rarely is there when this is happening. 

   How about you? 🙂 

Question of the day.

How are you today? Is there anything you need to do, or are you taking it easy?

My answer:

Meh. Nothing exciting in Bibielland. Instead it’s going to be a rather ranty post, because honestly, this whole month has been pretty shitty for me mental health-wise, with bad depression, a lot of AVPD yuckiness, messed up sleep and a fair bit of anxiety of all sorts. And yesterday Jack the Ripper/Butcher has come for a visit (period), absolutely unusually timely for his standards. He’s also in a real ripper mood this time as it seems. I’m hoping that once he calms down, so will my brain, as much as it’s realistically possible. We’ll see. Anyways, today isn’t terrible brain-wise compared with the average over the last few weeks, and taking into account that I have only slept two hours last night I guess it’s actually pretty decent. I’ve been very Jack-achy, which is part of why I had trouble sleeping despite the painkillers, but partly it’s simply that, like I said, my sleep is generally all over the place right now and I haven’t been able to hard reset it. So I’m quite tired and my thinking is a bit sluggish, but thankfully I don’t have anything pressing to do today so I can do nothing, just chill with Misha. The Jack did me actually a bit of a favour, ’cause it was my cousin’s baby’s christening yesterday (Sofi’s the Godmother) and we originally weren’t supposed to go because my cousin and her hubby wanted to keep the amount of people invited to the minimum I think due to the pandemic, but then changed their mind the night before the event and decided that there won’t be just the Godparents and the grandparents but invited the rest of my family too. Now that was way too short notice for me for such a huge peopling situation, but then I’d feel awful if I wouldn’t go, so I am sincerely thankful for Jack that he extricated me out of this and gave me a more than good enough reason not to go, even though as a result I spent most of the day in bed, but I can handle physical pain better than people pain.

Like I said I have nothing super important to do that would necessarily need to be done today, although I’ve been working on some longer, two-part post about emetophobia as I see on Google Console a lot of people come to my blog looking for some tips about it, which I haven’t ever shared, but I like when people can find what they’re looking for when they happen to stumble upon my blog, and I have quite an extensive experience with emetophobia so thought I could do this. I am writing something that I want to both show my experience of it fully so that people can perhaps relate if they need it, and then I want to write about strategies that work or have worked for me, so that hopefully they’ll be useful. I’ve been writing this for over a month because I’ve had to take a lot of breaks throughout the process as I didn’t want to trigger myself too badly in the meantime which would be easy to do now that I haven’t been doing too well. So, today I’m having a lot of free time and I’m a bit miffed that I could theoretically do it and maybe even finish the whole thing today, but I have too little cognitive energy, and I have a feeling that it would be taking the word self-destructive to the next level – digging in your own phobias on two hours of sleep while having a period. – 😀 Probably wouldn’t be the best quality either, even if I have a big chunk written already.

How about you? How is your day going? 🙂

Question of the day.

What was the last time you were in a bad mood?

My answer:

Bad mood is quite a relative thing with mental illness I think. 😀 But I guess I could say I was in a bad mood yesterday evening, when I was feeling quite blue for no apparent reason really, or at least it’s not known to me, and also Stinky Maggie – my inner critic – had a lot to say and was super snarky. Today things are okay and pretty normal.

You? Also, for those of you who struggle with any mental health issues, is it easy/possible for you to distinguish between your symptoms and a simple bad mood? 🙂 I’m curious because for me, while I can definitely say when I’m in a good mood, it really is difficult to differentiate between what’s the illness and what’s a bad mood. I guess it’s bound to be tricky when you have a mood disorder like depression for example.

Question of the day.

Do you ever use dry shampoo?

My answer:

I’ve started using it more often perhaps a year ago, and I believe it was after Niki from Take A Ride on my Moodswing commented on one of my questions where I was asking people something about their hair washing routine, and she mentioned that she finds it difficult due to her mental illness and often uses dry shampoo instead. I only used it before occasionally when travelling or something, but though it was a good way to make life easier sometimes, so the next time I saw it somewhere I got it. These days, most of the time I’m doing well enough that I can do basic self-care stuff and I try to wash my hair twice a week, luckily it doesn’t need more at this point. But when there are times when, either because of feeling very depressed, or being in an AVPD black hole where Maggie – my inner critic – takes things over and I feel a lot of self-loathing and stuff, the last thing I’ll think of is self-care, even as basic as that, ’cause why would I care? The only reason I can think of then is other people and so that it doesn’t feel quite so awful for them to be around me, so I’ll just use the dry shampoo as a bit of a substitute for a proper hair wash. Also when I have a migraine but my hair is really greasy, I find washing my hair a really obnoxious thing, so I’d rather use dry shampoo instead then as well.

How about you? In what circumstances do you use it, if you do? 🙂

Happiness.

I thought I would do some journaling prompt-inspired post today, and I picked this prompt from Hannah Braime’s book called The Year of You:

“What does happiness mean to you?”

Thought it would be quite in-line with today’s question of the day.

