Carnival.

Anyone else here hates carnival?

Well anyway, I do. Or used to do, now I don’t have to bother. But yeah I hated it. Oh but how can anyone hate carnival, especially in such country as Poland? It’s such a colourful tradition! Well, maybe I don’t hate carnival in general, there are or used to be some pretty interesting traditions over here relating to it and I always like to read about traditions be them ours or someone else’s, I’m just overall into folklore as you know.

But in my own experience, carnivals had always been yuck. We always had so many parties and balls and proms and discos and dancings or however to call them. We had usuallly one such event at school, one at the girls’ boarding school and one at the boys’ and sometimes also one at the cafe which also was in that centre.

If I’m totally honest, I don’t know exactly what I hated so much about them. Yes it was socially engaging and so challenging for me, but there were way more challenging situations there for me. Dancing is not my element definitely, but I’m not the worst at it and I do dance if I have to when we have some family parties or stuff.It wasn’t that I was left alone and didn’t haveto dance with, if I wanted I’d surely find someone, therewas a time when I was the only girlin the class and my classmates rather liked me as a friend and I did like them.

I guess that just the general atmosphere overwhelmed me. All that crowd and noise, so that even if you came there with someone there were 99% chances you will lose each other in the crowd even if you’re not dancing. And I always hate that feeling of being lonely in the crowd, way more than just being lonely, even if I talk to someone I often feel this way among very many people. And it’s awful.

So I always tried to do everything to avoid those parties. Theoretically, it wasn’t something compulsory to go there, but it wasn’t well seen for someone to stay on their own in the group while everyone else is out, you know, safety and all. And no one actually wanted to avoid them as far as I know, other than me, so it was seen as odd if you did, and you could be more or less pressured to go anyway. At that time I wasn’t assertive enough to just say no, I still am not sure if I would say if it happened to me now, knowing how pressured I’d be anyway, so I rather preferred to find some excuses, which worked sometimes, most often not very creaive stuff like period. When I was very young, I took an advantage of the fuss when they were going out and hid in the shower lol. I was desperate to not go with them, and then I got out when they all went out. As I supposed, no one even noticed I didn’t go, neither the staff, nor any of my group mates. 😀

One year though I did something particular. We got to know there will be two parties, one at school and one at the cafe, as it was Saturday. It was also my birthday, and I got mad. Why do I have to go to some yucky trashy dancing parties on my birthday if I hate it? Why can’t I do something better? And I was determined to not go, and instead, do something very nice. Well, not going could be potentially possible if I tried, but the latter was quite a brave goal in such a place where you can’t decide much about yourself. But I did it.

Luckily for me, at that time I had a kind of English teacher, well she wasn’t my real English teacher, she was my aunt’s acquaintance and lived in the city nearby my school, and my Mum and aunt introduced us to each other and my aunt had an idea that she – her acquaintance – would come to me while I was at the boarding school, say once a week, so that I could go out of that environment for a while and talk to someone from the outside, normal world and just have fun. We made an excuse that she’ll be teaching me some extra English, and the staff agreed. We didn’t cheat on them, if you’re worried, she did teach me English, but the primary goal was for me to just get out of there and do whatever we liked. We both liked English, so we often did English.

I called my Mum to ask her if she could send me some money, we had them stored by the staff but if our parents wanted they could send some to us too. Luckily they came on time. So I called my aunt’s acquaintance, let’s call her K. and I asked her if she’s free next Saturday because I’d like to invite her to some restaurant in the city for a dinner because it’s my birthday. She said she is and that it is cool, so I told her about those deeper reasons for that so we scheduled our meeting so that I’d be out during both parties. My Mum obviously agreed so the staff couldn’t do anything but agree too.

We went to the Moroccan restaurant and, guys, I guess there was the best food I’ve ever eaten so far. Although it’s possible that my happiness spiced it up even more because I couldn’t believe my luck and that it worked out. 😀 Anyway, it was one of more happy days I spent there. Or not there actually, as I wasn’t at school practically. 😀 I hate that city but if I’m gonna be there ever again I’ll surely go to that restaurant again. We had so much fun and we also did other things, but, funnily enough, I don’t remember anything more from that day now, even though it was long and intense. 😀 I only remember I came back to the boarding school with a huge Toffifee, I don’t remember if I bought it or she got it for me, anyway I was sharing it with my roommates at night.

Sometimes I tried to get someone from my family at that time so we could spend time together and I remember one quite hilarious costume party on which my aunt came to me, she’s crazy and very funny so we, and others, had a lot of laugh.

But other than that, I always hated those parties and still when we have some family parties with dancing or in huge locals, my brain turns upside down. Dunno, maybe I’m just boring, but if not being boring =liking dancing parties, no thanks, I’d rather stay boring, it’s way more interesting. 😀

How about you? Do you like dancing? 🙂 Have you been to many huge parties with dancing? Do you like carnival?

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Remembering… or how to tell your brain it’s over?

I’m remembering

a lot of stuff from the past lately. Lots and lots of memories which I try to ignore, and sometimes I succeed, sometimes not. So I thought maybe writing about it would help, if ignoring doesn’t work out too well. Those memories are mostly related to the beginning of the school year, which used to be an absolute nightmare for over a decade.

I see people from my family and others buying their kids things for school, I hear my Mum talking how she’s afraid of the next schol year for Zofijka, I notice time flying so quickly and September approaching, and each time I see any signs of the school year coming, I have to remind my brain, it’s not you now, it’s over. But it doesn’t listen for too long, and soon I get overflooded by another wave of memories.

I remember all those days and nights before I”d go back to the boarding school when I cut myself ’cause my pain and helplessness were too bad. I remember not being able to eat and sleep because of the anxiety. I remember the feelings of utter loneliness and not belonging anywhere, along with many other overwhelming feelings with which I couldn’t cope, but finally I always had to cope somehow, so I just bottled them up, feeling them rising inside of me with every second. I remember feeling very unsafe and rebelled that I had to leave everything that felt nice, familiar, everything and everyone that I loved, and how desperate I was to not do it. I felt guilty and weak because even though the situation was the same and obvious for so many years, that there was no alternative for me, I still couldn’t adjust to it. Well in a way I did, but the adjustment was only hiding what I felt so it wouldn’t bother anyone else, because well how long can it take you to accept something so obvious and inevitable that if you have special needs and need special education, you need to go to school where they can adjust things to you, and there aren’t many of such so most children have to be away from their families. For me that was an issue, and it looked like it was wrong.

Those feelings always accompanied me when I had to leave home and go to the boarding school, but when the school year was starting, they were particularly intense. Because the school year always meant changes. Changes that could often regard me more or less, but even if they were directly to do with me, it wasn’t a norm that I, or even any of my parents, were asked about our opinion, whether we agree on them or not, whether they’re acceptable. That was normal there. If you had a friend, who was also your roommate, with whom you lived for years, you got to know very well, you should be aware that when you come back to school next year, you may suddenly be informed that you two will no longer live together because… just because. And you could not only be moved to another room, but also to a completely different group. THis exact situation didn’t happen to me, only because I didn’t have real friends there, but it did to one of my classmates and she was just told to get over it, because it was necessary and such situations happen in life so she has to get used to it. I though changed my roommates very often too, and it was often very tough. And many other changes could await you there, hardly, if ever, nice.

So yeah, I was just sick of anxiety every year before the start of school year, and afterwards too.

But it’s now four years since I got out of there, and I am so happy about it, yet each time it’s close to September, my brain goes mad. Even this year, when I’m completely free of that freaky brain washing machine called education system. I even had a pretty yucky dream last night, I haven’t have this kind of memory dreams in a while, but that one was yucky and it took me quite a while to get back to the present after I woke up. Those dreams aren’t particularly scary, like creepy or something, but are just kinda made of my crappy memories so reliving them over and over definitely isn’t nice aND I wake up feeling nausious and stressed out.

As I wrote earlier today in Music Monday Care & Love post, I am trying to fill this week with various self care activities and other enjoyable things, and that helps me to stay in the present and focus on the positive, and there is much positive stuff going on in my life. Plus it helps me to not slip down again to that self-loathing hole, which is always very easy when I’m having memories. But it doesn’t stop my brain from going back to the past, often at least expected moments.

So I wonder, how do you make your brain know it’s over? It seems all so complicated.

 

Disappear.

Oftentimes, I feel the need to just disappear. Even just for a while. Just so that I can have time to set my messy brain in order, and start to function properly, or at least as well as I can, again, to recharge.