They say happiness is easy to not notice, and you can find out that you had it only when it leaves you. It’s very true. Happiness is very quiet, makes hardly any sounds and walks very quietly, and is very small. It also often easily blends in with its surroundings because of its colour, so you don’t necessarily have to be blind to not notice it. It is also very easy to scare it away, even with just one unnecessary movement or sound. And then it may be very difficult to get it back to you. Happiness doesn’t like everyone, even if almost everyone likes it. Generally I’d say that a good rule to follow is that the less desperately you try to make Happiness come to you, the more successful you may be at it. Happiness doesn’t like unnecessary attention being drawn to it. If you call it and are lucky enough that it comes to you, don’t overuse its trust and don’t call it all the time. Also when it comes, make sure to provide it with the best food and sleeping accommodations possible. It’s not always the best idea to come very close to it. It always knows best what should the distance be between it and you, and if you will accept it calmly, it will be more likely to come closer than if you try to force it. When you hear Happiness at your door, it is not wise to wait with opening it, you should do it right away, or it will go somewhere else.

Happiness is very gentle and never intrusive. It is warm, soft and very smooth. It likes soft, quiet places, which is where you can usuallyy find it. There is only one Happiness in the world, which is probably just exactly why so many people are unhappy, and it often likes to hide. It is very clever, playful, but also a real scaredy cat. Almost everyone who sees it for the first time gasps in awe and wants to hold it, but it’s rare that you would be granted such a luxury right away. It has relatively big ears, so that it always can hear when unhappy people call it, but it doesn’t mean it’ll always come. It knows better than you when you actually need it most.

Unlike what many people may think, Happiness is grey. Not pink, rainbow-y, not even green, but grey. Perhaps this is another reason for why people often don’t notice it, since, ironically, the colour grey is associated with all things gloomy. Another fact about Happiness which may seem strange to many people is that it originates from Russia –
which seems to be feared as a whole by many people these days. – Perhaps the devil’s not so black… (if happiness can be grey, everything’s possible). It also has some Czech ancestry. Originally, Happiness cost $500, more or less (obviously because people, as always, didn’t even know what it actually was and what its value was, just that it looked kinda cute). I’m sure though that, if it ever had to be sold again (although I’m having a difficult time coming up with any legit reason why one would want to sell Happiness) its price would be much higher, and not even Bill Gates or Elon Musk could afford it. It only exists since 2016 (how did we manage to live prior to that excedes my understanding at this point).

Happiness can often be found curled up in a little ball. Although I said it doesn’t like too much attention, it also doesn’t feel well when you don’t pay any attention to it whatsoever and can feel hurt. Happiness loves flowers, leaves, feathers, birds, and especially the sunshine. It also loves routine, warmth and safety.

Happiness is actually male. He has the brightest green eyes. He poops every day and never flushes the toilet after himself. He has lots of facial hair, and he never shaves. Same about his armpits. Despite that, he always smells heavenly, and never sweats. He seems to enjoy, jazz, classical, baroque, and relaxing piano music, but secretly delights in Russian D&B.

The whole drama with Happiness – why so many people are unhappy, or pretending to be happy, or searching for Happiness, or racing after it, or find it so difficult to define Happiness, and all the other troubles that are caused by lack of Happiness – it has one very simple reason. Right now, Happiness is in my kitchen, happily eating sausage, and I’m not going to give him away any time soon. 😉 What a bad, selfish Bibiel, keeping all the 4 kg of Happiness to herself, when so many people die without having ever felt a warm touch of Happiness. But hey, not all is lost, I can always sell you a bag of Happy Poop (if only you can afford it 😉 Maybe it would work to some extend).

And maybe there’s also another reason for all the trouble with Happiness. If you want Happiness, affirmations, meditations, manifestations – they won’t work. – It’s best to be straightforward with Happiness and call him by his name, just like you would everyone else. Happiness is called Misha. Or better even, if you want to manifest Happiness in your life, say “Mish Mish Mish!”. Or make some other hissing, rustling sounds, and, who knows… maybe his ears will be big enough to hear you, too…? Maybe he already did, but the front door is locked, so he can’t get out to help you. Don’t blame me, it’s my Mum who locked it and watches Misha like Cerberus. 😛

Okay, so that’s my definition of happiness for you. If you’d rather have a more abstractive/serious one:

Happiness, for me, is any state of mind when I’m not unhappy.

Generally, I don’t really know if I know what happiness is. I hate it when people sometimes ask me if I’m happy, or unhappy. I know what unhappiness is and I know full well that I’ve experienced it, and I also know that I am not unhappy now. I also know what it’s like to feel joyful or euphoric, but I guess happiness isn’t really a feeling but more like a state so I don’t think you necessarily have to be happy when you’re feeling joyful, just like you don’t have to feel sad all the time when you’re unhappy. I’ve had depressive tendencies ever since I remember and had my first major depressive episode diagnosis when I was 8, but at the same time I laugh a lot and can be very enthusiastic about things. Sometimes it comes more genuinely, sometimes I need to fake it a bit, or a lot, but even so, I think it’s a natural part of me. Still, the depression is always there and I guess I’ve never felt happy the way people do when they don’t have stuff like this glued to their brains. Therefore, when someone, typically my Mum, asks me “Are you happy?”, I’ll always answer yes if I’m not unhappy. I try to keep myy expectations low in this department and be, well, happy, with what I get, if it’s something good. This strategy has served me well, as it’s a lot nicer to have your expectations exceded than unfulfilled, right?