When I was living away from home at the boarding school for years, the only place I could go to to have a guarantee I’ll be absolutely alone was… the restroom. Sometimes I was just going there to calm down the chaos of my mind, or just to be alone for a while, but often I did it if I wanted to talk to someone on the phone privately. Of course, I could just wait until there will be a moment when there will be no one else in my bedroom than me, but it was a rare occasion and usually then, I was out too, or was busy, plus, when you really need to talk to someone, you need it just now. So, yeah, usually, when I talked to my Mum, or anyone else from my family, or my therapist, I did it in the loo. I hated it, because the sound echoed there so much and the privacy was minimal because anyone could hear you if they only wanted or if there was quieter outside for a while. But still you had more space than usually in our bedrooms, where there were at least three people living together if not more. Needless to say lots of people often wondered or even asked me what I do so often and for so long in the loo, but I didn’t care and if it was necessary, I was happy to satisfy them with some convincing enough excuses. Later on, I’ve found some other hideouts for myself, where I could just disapear, and feel better afterwards, or just demonstrate my rebellion or frustration by escaping there. I found LD and OOBE very entertaining. And some time later I started to use Doses (sound drugs). I was living half in my own world, made entirely of dreams, imaginings and hallucinations. I loved it there. Only that as it showed later on, there was also a much darker side to that beautiful world, which I tried to ignore. Without going into ethical stuff, as I talked a bit about it before, I can just say it messed up with my brain a little in a longer perspective.

When I got outa there, I was awfully depressed all the time, well I was before too, obviously, but when I got home I fuly realised it because before it happened, I simply didn’t have time to be depressed and I just had to live on. So when I got home and my depression set free, so to say, after so many years of being well hidden, it just struck me with its intensivity. And it was hard to cope with it. So again, I wanted to disappear, hide, run away from my freaky brain. And what I mostly did back then was sleep. Even my sleep paralysis nightmares were sometimes better than my depressed reality.

Now as I got relatively better, I still need to disappear at times. Not only when I’m depressed, but just to stay healthy and recharge my brain from time to time. Well actually I need it quite often, particularly after a lot of stuff happening or a lot of social interactions, doesn’t matter whether good or bad. Then I disappear into another world I’ve created for myself. I don’t always need to be long in there to feel better. Sometimes I just lay down with Misha, very close to him, and listen to all the sounds inside of him, cuddle into his silky fur, feel his little, warm and springy body under my hands. That feels very grounding and soothing. Other times I’ll lock my room, put the headphones on and flow away to Dreamland, a world constructed entirely of my favourite music, and my daydreams. Sometimes I just listen to the music and let my thoughts flow freely, sometimes I only focus on the music and other sensory stuff around me if I want to ground more, sometimes though I go deep into my dreams. I dream about very different things. From those very simple ones to some completely out of my reach, to very exciting ones, to ones that are actually fantastic. Sometimes I dream about stuff I really would like to happen some day, and sometimes about things that I’d rather prefer to stay in Dreamland, so that I can go away from them or come back to them whenever I want. daydreaming feels frustrating sometimes, if you feel like you’ll just never ever be able to make come true any of your dreams, you aren’t even sure if you want it, but most of the time, it feels gorgeous. As Enya sings: “Dreams are more precious than gold” so why not to cherish them? You can always emeerge from the waters of Dreamland if you want to, but you know it’s still there and you can float back there if you only want. And sometimes I listen to music and write something, be it my diary, a blog post, a short story, or just my lose thoughts. And then, I’m able to handle things more effectively. As there are no devices that would be a perpetum mobile, same applies to people. Everyone needs to recharge, and as it is with all kinds of devices, we also vary from each oter and so different rechargers fit us. 😀

Another time when I want to disapear, and that’s a rather common thing for all of us I guess, is when something triggers my anxiety suddenly. Be it social situations, crowds, some sounds, or speciffic things that always make me anxious and almost or completely freak out. Like yesterday. Since a few days, there was something stinking awfully on our backyard. We had a doghouse on our backyard, although we don’t have a dog nowadays, but the doghouse is still there just in case. And the smell seemed to come from there. Yesterday my Dad was doing stuff around the backyard and finally he just went there to see what it is stinking so horribly. It was just like a carrion smell. So he came closer and here’s what he saw – a dead cat lied wrapped in the cover that previously was our poor dog’s, Bobby’s. My Dad removed it and ran into the house. At the same time I was going downstairs to the kitchen, I wanted to pour myself a glass of orange juice that my Mum made. And I heard him falling in like a storm. I only managed to ask what’s up and then I heard some very scary and disquieting sounds from the bathroom. He was throwing up. I can imagine now how disgusting that view had to be. I wanted to disapear! Run away! Into the kitchen, back to my room, wherever. Wanted to scream so loud that I wouldn’t hear him doing it. But I just froze. And that was the worst thing I could do. I just couldn’t move. Just stood there on the stairs not able to do anything. I could only move when he was done with it. But luckily he was OK afterwards and it was just a single incident.

Are there times when you want to disappear? Do you do it then? Where do you go? What do you do there? 🙂

 

Question of the day.

Do you like picnics? If yes, what would you take on your picnic?

My answer:

Picnics… hmm, in theory, yeah, it sounds nice. But in practice… is it really so cool to have to keep all the possible bugs and insects off your food all the time? Plus I don’t have the best associations with picnics, because all of those in which I’ve taken part took place when I was at the boarding school and I never liked them. Either my group was going with the staff somewhere to have a picnic or a full bivouac and simply have fun, and as I’ve never felt truly like a part of them I never knew what to actually do with myself on such occasions, just didn’t feel well at all at those picnics and I felt like the atmosphere at them is so artificially joyful that it really bothered me and made me literally nauseous. Don’t know whether it really was artificial or not, anyway that was how I felt about it back then. Or there were large events organised for the whole school and called picnics, where lots of people, even famous people were coming and there were lots of things happening. I felt even more like not in the right place at the latter. I think if I could go on a picnic with the company I would really like and felt comfortable around, it could be real fun, but not the first activity I would think about when thinking how to spend time with someone I like. I think I have too much bad experience with picnics to be able to say I like them, and too little experience overall to say I don’t like them at all and that I would never take part in one again if I got a chance.

Question of the day.

Have you ever had to deal with any kind of pests, in your house?

My answer:

In the house we lived in previously, there was a while when we had to deal with mice. And no Misha wasn’t with us yet, and even if he would be, I really doubt he’d be able to hunt mice and do something about it. My room was in the attic and they particularly liked it. It was so that I’ve never had more than one at a time in my room, but after we managed to catch it and put it out of action, soon another mouse replaced it. I am not afraid of mice, but I was quite concerned about it, my Dad didn’t seem to be able to catch them easily, I didn’t know what to actually expect from them, I’ve had a lot of all kinds of wires in my room and was afraid what if they’d bite them or something. Plus they were extremely annoying. They were silent during the day, so that it made it more difficult to find them, and activated at night, maybe weren’t noisy, but still, those weird grates they made were annoying and sometimes wouldn’t let me fall asleep which pissed me off greatly. Sometimes – like when my anxiety was higher or when Dad had to get up for work at night – Mum would sleep in my room on the matress and we both were entertaining ourselves with imaginings what if that mouse would come out and decide to “make friends” with my Mum. She’s generally afraid of such little creatures, more of spiders than mice, but still. Luckily it wasn’t a long period, but it was rather pissing off.

When I was at the boarding school, there were some cockroaches there. I didn’t realise there were cockroaches until I was 8 and when I moved rooms for one of the multiple times I was moving rooms there. I just came back from home, a lot later than usual, it was after 10 PM so actually all the other girls that were already in were in beds and one of the staff had to open the building for me and my parents and she notified me that from now I am no longer in the room I was but in a different one. When I was making my bed in that new room, it was like 12 pm and I was quite surprised when I saw something small and hideous sauntering leisurely on the matress under the coverlet. I had no idea what it is, I just knew it was gross and that I have to get rid of it, so I just grasped it quickly and rushed to the bathroom, crumpled it and threw the stinkard into the loo. Yuck! I remember I washed my hands for about 5 minutes afterwards. No one else was around at that time so that was all I could do. I didn’t know it was a cockroach and I didn’t observe it or wonder what it could be, but so said my Mum when I told her about the situation. I’ve never had another direct meeting with a cockroach there, but lots of other people had and it was an issue. I’m glad I didn’t have to deal with it more, it was quite awful. 😀 Although my Mum said that if she was me she’d start to scream and wake up everyone, so I guess it could be much worse for some people.

How about your experiences? 😀

Question of the day.

How often did you play outside as a child?