I hope the way I explained it makes sense to people. 😀

So, how is it with you? Is there someone/something that embodies happiness for you? What is your definition of happiness, whether abstractive or more specific? 🙂

If We Were Having Coffee… #WeekendCoffeeShare

Welcome to another

#WeekendCoffeeShare! 🙂

Our host is Natalie, so if you’d like to join in with your own coffee share, you can go over to her blog. 🙂

We’ve just had our lunch, and there’s still a lot of chicken breast left, so help yourself if you fancy, or if you’d rather have a lighter snack I can give you some salted peanuts, or feel free to bring something with yourself and share with other peeps if you want. Help yourself to coffee or tea or cocoa or or my Mum’s homemade black lilac juice, or I think we’ve got some kefir as well if you’d prefer that, or perhaps water. So, if you’re all sitting comfortably and have something to drink or munch on, let’s get started.

If we were having coffee, I’d ask each of you how you’ve been doing lately…? 🙂

If we were having coffee, I’d tell you that, actually, this week hasn’t been very eventful, so I probably won’t have all that much to share with y’all, but I just wanted to have a coffee share, even if for a brief check-in, as I guess the last one we had was over a month ago.

If we were having coffee, I’d tell you that we’ve been having a fair bit of spring-like weather, interspersed with really chilly, windy and often rainy days. It was even hailing quite heavily earlier this week. Today is one of those chillier days and it’s raining all the time. As you may perhaps remember, we live by the river, it flows through our backyard, so we are at quite a high flood risk. We’ve already had a few minor floodings since we moved here which were scary, and now my Dad has been really stressed out that this year it will be more hardcore with the amount of rain we’re getting and are still supposed to get.

If we were having coffee, I’d tell you that I’m really pleased with my linguistic development over the last few weeks, mainly when it comes to Welsh, as currently this is the language I’m learning most actively because I’m not fluent in it yet, but also Swedish to a lesser extend, because I’ve been reading a lot in the latter. Concerning the former, I catch myself more and more often on having random bits of thoughts in Welsh, and not right after learning or when I’m sleepy or tired, which is most often when my languages mix up, but just randomly. My subjective feeling is also that my listening comprehension must have improved a bit lately. That’s all very motivating.

If we were having coffee, I’d tell you that, despite the usual ups and downs and myy anxiety being a bit up this weekend due to having quite an interesting and lengthy sleep paralysis session on Friday, mood-wise I’m still doing really well, most of the time with my mood being around what I consider my baseline, sometimes lower but not very low or not for long and usually in clear connection to something situational. Even Maggie, aka my inner self-critic, has been strangely quiet lately, not totally quiet but noticeably less active, she mostly just wakes up when I engage more with people or especially afterwards, but if she wouldn’t do that, she wouldn’t be alive. It has been like this for over three months now and it’s quite surprising. Yes, my amazing

faza peak

is still there, which certainly contributes to it, but despite being a really long peak compared with my previous experiences, it’s not an extremely intense one at all at this point, I’ve had much more intense faza peaks before, but I’m not sure the peak is solely responsible for this, especially not for Maggie’s unusual behaviour. Whatever the cause might be though, I’m quite happy with the results, I’m just a bit worried that after being up for so long, at least for my standards, at some point I will have a spectacular slide downhill, lower than I’ve had in a long time. I guess kind of like when there’s a draught for long, then you’ll have a storm and the longer it was dry, the stronger the storm will be.

If we were having coffee, I’d tell you that, while I do still get migraines like once or twice weekly, they have really gotten better in terms of intensity, regardless of what medicine I take, or even if I don’t take anything. They are shorter and not so incapacitating, and often will go away or lessen very significantly when I just have a nap or will totally go away after a solid night’s sleep, so it’s really not such a problem anymore. In case you don’t know, I’ve had migraines on and off for years, but for most of that time, they really weren’t very problematic, and I considered myself lucky compared with a lot of other migraine folks. Then the year before last, in November, I suddenly started getting them a lot more often, and they were a lot more painful and difficult to get rid of, and extremely easily triggered by just about any stressful situation or anything that could possibly trigger a migraine. Admittedly, I did have quite a stressful time then and my brain was going bonkers with rumination and anxiety so my main theory was that it really must be the stress doing this. Then things got better again in January, last year which coincided with my stress levels going a bit down overall, until September when, again, I started having yucky migraines. This time, I wasn’t in a lot of stress or anxiety really, just my normal anxious brain but nothing beyond that and nothing turbulent going on in my life at that specific time of the year, so I couldn’t blame the stress anymore. That lasted again until about January this year. So, considering this, I’m fairly sure there must be some seasonal pattern, like a lot of people seem to have, and for a lot of people their migraines also seem to get worse around autumn-winter. I’m very curious why. That could perhaps also be responsible for why I always had more severe migraines right at the start of a school year, which everyone was thinking must be to do with stress – which surely was also an important factor but as it seems not the only one. – Well, I used to have recurrent allergic bronchitis almost every autumn-winter season, and now that it seems to be mostly cured finally, I’ll have seasonal migraines instead. Life’s never boring. 😀

If we were having coffee, I’d tell you that, with the exception of sleep paralysis I had on Friday, I’ve been having absolutely hilarious dreams lately, and extremely vivid. I love having vivid dreams after which, when you wake up, you just have to laugh out loud at the absurdity of them. And I met some interesting folks in Dreamland that I wish could exist in real life.

What would you share if we were having coffee? 🙂

 

My favourite place.

Today, I decided to do a post based on a writing prompt that I got from the PaperBlanks app which is the following:

“One place I always feel happy is…”

I don’t know if happy as such (I’ve generally got a bit of a dilemma with the word happy), but there is definitely a place which cann often make me feel happier, because it is a place where I feel safe and where I know I can be myself and do whatever I feel like doing, and which my brain associates with happy things generally. This place is my room. It’s a place where I always recharge after peopling, where I go to when I want to be alone, where i do most things in fact that are important to me, from writing to learning to working to sleeping to daydreaming. I have a real connection with it and lots of good memories, even though I’ve only been living for four years in here.

I have no pics to accompany this post, but I thought I’d describe my room a little for you, so that you could have a bit of an idea.

Both me and my siblings live upstairs. When you go up here, the first door to the left is the bathroom, and then, next to it, there’s my room. One thing that I don’t like about it is that the walls here are rather thin so that I always hear people in the bathroom, which is particularly annoying when someone is showering as there is a whole lot of noise.

It has a green, flowery wallpaper and is quite girly in terms of the design I’d say. I have a double bed – which used to be Sofi’s because Sofi is taller than me and it was clear years ago that she was going to end up taller than me so Mum wanted to get her a bed that would serve her for years, but I don’t even remember now why it ended up in my room, anyway we switched beds with Sofi and I love double beds so I’m happy with that. – Sofi now doesn’t sleep on the sofa that she got from my room anyway, because she has like two rooms, one inside of the other, and recently she has arranged her bedroom in the smaller one, on the matress, it feels more atmospheric for her and she actually has a more comfy bedroom now. Anyway, I’ve got the double bed, which means I have the space for Misha’s bed on top of it as well, and all my many pillows and other things, and can toss and turn as much as I wish, which I tend to do a lot. Misha’s bed is in the far right corner of my bed – it is a basket –

Right next to Misha’s basket, there is my bedside cabinet. There is also my power strip that is fixed to it, which is more practical because this way the cables don’t get tangled too easily and I can use my devices more freely when I’m in bed which I do a lot. My bedside cabinet has three drawers, where I have some of my clothes and things like PJ’s, meds, cosmetics, important documents that I use regularly, Misha’s treats etc. etc. it’s real messy in there. On the cabinet, there is another, more fancy cabinet where some of my gem stones reside, as well as my gem stone figurines, and some other knick-knacks that I have and that just look representative in there because this cabinet has a glass so people can see what’s in there and often get very hyper about my stones if they see them for the first time. Others are in a sort of cassette that my grandad made for me for this purpose, or in boxes. On the sides of this cabinet there are little shelves and I often also put some things there, but what is there pretty much permanently are some saintly statues that I have, a little picture of Our Lady of Ostra Brama, a statue of st. Hyacinth, and of st. Michael Archangel, and I have my rosary on there as well, while on the other shelf there are cards that I got from people over the last couple of years. As for religious stuff there is also a picture of The Last Super on the wall above my bed that I got for my First Communion. Up on the gem stone cabinet hangs my Bluetooth speaker, which I now always use at night to play some music or radio from my iPhone, which is so much better than listening on the computer which I used to be doing for years and it was okay, but my current computer is quite loud, and it’s not particularly pleasant at night really to sleep in so much hum, it feels like in some sort of a laboratory or something. 😀 On the bedside cabinet I’ll typically also have my water bottle there, right now there are hyacinths that I got for my birthday and a mug and a pot of tea.

Right next to the bedside cabinet there is my desk with an office chair. On and under the desk there is the computer (I have a desktop one, Braille-Sense, and a salt lamp, just to make it look nice, I think salt lamps are really cool. There is also a hand-made box that I got from Sofi where I keep some things that I need to have in close proximity but don’t want them necessarily to cluter the desk space. There’s also my Bluetooth keyboard for the iPhone although I use the Braille-Sense to navigate the iPhone screen far more often, and my Bluetooth headphones are there as well. There are also drawers where I keep all sorts of work documentation of my Dad’s or other papers, tons of Braille paper sheets which I don’t really use because I don’t use a Brailler all that much anymore for anything but Braille paper is expensive so it would be a shame to throw it away especially that it does come in handy sometimes when I still do need to write something, or sometimes Sofi uses it for something when she needs a thicker paper, some stationery supplies and ready-made Christmas cards that I got from my Mum when I started sending out cards to people but before I came up with MIMRA, I usually use these when I send cards or something to people outside of MIMRA, loads of cables, pen drives, SD cards, and currently also a lot of candy that I got for my birthday.