My answer:

Not like very often. I’ve never had good orientation in open spaces plus I’ve learnt to walk pretty late in comparison to most children, and my interests were more indoor-oriented, I’d say. My brother played outside constantly with his cousin, but their things didn’t interest me at all and I never played with them. When I went to the nursery we were often going out to the playground

which was very near. As far as I can remember it was almost every day and it was always extremely boring for me. Children were usually playing on carousels or slides or other stuff like that, which I didn’t like at all because it usually messed up with my already messed up balance and made me dizzy and nauseous extremely easily and I’m still just allergic to such things, probably also because people from the staff were always so very astonished and like it’s not normal I don’t like these things, it made me hate them even more. 😀 So usually I was either vegetating on some milder swing and just waiting for them to finish, or just walking around aimlessly or talking with the staff. When I started going to school they still liked it a lot to go to the playground and we did it often, but then at least I could bring something to read with myself, although it was still boring to just sit there doing practically nothing. When Zofijka was born and grew up a bit, so I was like in my early teens, I liked to play with her outside and it was really fun, although we didn’t do it often.

A shitty, Zombie day.

Yeah, today I have another Zombie day, which means, if you’re unfamiliar, that I’m after a night of completely no sleep. I think the reason of my sleep being so poor recently is that I’m significantly anxious over many things. A bit more than a week ago my term exam session started, which is always some stress – almost none in comparison to final exams that I’ll have in May, but still, makes me quite tense. Besides, almost at the same time my brother picked up some tummy bug or something and was sick, with vomiting and all the attractions, which obviously triggered my emetophobia. It lasted for very long for him and then Dad got infected too and it lasted very long too, so I was freaking out literally, because they were sick and because I could get sick and anyone else could. I didn’t get it luckily, but still don’t fully know if it’s actually over for them. Moreover, my Mum had gastroscopy and colonoscopy on Tuesday before Easter. Well it didn’t regard me directly, but still it made me feel anxious for some reason, I almost felt like I myself was going to have gastroscopy, which would be just traumatic for me I guess and I was stressed for Mum. Don’t know why I reacted so strongly for it. And then Mum had also some not serious complications after that which contributed to my anxiety. It’s crazy. and my final exams are in a month now, which is the thing I’m most anxious about currently. It’s not only about the exams themselves and whether I’ll pass them, but also about the circumstances in which I’ll be writing them. I’m not sure whether I finally told you or not, I guess I did, but I won’t take them at my own school that I formally go to. My school is a normal, mainstream school and my Mum was kind of afraid I might not get all the adjustments I could get if I’d write at a special school for the blind, especially as for math, as this is the subject I particularly suck at and is very difficult for me. I agree with it and so my Mum came up with the idea she’ll ask the headmistress of one of the schools for the blind – not the one I was going to as a child, a completely different one – if it would be possible for me to write there. There was a lot of paperwork and other stuff involved, but it was possible and I got the permission finally. But this school, although is much closer than the one I was going to, is still quite far from where I live, in a different region. So we would have to stay in the boarding school. I know, I won’t be there on my own, there will be Mum and maybe Zofijka with me, I will live with them and the circumstances will be completely different, we’ll be out of there most of the time, I desperately try to think rationally about it, but the anxiety is still there. I know it’s so irrational and stupid and all, but it doesn’t seem like I could do much about it now. I’ll probably just have to face it and see if it was worth all that anxiety or not. Also, I’m having lots of nasty dreams recently, with sleep paralysis and without and they scare me so so much. Just last week I had sleep paralysis twice. It’s knackering and makes me feel just helpless. Often such dreams leave me anxious for hours after they pass away. So yeah plenty of issues that may contribute to that lack of sleep.

Luckily I didn’t have to do anything important today, apart from preparing to my History exam which I’ll have on Monday, but it wasn’t hard to do and I actually could do it tomorrow as well if I really needed. I feel absolutely crappy today, with no energy (despite three strong coffees), lots of anxiety and depression, but that’s normal I guess for everyone who didn’t sleep for an entire night, or at least it’s my normal when I don’t sleep properly, the more tat other things get in the way.

Recently I was writing that I plan on buying a new Braille-Sense, and it turned out that it’s time now for applying for funding, so I did some of that endless paperwork with Mum. Well I guess don’t have much more to say now. Just had to rant a bit.

How are you guys doing? 🙂