To the left of the desk, there is a window. I have both curtains and external blinds, which can be quite helpful in the summer, because my window is west-facing and my room heats up super quickly even when it isn’t hot but just very sunny outside, and it also helps when it’s very windy. On the windowsill is Misha’s observation point, you can see a lot of interesting things from here. When he gets weary of the outside world, he can go to sleep in a little basket that is standing there.

A brand new addition to my room is a big armchair which is standing between the window and the cupboards, which my Mum got somewhere last week because she liked how it looked, but didn’t really know where to put it, and eventually decided it would fit my room best. Previously I used to have a very old armchair that used to belong to my grandma decades ago. It was mostly used by people like my Swedish or English or math tutor when they used to come here, or anyone who would be visiting. Because I no longer have tutors or anything like that, and don’t have much of a need for using the armchair myself, I’m perfectly happy sitting on my bed or on the desk chair, its purpose will probably be mostly decorative, as it apparently looks really well, and my Mum likes to sit in here when she comes to my room to vent about life, which she does regularly. 😀

Then I have cupboards where there are all the other of my gem stones, another energy strip which is fixed on the inside, which I use for charging devices that I either don’t need to charge very regularly or don’t use all the time. There is also my OCR scanner, different documents of mine, some only archival like from schools, some that are actually useful sometimes. Up on the cupboards are my books in standard print, the ones that were able to fit in my room. I don’t really have a good place for storing books in here, and there isn’t really a good place for a proper bookshelf apparently either, so most of my books are on Sofi’s bookshelves. The books that I have in standard print are mostly either Swedish children’s books that I got in Stockholm at Junibacken, or books about names, and some books with fairytales and myths from all around the world – – and my Polish-Swedish and Swedish-Polish dictionary, and some other Swedish and even Norwegian books that my Mum got in a second-hand clothing shop (yes, you read that right, that’s where my Swedish tutor found that you can find ridiculously cheap Scandinavian books and my Mum had a look and found loads of them that no one was interested in, only she never could figure out which were Swedish and which Norwegian so I’ve got a lot of both, and I’ve never read the Norwegian ones or even scanned them in full, even though I think if I set my mind to it, I could, it just sounds like a lot of hassle, and I’m not motivated enough).

To the left, there is a wardrobe where there are all my clothes, and on top of it are some cartboard boxes where Misha likes to go to sleep, particularly when he’s somehow overwhelmed and doesn’t want anyone to see him. There is also myy old Brailler up there.

What is a place that you feel happy, or just safe in, and that you like? 🙂

Question of the day.

When was the last time you laughed, and why?

My answer:

Despite having dysthymia and feeling more or less depressed 99% of the time, I do laugh a lot, for all sorts of reasons. Because sometimes it’s the best way of masking that works for me, and because generally even when I feel anything but happy I don’t lose the ability to laugh or even the impulse/desire to laugh, unless when it’s like really reeeally shitty, in fact I think it’s a lot easier than smiling for me because while laughter conveys stronger emotions than a smile, at the same time it is kind of more diverse. Like, to be able to smile convincingly, I need to feel at least neutral moodwise, meanwhile I don’t need to feel neutral or above to be able to laugh genuinely, or even just convincingly, because for me laughter is not only about feeling happy. I can feel amused by something without needing to feel happy or even close to happy. It’s just not about happiness. I can have a super shitty day but still find something worth laughing at, even if just sarcastically. But a smile has to be happy. A sarcastic smile just doesn’t do, right? 😀 A sad smile makes you feel more miserable, well it does make me feel miserable and I guess look miserable too, so I don’t bother with smiling when I’m sad unless I think someone is really going to think I am rude because I didn’t smile at them. Also laughter is a coping skill for me some of the time, plus it’s the Bibiel part of me who just is this way that she always sees the funny or absurd side of a lot of situations. Considering that, regarding the latter, Sofi is exactly the same, well maybe not exactly but her way of seeing things is very similar and at the same time we complement each other so that makes that together we can find even more humour of different kinds in things, we have a lot of laughs together. And so, I think the last time I laughed must have been some time last night, as I was spending time withh Sofi, and yeah, we usually laugh together at this thing or another, at least a little bit. And yesterday we both were in a bit of a crazy mood so we were laughing a lot and with Misha too.

You? Also, just out of curiosity (well, this whole series is just out of curiosity but anyway) what do you find easier, smiling or laughing, especially if you have any kind of a mood disorder? 🙂

Question of the day (28th December).

What’s the hardest thing you’ve ever been through?

My answer:

I think the most difficult thing for me was the recovery after my Achilles tendons lengthening surgery, which I had when I was 10. Basically I spent six weeks with my entire legs in casts in order for them to heal properly, although my surgeon was a bit overzealous apparently, because from what I know now my casts were way bigger than it was necessary, which meant I could barely move my legs at all, and had to have them pretty much in the same position all that time and then later throughout physiotherapy until my muscles got used to working all over again. That was of course a fair bit of discomfort and then later also pain but that wasn’t really why I found it so difficult, rather, it was because I was totally unprepared mentally for what was going to happen to me after surgery, I had totally no idea what it was going to look like. My family weren’t really prepared either, we didn’t even have a wheelchair for me or anything like that so my Dad had to carry me to the loo when I needed it, and people had to help me out with the most basic stuff which I found incredibly humiliating. But what was challenging even more than that was the sensory deprivation. I didn’t have a computer back then nor any other devices really, and my room wasn’t adapted to my temporary condition. Sofi was very little, had about six months maybe, and my Mum was very busy with her plus with the new house my parents were building, people were going on with their lives and I was really bored most of the time. Sometimes my Mum would get me some talking books from the nearest library for the blind, which wasn’t really all that near, and I had a lot of Braille magazines for children, but they were on the shelves so someone had to give them to me. There was a limited number of them to begin with, but they also weren’t really labelled in any way in normal print, so I would often get the same magazines all over again. I also had a radio and listened to my favourite radio station at the time – Polish Radio BIS. – My class teacher visited me a couple of times to somehow help me catch up on the school work but that was only at the beginning. And other than that, I didn’t really have much to do at the time. My brain was in an awful mental state already prior to that due to a few different things, I was really anxious all the time, and that only worsened then. And because I was so sensorily and cognitively understimulated, my sensory anxiety was sky high all the time and that was simply really difficult to live with. I was also really depressed and suicidal and my sleep was all over the place, because of the lack of stimulation of any kind, anxiety and because my calves were hurting a lot for some reason after surgery, not somehow extremely bad but bad enough that it would prevent me from sleeping well. I still sometimes have that pain even these days, although it’s lesser. And of course the lack of sleep didn’t help in making me feel any better and my brain any more rational. And then physiotherapy was also quite yucky, as at the beginning it was rather painful and quite unexpectedly again. Most ironically though the surgery didn’t have any lasting effects, although because I’ve never really seen my shortened Achilles tendons as a real problem that would hinder me in any significant way in life I can’t say I care about that a lot.

What is such a thing for you? 🙂

Question of the day (15th November).

How was your day, or how is it going, if it’s much earlier where you are than here? What about last week?

My answer:

Today is okay-ish I guess. I’ve been feeling kinda shitty lately, mainly because of depression I guess, but I can’t even describe exactly what’s been going on, the main point is that it’s getting better. By this time last year, I had my MIMRAS sent out, but things have been a little chaotic for us here as we’d had a bit of a house renovation and MIMRA went on the backburner for a while as it’s my Mum helping me with the practical side of things and she’d crash having to do everything at once. We planned to finally order the MIMRA cards today – we’ve made friends with a company who makes them for me the way I want, when it’s possible, lol. – But it didn’t work out so hopefully we’ll do that tomorrow. That being said, plus the fact that the mail in many countries seems strained by Covid, there may be a fair bit of delay in MIMRAs arriving to their recipients, so apologies to all the unofficial winners, as I know they can take a long time to arrive even without a delay on my part.

As for the week, as I’ve said it was a bit chaotic with the renovations, even though they didn’t directly affect me as it wasn’t my room that was renovated. Sofi’s got a lot of changes in her room and while the works in her room continued, she temporarily lived with me. As you probably know if you’re a regular reader, we have a strong and generally good relationship with Sofi, but we’re also very different which causes a lot of emotional short-circuits between us sometimes, and I’ve gotten out of habit of living in the same room with other people I guess so it was a bit mentally exhausting and I was euphoric last night to be able to sleep alone in my bed. 😀 Sofi not so much, she loves having company even at night, and even tried her best to invite me to sleep with her in her renewed room but that was not an option as far as I was concerned, may be later when I recharge a bit. We also had the workers around all days and that felt kind of unsettling and awkward for me long-term, I hate having strangers in the house for longer periods of time. And some things in our house have changed now, so I had to adjust to it. It wasn’t a huge or very scary change but it did require some effort from my spatially disoriented brain and was a bit frustrating as changes tend to be.

How has it been for you? 🙂

Question of the day.

What time do you go to bed?

My answer:

As in my answer to the previous question, my circadian rhythm is screwed up so there are no rules whatsoever in practice for what time I fall asleep. I do try to have a more predictive bedtime though if possible, so my standard goal is to be in bed by midnight, not later. I might eventually get up if I’m not having any luck falling asleep for an hour or longer, or when I’m feeling mentally crappy and if I am only able to sleep, I like to go to sleep earlier and sleep as much as possible.

You? 🙂

Question of the day (11th August).

Let’s talk a bit about our daily habits.

What time do you wake up?

My answer:

Really hard to say. It’s different almost every day, or at least every few days. It depends on which timezone my brain clock is at the moment. As you may know if you’re a regular reader of my blog, I have a problem with circadian rhythm, probably mostly due to that I am blind and don’t have any light perception or anything so my brain is probably permanently confused whether it’s day or night, but I’ve also learnt that pituitary is in some way responsible for controlling circadian rhythm – not sleep-wake cycle as such I guess or I’m not sure about this particular thing, but circadian rhythm in general, in any case, it could be relevant since I have hypopituitarism, and mental health surely plays a huge role with sleep problems as well. – Whatever is the reason, that’s how my brain works, and I’m mostly okay with it at the moment, of course it can be annoying but I am now having the luxury of being in charge of my own time at this point so I can usually decide when I need sleep and when trying to sleep doesn’t make much sense so it’s better to stay up and do something constructive. I used to supplement melatonin but it would work only to some extend, meanwhile giving me loads of vivid nightmares. I have a PRN sleep med which helps and I try to have some kind of a sleep-wake schedule at least in theory, something to aim to I’d say, but what probably makes my sleep problems worse is also that I’m not the best at sticking to sleep routine, but also I don’t want to be too obsessed with it as that could get more stressful than helpful long-term I guess. So that being said, my waking time shifts depending on my current circadian rhythm, and my circadian rhythm seems to depend on a lot of things, external and internal, I guess I’m not even aware of all of them, funny thing is also that with my sleeping and waking times, my need for sleep also changes kind of in cycles and sometimes I feel the need to sleep a lot, and sometimes I feel rested after just a few hours and get lots of energy at night, or don’t sleep at all.

With my “ideal” sleeping schedule, I try to wake up at 7:30, because I’ve figured out after some experiments that it seems to be a generally optimal time for me, though as I said, it can look different in practice. I have an alarm – previously on my PlexTalk, now on the iPhone – and I try to stick to it when possible, but when I’m not asleep say by 3 AM I just turn it off so it doesn’t wake me in case I will fall asleep until 7:30, since usually falling asleep that late I’ll also probably need to sleep a bit longer than that, or when I feel very sleepy and it goes off I just turn it off, go back to sleep for however long I need and don’t care, unless I have somewhere to go or something really important to do on time. Also when my depression is particularly bad, sleep is my best friend, as long as I can get it, and then I turn into a real sleep escapist if only I can do it and have no plans, and turn the alarm off altogether, and turn it back on again when I feel more motivated to actually live or when it’s really necessary for me to get up at a specific time. At the moment though, I’ve been sticking to my normal waking time since a few days and I like it, though my falling asleep time is later than it should be in theory so I’m not getting a whole lot of sleep but I’m not feeling it really.

How does it work for you? Do you have any sleep routine at all and if so, are you good at sticking to it? 🙂

Question of the day (10th August).

Did you fall down any rabbit holes, recently? What about?

My answer:

Except for the recent depression and emotional overload rabbit hole I fell down last week and as it seems am on my way up, at least in that I’m more functional on the outside and don’t have the self-harm urges, I don’t think there have been any rabbit holes recently in terms of particularly engrossing topics. I mean, my interests are typically very engrossing for me, but there hasn’t been anything very new lately.

How about you? 🙂

Jack Hawitt ft. Nyaki – “Dark Hotel”.

This song has been one of my favourites for quite a while now. I’ve heard about Jack Hawitt for the first time some months ago, don’t remember when exactly, and this song was the first of his that I’ve heard. This must have been around the time that my faza on Gwil was slowly fading from the dominant position so I was beginning to look for someone new to get a faza on. Jack Hawitt was one of the first candidates that I’ve considered, mostly just because his name was Jack and I wanted to have a faza on Jack, but it didn’t work out, he’s cool but too normal for that.

What I like most about this song is the lyrics, which I think are very relatable but also full of hope, hope that there is help and support out there, for many people with mental illness, or those who experience some temporary lows or crises in life as well. Also it’s just a very nice song, and both Jack and Nyaki are very good singers.

Jack Hawitt is from Britain, and he’s been active as a singer for a while already, and Nyaki is from Norway, but I haven’t heard any other songs by her.

I hope you enjoy this very nice pop piece. 🙂

A letter to my 13-year-old self.

Today starts

10-Day Letter Writing Challenge

and, as I mentioned in the original post that I reblogged earlier today, or rather yesterday as it’s past midnight, I really liked the idea. I have never participated in those kind of challenges where you write every day for a certain amount of time, so I don’t know how it will go and I don’t promise that I will stick to it on my blog, but I do plan to write those letters for sure in my diary because I like to expand it in such ways and not just plain write about my daily life.

Here’s a letter to my 13-year-old self:

Hi Bisbis [Bisbis/Bibiel was the way I used to mostly call myself as a child and teen]

I am your future self, however strange that may sound to you. You may wonder why I am writing to you in English then, and I am sure that it will take you a looong time to figure this letter out, but this will at least improve your English skills and occupy your mind with something interesting for a while. You will need it in the future – the English, I mean. – One day, when life will get better, you will have an English blog. You have heard from people that you have a talent for languages and you sometimes wonder if it is true and what you should do about it, if anything. And you have already learnt some Swedish. I know how painful it is for you that you cannot do it anymore. Please don’t suppress this one thing at least. I think it will be of some comfort to you if I’ll tell you that you will be able to return to your Swedish in future. It will bring you a lot of pleasure and you will also learn to love many other languages, which will make your life feel more purposeful. You will have to thank one of your faza objects for that. Soon after that, you will also find the greatest love of your life (so far at least), whom you will love with all your brain and soul, who will live with you and sleep with you and who will be your best friend. No, obviously I’m not talking about any guy, I’m sure you know it! Nor about a girl, if you’re wondering, or maybe being concerned, hehe. His name will be Misha, not Jacek, and that’s all I’m gonna tell you. Believe me, seriously, the things will not always be the way they are right now, even though it really looks like they will. Change will come sooner than you think, although you will have to get through a lot before it happens, and then learn a lot of things that you might find unpleasant or uncomfortable.

I know that you wrote a letter to me as well, like Emily of the New Moon did to herself, but unfortunately I am not able to read it now and look back at all those things you wanted to know and respond to you properly because you lost it. You do have to learn to be less chaotic. But so far it hasn’t happened. 😀 And I think we agree that being chaotic is more interesting, right? I still like Emily of the New Moon a lot, although not as frenziedly as you. I can assure you that your current dream will come true and that you will change your name to Emilia legally soon after you turn 18. It was a good idea so you don’t have to worry, you were right and I thank you for that.

At this point, I live in a different house than the one that is your family home, but not far away from there, just in a town nearby. It is also big, and you will move in it about 7 years from where you are at, if I’m counting correctly. You will like it here. As we’re talking about counting, I have some bad news for you too. Well, at least for you it will probably sound bad, I feel quite neutral about it and I don’t perceive it as a tragedy or even anything near it. You will not pass your math final exam after high school. Moreover, you will decide not to rewrite it.

There was that man who told you that you won’t fix yourself by studying psychology and becoming a therapist, and you felt offended because he was assuming and implying that something was wrong with you and that you were selfish, and I think you also felt very insecure because you knew he could be on to something. I know that your intentions weren’t selfish at all, but, as you’ll see for yourself later on, he was actually right, in a lot of ways. Because, you do know deep down that it is not normal to feel the way you feel, all the time, don’t you? And you do realise that many things in your life and functioning aren’t the way they should be? Well, you will need time to come to terms with this, and one day you will understand that it is yourself who needs help, before you can give it to others. But also, this is not your fault, as you think and as everyone is making you feel or even telling you, indirectly. I do not like you much more than you like yourself, if I’m being honest with you, but I want you to know that this is not your fault and that some people, even those you seriously wouldn’t suspect to be, are way more selfish than you think, others are clueless. You are clueless too. You will learn and discover some difficult things about yourself and your life circumstances, I am still doing that and in a way it’s getting overwhelming, and so confusing, but you will learn to live and cope with those things you learn about yourself, but also making those discoveries will be helpful, as life and your whole situation will become a bit clearer for yourself and others, and it is always easier to deal with something that you know at least a bit. As I said, life will really get better. Your brain will get better. The mere relief from having to pretend that everything is OK will make a difference. You will find a lot of friends online, not the same ones as you have right now, although I know many of them are cool, and don’t let anyone tell you that online friendships are any less valuable or real or something. You will find very supportive and understanding people with whom you will often have a lot of things in common, in one way or another. I know it feels awful right now but don’t give up just yet. And, while you will still have a deep interest in psychology, maybe even deeper in some ways, I think you will grow out of that idea, and instead you will decide to focus on your languages more. Well, that’s at least what I know now, who knows how things will get in the more distant future. As for more distant future, currently I have no idea how it will go, and it feels somewhat scary even to me, but I am trying to be hopeful because otherwise I would have no right to tell you not to give up, as my life is way easier than yours.

Zofijka is almost your age now and a lot of what you thought she’d be like has come true. She is very bubbly and energetic and talks all the time, and she loves sports and One Direction and currently has become enamoured with Japanese men, and yes, she loves clothes shopping and changes her clothes all the time, but she has a very distinctive style despite being a very average girl in a lot of ways, and you’d be surprised how very mature she is deep down. I think you would like her. Though she is very different from you, and thus very different from me, and so we not always get along.

I really don’t know what else to tell you, other than that there is hope, so I will be finishing, because it’s 2 AM and I feel like I should go to sleep. Yeah, I still tend to write at nights, but now it’s my choice, and not a necessity, and I realise it’s a luxury not only for people like you who feel they lack privacy but most people actually, who aren’t able to manage their time on their own. Ah, and I can tell you that you will live in times of a pandemic, which is happening right now, I guess you’d find that interesting, for example to observe how people are behaving. I find it interesting myself, but while it’s changed our lives all around the world very much, it doesn’t feel scary for myself so far. Maybe just because it is not a norovirus pandemic, haha.

Your future Bibiel self (I no longer call myself Bibiel all the time, only sometimes, you have to adjust to the society at some point, but I still am Bibiel and am loving it no less than you do)